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KICKSTART
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« on: September 02, 2008, 10:22:38 AM » |
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This morning i had to go back for more blood tests , after yesterdays hounding the unit! Turns out my Hemoglobin has dropped even more ( i just knew ) So now they are trying to find a space/place for me to get a blood transfusion done , all being well it will be Friday they think , my nearest hospital , the one i attend clinic at cant fit me in till the end of the month!! I said no way could i wait that long. Anyway i have been told they will ring me tomorrow with a place and date , lets hope its soon !!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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monrein
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« Reply #1 on: September 02, 2008, 10:38:08 AM » |
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I certainly do hope it's soon. The end of the month?? WTH?? I also hope that the transfusion will help get you back some energy.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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paris
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« Reply #2 on: September 02, 2008, 10:48:57 AM » |
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Kickstart, I am sorry you have had to wait so long for a solution. This is crazy. After the transfusion, will you be getting epo shots plus iron? Seems like they need to help you get your levels stablized so this doesn't keep happening. I'm sorry you have been feeling so bad  Hope it all gets better very soon. |
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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rose1999
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« Reply #3 on: September 02, 2008, 11:24:56 PM » |
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That's the NHS for you - it might be 'free' (although we do all pay through taxes) but it can be so slow. Keeping my fingers crossed for you Kickstart |
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thegrammalady
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« Reply #4 on: September 02, 2008, 11:30:27 PM » |
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glad you finally got some answers and that things seem to be moving in the right direction. hope you're feeling better soon. |
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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Joe Paul
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« Reply #5 on: September 03, 2008, 12:12:50 AM » |
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I hope you get the transfusion soon, and start to feel better.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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twirl
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« Reply #6 on: September 03, 2008, 09:12:51 AM » |
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kickstart your health+
good luck
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Sunny
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« Reply #7 on: September 03, 2008, 05:28:54 PM » |
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I hope they will get you the right treatment soon so you will start feeling better.
I don't know how you do it. You must be sooooo tired. My hemo level has been 11.5 the last few months and I barely manage.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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Sluff
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« Reply #8 on: September 03, 2008, 06:18:34 PM » |
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KS only you know how you feel and it sounds like you are good at advocating for yourself. Good luck and keep us informed. We love you. |
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Marley
Jr. Member
 Offline
Gender: 
Posts: 58
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« Reply #9 on: September 03, 2008, 10:07:54 PM » |
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I've been following your posts and am SO GLAD your finally getting the blood transfusion!! It's hard to believe how long you had to wait too and for them to even suggest you wait till the end of the month? It just started!! incredibly frustrating!! Maybe you should also have your vitamin B12 levels checked too? Marley  |
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Marley
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