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thegrammalady
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« Reply #26 on: July 10, 2007, 04:14:03 PM » |
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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Amanda From OZ
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« Reply #27 on: July 10, 2007, 05:33:41 PM » |
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I'm sorry to hear that lola. I will say a prayer for your family,  |
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lola
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« Reply #28 on: July 25, 2007, 12:23:10 PM » |
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Fingers crossed everyone, a woman who contacted us after seeing us on TV had her blood drawn yesterday to be crossed matched against Otto. She is VERY familiar with kidney transplant's her 24 yr old son had his 1st when he was 5 and is now waiting for his 5th. I still can't get over the amazing angels that have stepped up for Otto  |
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Sluff
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« Reply #29 on: July 25, 2007, 12:32:07 PM » |
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Holy mackeral Lola,wouldn't that be a miracle? XXX fingers crossed XXX
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goofynina
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« Reply #30 on: July 25, 2007, 02:59:22 PM » |
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Good luck Otto (and Lola)  i am hoping for the best for you all |
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Amanda From OZ
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« Reply #31 on: July 25, 2007, 05:14:22 PM » |
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Wow lola! How great is that! good luck i hope everything goes to plan. What a beautiful person.
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charee
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« Reply #32 on: July 26, 2007, 06:00:27 PM » |
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Good luck Lola fingers crossed that it all goes well.
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
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Wattle
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« Reply #33 on: July 26, 2007, 11:37:22 PM » |
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Best of Luck. There are some wonderful people in this world.  |
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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lola
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« Reply #34 on: August 03, 2007, 06:51:45 AM » |
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Well we got word that she also tested positive to B cell. They said that if we can't find a match they may re due her and think about plasmapherisis but at this time the risk is to high  |
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lola
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« Reply #35 on: March 19, 2008, 09:50:41 AM » |
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Well as some of you know we had to take our plee of Craigslist, we had a psycho contact us and it got ugly over the fact we would not give him a picture of Dani(yuck). It's been 2 months now and we have re-posted, I need to get Otto a kidney we meet Tomorrow with a surgeon about access for Dialysis and for the first time in a long time Otto is scared S@#$less. Wish us luck that the psycho stays away. Or else  |
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okarol
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« Reply #36 on: May 04, 2008, 12:19:41 PM » |
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pelagia
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« Reply #37 on: July 12, 2008, 04:54:04 PM » |
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I just read this thread for the first time. Have any of your local newspapers given this any coverage? One of the folks who was tested for my husband was from our community and heard about his need through a newspaper article. I know that the possibility of needing to donate a kidney to your child is a heavy weight. |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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lola
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« Reply #38 on: July 12, 2008, 05:15:28 PM » |
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No there are to many people like us. The news said if Dani was sicker we would be more watchable WTF.
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pelagia
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« Reply #39 on: July 13, 2008, 08:22:20 AM » |
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I visited your CB site this morning. I hope that you will continue to have your fighting spirit |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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okarol
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« Reply #40 on: August 27, 2008, 06:04:37 PM » |
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To find a living donor I would recommend a few things:
1.) Set up a free Caringbridge site (it's FREE) and post your story and some photos and start your journal. http://www.caringbridge.com
2.) Email all your friends, relatives, co-workers, alumni association, fraternity/sorority, neighbors and church that you have the Caringbridge site and you hope they will get the message out that you're hoping to find a kidney donor.
3.) Be sure to check to see if your hospital will accept an altruistic donor (some do not) and if it looks good go to http://www.livingdonorsonline.org/recipients.htm and read about searching for a kidney. You can also post a "Looking for" message on the forum at http://www.livingdonorsonline.org/cgi-bin/dcforum/dcboard.cgi - NOTE: set up a separate yahoo or hotmail email specifically for responses so you will not get spammed or give out your primary email. Its is illegal to buy organs. Use common sense when dealing with strangers on the internet.
4.) If your transplant center will accept them, post a plea for a donor on www.Matchingdonors.com. There is a fee, but it will be adjusted or waived for those people who cannot afford it.
5.) If you have a friend or family member who is willing to donate but is the wrong blood type, you could possibly arrange a swap through John Hopkins Hospital or http://www.paireddonationnetwork.org/
6.) If you are too sick or overwhelmed or don't have the use of a computer often, ask someone to be your advocate and help do this for you.
7.) Don't give up. Send me a message if you need help.
Good luck!
Karol
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boxman55
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« Reply #41 on: September 13, 2008, 01:17:18 PM » |
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Great re-post Okarol...Boxman
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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I Hate Dialysis Message Board
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