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jbeany
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« Reply #25 on: October 01, 2008, 03:44:12 PM » |
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Richard, I do home d - and my cat is a big help!  |
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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petey
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« Reply #26 on: October 01, 2008, 06:49:23 PM » |
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When Marvin was in-center, 3-4 kilos was his average (except for Mondays -- after the two days off when he'd go in with 4-5 kilos!). It was so strange because he was vigilant to the point of being obsessive about watching his intake (no output at all, though, poor fella!). During in-center, the scale was his worst enemy, and he hated stepping on it. The nurses/techs insisted on pulling off every single fraction of a kilo they could get in those four-hour treatments. Grrrrrrrrr.... Now that he's on home-hemo, the scale is no big deal. He usually puts on 1 (every so often 2) kilos between treatments. We had to adjust our thinking when we switched to home hemo. Take off most today, and we'll get the rest tomorrow. Getting down to his exact (or as close as you can come to "exact") dry weight in one treatment on home hemo isn't the main goal. That's another reason why he loves home hemo. Also, he's "allowed" an extra glass or two a day of fluid intake on home hemo.  Marvin says if home hemo could only make him pee-pee again, it would be perfect! |
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kidney4traci
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« Reply #27 on: October 01, 2008, 09:01:05 PM » |
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I could never pull that much off. Did try three the other day and had to adjust it because my bp dropped too low. Richard - there are exceptions to be able to do Nxstage alone you know... just thought I would mention it.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
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draven
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« Reply #28 on: October 02, 2008, 01:44:06 AM » |
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When i had my first dialysis session apparently they took off 4 and a half litres of fluid. i cant really remember it because i was still groggy from the anesthetic of my operation. but now on dialysis i cant take of more than 3 and half. otherwise i end up crashing and cramping  |
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boxman55
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« Reply #29 on: October 02, 2008, 07:54:06 AM » |
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every one is differant. after a weekend I am sometimes 5 kilos and have no problem until right at the end. Then like I said earlier you have to watch the BP...Boxman
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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RichardMEL
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« Reply #30 on: October 02, 2008, 08:32:03 AM » |
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I don't think we have NXstage down here....
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Lucinda
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Life is great!
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« Reply #31 on: October 02, 2008, 03:19:50 PM » |
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No Rich.....we don't have NXstage in Australia. When I do my home dialysis training I'll let you know if you could manage. My eyesight these days is absolutely atrocious but I was told that it won't pose a problem with needling etc and they said I would understand when I get there. When I went to the home training clinic, they told me that most people who do home dialysis are doing it on their own. Anyhow, I will let you know how it works Aussie style. xxx
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monrein
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« Reply #32 on: October 02, 2008, 03:31:13 PM » |
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Be sure to tell all of us too Cindy. I'm always hopelessly curious about different ways of doing things.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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flip
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« Reply #33 on: October 02, 2008, 05:04:19 PM » |
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I'm like Boxman, I've pulled around 5 several times (usually after a skipped treatment) with no problems or ill effects. Just watch the BP and run a good UF profile.
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That which does not kill me only makes me stronger - Neitzsche
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G-Ma
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« Reply #34 on: October 02, 2008, 05:12:28 PM » |
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In center a couple of times I was at 4 kilos but never could take off more than 3.8 or major cramps, blackout etc..stand on my head. First day in training I had 4 and they said only to take off 2 at a time and that worked..since that time the most I've had was 1.2 after 3 days off..labor day...and usually .6. I think every person has their own limits and needs to know them.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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RichardMEL
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« Reply #35 on: October 02, 2008, 07:36:57 PM » |
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I like UF profile 6 personally. Usually run it if I am needing to take off over 2.5kg
I've never attempted 5... 5 is the max they will attempt down here. The most I ever took off was 4.3 and it was not a lot of fun for me... good inducement to stay on the light side!
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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flip
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« Reply #36 on: October 02, 2008, 07:53:11 PM » |
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I usually run Profile 2 when I want to take off over 3 kilos. I've found 5,6,7 and 8 to be very similar. It ain't how much you take it off, it's how well you do it. I think it's really a matter of physical strength and condition. I see people crash all the time who are taking off less than 2 kilos.
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That which does not kill me only makes me stronger - Neitzsche
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RichardMEL
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« Reply #37 on: October 02, 2008, 07:54:54 PM » |
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I like profile 6 because it takes off more initially but goes in steps with a break (down to 100 ufr) every 30 mins, which really works for me.
Everyone's different I guess. You gotta do what works for you!
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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flip
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« Reply #38 on: October 02, 2008, 08:31:44 PM » |
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That sounds just like my profile 2. Mine is Fresenius 2008K. On mine you can pull up the little graphs that show what's going on.
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That which does not kill me only makes me stronger - Neitzsche
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RichardMEL
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« Reply #39 on: October 02, 2008, 09:18:12 PM » |
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yep we used the 2008K's and 2008S's..... the graphs are cool |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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devon
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« Reply #40 on: October 10, 2008, 10:58:04 AM » |
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By the way... last session was painful as reported in another thread... but
I had a net loss of over 7 kilos in this session! I am still in shock over that number! The most to date. I may be able to skip the Saturday (4th session) this week because of that. Today will tell the tale.
-Devon
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