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Author Topic: Hello..... a quick intro  (Read 2774 times)
vikki ross
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« on: December 05, 2008, 05:20:21 AM »
My dad has been on hemodialysis nearly two year! 

The short version of the story is:   It all started with a fall on Christmas Day... He fell going up the stairs and hurt his knee, three years previous he had been in hospital to have a knee replacement...   after the fall he was unable to walk, became dehydrated at home, had side effects from the painkillers and was admitted to hospital on New Years Eve, from then it just became worse.  When he had fallen an infection that was under lying from the knee replacement operation, shot round his body and landed in his right heart value... leading to a infection through-out his whole body!
They prescribed antibiotics round the clock but things became worse and his health deteriorated... At this point he was on an orthopedic ward and it was obvious that they did not know how to cope with this (but I wont rant in my first message about how hospitals have let us down).... After 6 weeks they moved him urgently across to a specialised kidney unit... by the time it was due for a biopsy, it was too late, he was fighting for his life, unconscious, hardly breathing , the family were all called in and we sat round his bedside waiting for the worse to happen.... over that weekend he had emergency dialysis three times and the renal doctors worked miracles.... amazingly he pulled through and although it was a hard three months of recovery for all.. he did it and managed to come ... In total he was on intensive antibiotics for 12 weeks, this was too much for his kidneys and they failed..! 
Since then we have had various trips to the hospital, I suppose like most dialysis patients have.. with all the problems that come with it....  He has also spent 3 months of 2008 with a concrete ball of antibiotics trying to kill off the last bit of infection in his knee and then had major knee surgery... which at present he is just recovering from.

Although we have tried and still do... it has changed the way life was and its hard, emotional and alway full of worry....
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monrein
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Might as well smile
« Reply #1 on: December 05, 2008, 05:24:01 AM »
 :welcomesign; Vickki.  What a sad thing for your family.  I'm glad you found us and I hope you'll come here as often as you need to for information and more importantly, support around all this stuff.
« Last Edit: December 05, 2008, 06:58:11 AM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #2 on: December 05, 2008, 05:56:15 AM »
G'day Vikki... great to have you with us and hope our community can help you and your family handle your father's journey through kidney failure and dialysis...

 :welcomesign;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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"Still crazy after all these years."
« Reply #3 on: December 05, 2008, 07:42:07 AM »
Welcome to the community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Katey
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« Reply #4 on: December 05, 2008, 08:01:58 AM »
Vicki--
Welcome to IHD!!  I have tried to encourage my siblings to visit this site as it is extremely supportive of anything and everything!!  Please continue sharing!!
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Diagnosed July 1985
Started CAPD 1995
Changed to Hemo 1996
Cadaver Transplant 1999
Back on Hemo Aug 2008
Found this wonderful site Nov 2008!!
willieandwinnie
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« Reply #5 on: December 05, 2008, 09:54:03 AM »
 :welcomesign; Vicki. There are a lot of caregivers on IHD and you'll find loads of information and all the support you can ask for. Please keep us updated on your Dad.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
cookie2008
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« Reply #6 on: December 05, 2008, 02:54:12 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
boxman55
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« Reply #7 on: December 05, 2008, 04:37:09 PM »
Welcome to IHD bening a caregiver can be a tough job. There are a number on this site that you can draw strength from. Please post often and keep us posting on how your Dad is doing


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
jessup
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« Reply #8 on: December 05, 2008, 05:20:25 PM »
G'day and  :welcomesign;
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Mimi
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For any who do not like me I use - prayer.
« Reply #9 on: December 05, 2008, 11:28:02 PM »
Hi and welcome to IHD.  You'll find all the info you need here, and then some.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
G-Ma
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« Reply #10 on: December 05, 2008, 11:46:09 PM »
 :welcomesign;         Welcome to a great group of people and thank you for supporting your dad.  I'm sure he is grateful.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #11 on: December 06, 2008, 01:59:10 AM »
Welcome to our community, Vicki!  Wow!  Your dad has really been faced with some severe challenges!  however, the upside is, he is still here with you.  I am sure that is the most important for you.  I can quite understand what you are going through.  You have found another family here - the IHD family.  :grouphug;  We will be with you for the long haul.  Just keep us posted on how your dad is doing (and on how you are doing too). Take advantage of all this site has to offer.  Apart from the general sections, there is a section for caregivers that might interest you.  Looking forward to hearing from you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
pelagia
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« Reply #12 on: December 07, 2008, 04:52:33 PM »
Welcome Vicki!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #13 on: December 07, 2008, 04:59:31 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
kellyt
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« Reply #14 on: December 08, 2008, 02:32:53 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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