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Author Topic: HELLO AGAIN!  (Read 2497 times)
Vlynn
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« on: September 04, 2008, 12:22:13 PM »
 :flower;

Okay so it's been quite a while since I have been on here so I thought I would re introduce myself. You guys can just call me V :) Earlier this year my mom was diagnosed with ESRD and well I'm 24 and well just getting out of college and getting this sprung on you is a very tough thing for both of us. My mom is my best friend!!! she's amazing actually and well to get this news really played havoc on both our emotions :( but now both of us are doing much better although lately I have been really needing an outlet.

Thanks guys for reading!
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G-Ma
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« Reply #1 on: September 04, 2008, 12:39:30 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: September 04, 2008, 12:41:21 PM »


Thanks for posting V!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #3 on: September 04, 2008, 12:46:54 PM »
Welcome V, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #4 on: September 04, 2008, 01:48:39 PM »
 :welcomesign; V and let me be the first to tell you the good news. You've found the best outlet there is on the internet.  I hope you'll post often and I'm so glad that your Mom has your support.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #5 on: September 04, 2008, 02:13:51 PM »
 :welcomesign; again V. Post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
boxman55
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« Reply #6 on: September 04, 2008, 02:45:49 PM »
Glad your back V. Keep us posted on how you and your Mom are doing


Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Sunny
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Sunny
« Reply #7 on: September 04, 2008, 02:50:11 PM »
Welcome.
My children were 10 and 12 years old when I was diagnosed with ESRD.
Their ability to handle it depended a lot on my ability to handle it. Hopefully your Mom will get the support she needs from her medical team and family because if they make it easier for her, it will be easier for you too. These will be a good sight to educate yourself about ESRD. Good luck.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
bolta72
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my best friend
« Reply #8 on: September 04, 2008, 02:55:39 PM »
 :welcomesign; :waving;
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gotta do what I gotta do.. 2 yrs in ctr hemo
RichardMEL
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« Reply #9 on: September 04, 2008, 08:34:48 PM »
G'day V! Or Welcome Back.. or something like that. Sometimes we all need outlets, so feel free to let it all out here... :)

 :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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« Reply #10 on: September 04, 2008, 09:23:56 PM »
Well Vlynn you found your outlet.

Welcome back to ihatedialysis.com.

We are here for you and we are the largest on-line message board when it comes to ESRD and Dialysis. Remember we have a caregivers section as well, we all understand the caregivers trials and tribulations and we fully understand your point of view. You are welcome to post anywhere you feel necessary and don't forget to come and see us often.

Sluff/Admin
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paris
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« Reply #11 on: September 04, 2008, 10:16:12 PM »
Glad you came back.  It sounds like you and your Mom have a wonderful relationship.  I know you are a huge help to her.  There is great information here and wonderful members waiting to help.  Hope you post often.   :grouphug;






Paris,moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #12 on: September 05, 2008, 03:13:02 PM »
Welcome to IHD.com.  There is a lot of support here for you and your mother.  My daughters had a rough time when I was diagnosed with ESRD. Good luck and have fun here.



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #13 on: September 06, 2008, 05:37:27 PM »
 :welcomesign;  maybe your mom will want to join too.  It's great that you two are so close.  Sometimes it's easier to deal with the tough stuff when there is someone to hug.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #14 on: September 06, 2008, 06:30:00 PM »
 :welcomesign;  back  vlynn
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live  life  to  the  full  and you won't  die  wondering
Romona
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« Reply #15 on: September 06, 2008, 09:08:13 PM »
 :waving;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #16 on: September 08, 2008, 06:52:59 PM »
Welcome back to our community!  Glad you found your way back to us.  Now, don't be a stranger.  Let us know how your mom (and you!) are doing. Here is a group hug for you both.  :grouphug; :grouphug;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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