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Author Topic: Make it go away!!!  (Read 2130 times)
Brightsky69
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« on: October 02, 2008, 12:32:58 PM »

 :'(  :'(

Today is a sad day. I got the word that I need to start dialysis. My doc told me that I have to get a PD catheter put in place before this month is over. I knew this was coming but today it was staring me in the face. It was in the room with me. I don't want to be back here. It was hard enough the first time.
I had a good run...17 years with this transplant. It feels like I am running a race and after 17 years I am back at the starting line.
I kept it together in the doctors office but as soon as I made it out of the building I started to cry. It took about 10 minutes for me to calm down in the car...enough to get my self home. I haven't told anyone yet...you guys are the first.
I am an appointment with the surgeon on the 7th. He is going to lay it all out to me. Then after that comes the PD catheter. So within 2 months I'll be on dialysis.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Joe Paul
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« Reply #1 on: October 02, 2008, 12:40:35 PM »

Sorry you have to return to the dialysis lifestyle. I pray your operation goes smoothly for you, and that PD works well.   :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #2 on: October 02, 2008, 01:15:28 PM »

 :grouphug; Brightsky. I'm so sorry. Are you listed again for a translplant? You have to have HOPE. I'll be thinking about you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
overthepond
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« Reply #3 on: October 02, 2008, 01:18:11 PM »

So sorry to hear about your news - all is not lost and once you are stable on dialysis you will look back and realise that at least you are still here and can regain some sort of normality.  

I always tell people starting out on this road that it is not the end of the world and that you just have to adjust your way of life to fit in with your treatment by keeping yourself busy with something and not just lie there feeling sory for yourself. - remember dialysis does't rule you, you rule dialysis.

Keep your chin up, I know you will get through it

Good Luck



Edited: Fixed underline tag error - okarol/admin
« Last Edit: October 04, 2008, 09:06:47 PM by okarol » Logged
monrein
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Might as well smile

« Reply #4 on: October 02, 2008, 02:41:12 PM »

Brightsky, I was exactly where you were now, in April of this year after a 23 year transplant run.  I do wish that you could have had longer with your trx and I know for all of us, no matter how long we have it, it's never enough.  I had the same reaction as you, kept it together in the office but broke down like a baby in my car in the underground lot.  I spent 45 minutes there, miserable beyond anything, but was at least confident that I needed to do that and would some how manage to pull myself together.  I had been "brave" and refused my husband's offer to come with me. 

Nothing I can say will make it OK, especially not right now with it all so fresh and final feeling.  I do trust and hope though that it will get a little easier with time as you adjust.  Big hugs.
Gail
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Lucinda
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Life is great!

« Reply #5 on: October 02, 2008, 03:04:37 PM »

Hey Brightsky....I am so sorry to hear you need to go back on dialysis.  I am starting on dialysis in November and I am really OK with it now but anyone will tell you I was a bit of a mess this time last year. Trust me, it won't be long before you are living up to you site name again.  It is a shitty adjustment...hang on....am I allowed to say that here....but you are really positive so I think you will adjust just fine.  The way you feel right now is totally understandable.  Anyone else in your position would be feeling exactly the same.  It is like the grief process.  It will never totally leave you but it will get better with time.  A big hug for now though xxxxCindy.
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Brightsky69
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« Reply #6 on: October 02, 2008, 03:27:13 PM »

I am so glad I have you guys to turn to. No one will understand like someone who has been there and done it. I feel a little bit better now....more calm.
I tried to call my mom to tell her but she was at work. However my brother was there and I told him. His basic reaction was...."oh". I am sure he just didn't know what to say. I haven't told my boyfriend yet. He's been in denial so I don't know how he is gonna take the news.
At least I know what to expect. I have done PD before. I gotta do what I gotta do. I am already on the transplant list and someday my ship will come in.  :)

Thanks so much for the support.   :cuddle;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: October 02, 2008, 04:21:48 PM »

 :'( I feel like crying with you. You must be feeling the loss as well as dreading what is to come. I am so sorry Brightsky.
You took good care of that kidney and I hope you can get another in the near future. Sending you good wishes and HUGS!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #8 on: October 02, 2008, 04:39:48 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Run8
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« Reply #9 on: October 02, 2008, 04:45:35 PM »

So sorry to hear about your loss, But remember that God will never give us more than we can handle.My prayers go out to you. 
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boxman55
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« Reply #10 on: October 02, 2008, 04:51:30 PM »

I am so sorry to hear this. i am saying a prayer for you...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
pelagia
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« Reply #11 on: October 02, 2008, 05:22:34 PM »

 :grouphug; I'm sorry to have to go through this. :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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