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Author Topic: Hi, I'm Steve. Glad I could be here.  (Read 2700 times)
RightSide
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« on: September 06, 2008, 07:15:04 PM »

My name is Steve.  I'm going to be 54 years old in two months.

A couple of years ago, I lost my job due to my company downsizing and my own mysterious loss of productivity and energy.  And I've had trouble with employment ever since, something I never had before.  I assumed my feelings of tiredness and dizziness and poor concentration were just emotional stress, and I tried psychotherapy.  Well, it turned out that emotional stress wasn't the cause.  I now know I've been feeling poorly because my kidneys were failing all that time (and some other physical health problems), and now they're just about gonzo.  So here I am, CKD stage 4, with some really horrendous blood workup numbers, about to begin the dialysis dance.
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Romona
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« Reply #1 on: September 06, 2008, 07:34:29 PM »

 :welcomesign;
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G-Ma
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« Reply #2 on: September 07, 2008, 02:04:01 AM »

 :welcomesign;  this is a good place...yes that's how I felt before I found out too that my kidneys tanked....I am feeling better than in many years now, you can do it.  :2thumbsup;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #3 on: September 07, 2008, 02:19:06 AM »

This is a wonderful site for information. The people here are full of information, plus we try to have fun!  Welcome!



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
breezysummerday
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« Reply #4 on: September 07, 2008, 02:46:31 AM »

"about to begin the dialysis dance"

hey, can I use that as my signature?
relatively new here myself
maybe not
how about:  'IHD is teaching me all the steps'
 
 :bandance;
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Joe Paul
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« Reply #5 on: September 07, 2008, 02:50:25 AM »

Welcome Steve, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #6 on: September 07, 2008, 05:06:30 AM »

:welcomesign; Steve. Lot's of information and support here. Post often and let us know how you are doing.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #7 on: September 07, 2008, 06:35:24 AM »

 :waving;    I love to dance, but not THAT dance.    :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
peleroja
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I have 16 hats, all the same style!

« Reply #8 on: September 07, 2008, 07:28:32 AM »

Welcome aboard, Steve.  Lots of good info here.  Keep coming back and post often.
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boxman55
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« Reply #9 on: September 07, 2008, 08:20:58 AM »

Welcome to IHD. Glad you decided to enter.

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
cookie2008
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« Reply #10 on: September 07, 2008, 08:38:02 AM »

 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
paris
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« Reply #11 on: September 07, 2008, 12:26:28 PM »

Steve, we are glad  you are here too!   This is such a wonderful place for information and especially for support.  Questions I didn't even know I had were answered here.  Members are very good at reaching out and sharing, so the path you are going down will be easier because they have been there before you.   And then your experience will help the next person.   Welcome!  So glad you joined!






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It's not what you gather, but what you scatter that tells what kind of life you have lived.
David13
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« Reply #12 on: September 07, 2008, 12:32:03 PM »

Steve, I am sure there are a great many questions you have regarding renal failure.  You will find one of the best sources of information right here, from people who have been through it all and are willing to share what they have learned.  Please take the time to read through the different threads.  I think you will find it well worth the effort, and it will make your "dance" a little easier for you. 
You will also find a caring, supportive group of people here,and you might have some fun with us as well!  We welcome you!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
monrein
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Might as well smile

« Reply #13 on: September 07, 2008, 05:55:52 PM »

I'm a year older than you Steve and I'm dancing to the same tune.  People here really know what you're going through AND they care as well...a winning combination.  Glad you found us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Ang
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« Reply #14 on: September 07, 2008, 06:07:01 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
devon
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« Reply #15 on: September 08, 2008, 07:40:42 AM »

Welcome!  You are not alone.  I've been through a similar experience.  It's bittersweet to find out that your mind isn't going, rather it's your kidneys that are causing all that confusion and lethargy.  It certainly doesn't make things better but it makes them more understandable.

I am still very resentful of how I was treated when my symptoms were effecting my work.  It was humiliating to say the least.

Glad you're joining us.

-Devon
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Lori1851
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This is me Lori , Dustin's mom

« Reply #16 on: September 08, 2008, 01:57:10 PM »

Steve,
Hang in their buddy!!!!! I will be praying for you!!!

Lori/Indiana
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #17 on: September 08, 2008, 07:22:19 PM »

Welcome to our community, Steve!  We are glad you could be here too.  In this family, 'the more is the merrier'! :grouphug;  this is just the place to be as you face this renal challenge.  just like you, a lot of us were going through something and having no idea what it was, until this thing was sprung upon us.  thankfully, we have many here who are veterans and living proof that we can make it!  So please read as much as you can "information is power" and post as much as you can, so we can know how you are doing. :flower;


Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
Pierre
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Let's have a drink !

« Reply #18 on: September 09, 2008, 12:36:34 AM »

Welcome Steve! I know what you're going through, been there myself, including the job part.
Once you'll have started dialysis, you'll feel better very soon. Don't worry about it.
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When things are at their darkest, it's a brave man that can kick back and party.
florida.flyer
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The JAX ramp rat

« Reply #19 on: September 09, 2008, 06:49:21 AM »

W!elcome to the dance!  I"ve been on PD for 1 year, it isn't rocket sicence and sure makes you feel alot better asap.
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southyard
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« Reply #20 on: September 09, 2008, 11:15:16 AM »

Hi steve.

I am new here also,my first post. 
er 2 angio plastis and a pacemaker upgrade  I kept  having breathing problems. Then a month ago after my 4th trip to the ER in 3 weeks they put me in inpatient for further testing.  Thats when it was discovered that my kidneys were the culpurt.  Meds were ried but in 2 weeks I was again admitted and they found kidney failure.  I was put on dialysis and ahve been having same now for 3 weeks.  Having decided in the past that I would never want to be in a nursing home and this was only a step lower I had definte thoughts of removing myself from this life.  I was though unable to come up with an acceptable method.  All my family knew of this and agreed that it was my decision to make.  My DR talked me into giving it a 6 month trial and I am now into my 3rd week but still not 100% certain as to my future.  BTW I am pushing toward my 85th birthday so have live a good life with no regrets.

I found this board and am learning things that were never told me by the medical people.  Only that D was the only way to go. 

Enough of my ranting

Harold the old guy
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twirl
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« Reply #21 on: September 09, 2008, 11:59:31 AM »

Life's a dance, you learn as you go, sometimes you lead, sometimes you follow. Don't worry about what you don't know, life's a dance you learn as you go.........
welcome to IHD
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