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Author Topic: Hello my name is Frank  (Read 2200 times)
Run8
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« on: September 06, 2008, 04:35:00 PM »
Hello, my name is Frank, I'm 34 yrs old. I was 8 when i was diagnosed with Diabetes. Last year in March I had some low sugar problems at work. I am an engineer for Bnsf railroad. So I was withheld from service until the problems where resolved. Well, at these appts. is when i found out something was really wrong. I was told that I have 6 months to 1 year of kidney function left. Well it wasn't even 4 months later I was going in to have a cath. put in. My first Dialysis treatment was October 2007, and I will remember the day my life changed forever. After 4 months of doing the in center thing My wife and kids thought it would be better if we moved across the state(Nebraska)so  i could do the home hemo thing. So after 5 months of dailysis I am now doing it at home on our terms and time. I am on two Transplant waiting lists, One in Denver Colo. and one in Omaha Ne. We moved back home after all my training so we are now back in Scottbluff Nebraska. I got my first call two weeks ago, we made it 30 miles from the hospital and they called to say the organs were no good. I live 7 and1/2 hours away so that was fun. Oh forgot to mention i am wait for a kidney and panaceas. My wife and i have 4 children ages 15 to 4 yrs. Well that is alittle about me.


Frank Sanchez
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Joe Paul
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« Reply #1 on: September 06, 2008, 05:23:50 PM »
Welcome Frank, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
twirl
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« Reply #2 on: September 06, 2008, 05:29:40 PM »
hello and my name is not Frank
welcome and stay with us
we are amazing
twirl
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pelagia
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« Reply #3 on: September 06, 2008, 05:40:35 PM »
 :welcomesign;  we are happy to meet you.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
boxman55
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« Reply #4 on: September 06, 2008, 07:04:57 PM »
Welcome Frank, Glad to have you here. keep your chin up another call is in your future

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Romona
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« Reply #5 on: September 06, 2008, 07:36:05 PM »
 :welcomesign;
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G-Ma
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« Reply #6 on: September 07, 2008, 02:05:55 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
breezysummerday
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« Reply #7 on: September 07, 2008, 02:15:44 AM »
 :waving;

Hola! 
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
kitkatz
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« Reply #8 on: September 07, 2008, 02:21:02 AM »
Welcome to IHD.com.  Your experiences sound exciting to say the least.  I always wondered what it was like to be an engineer for the railroad. I bet you have stories to tell.


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willieandwinnie
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« Reply #9 on: September 07, 2008, 05:09:41 AM »
:welcomesign; Frank. Glad you found us. Hope you get your phone call quick. Let us know how you are doing.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #10 on: September 07, 2008, 06:20:47 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
kellyt
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« Reply #11 on: September 07, 2008, 06:24:36 AM »
:welcomesign;  Frank!   Wow, to get "the call" so soon!  Hopefully your next "call" isn't far away and the organ will be perfect and just for you!  Glad you found us.  I look forward to hearing more from you.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #12 on: September 07, 2008, 11:52:46 AM »
 :welcomesign;    That was a great introduction!   You seem to have taken control of your life and have good support from your family.  I hope the next call is very soon.  We are glad you are here and hope you post often.  We are all here for each other and there is tons of helpful information.   :grouphug;






Paris,moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Ang
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« Reply #13 on: September 07, 2008, 06:08:09 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
monrein
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Might as well smile
« Reply #14 on: September 07, 2008, 06:17:45 PM »
Hola Frank and  :welcomesign; to IHD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
oleboy
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« Reply #15 on: September 07, 2008, 06:37:27 PM »
Welcome aboard
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'hold fast your dreams for if dreams die life is a broken winged bird that connot fly.'
Adam_W
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Me with Baron von Fresenius
« Reply #16 on: September 07, 2008, 06:51:57 PM »
 :welcomesign; Frank. I immediately recognized exactly what your screen name means, because I've been interested in the railroads for as long as I can remember. I've done volunteer work for a railroad museum, helping to operate their steam locomotive. I've wanted to get a real job with a railroad but my medical issues have derailed that desire. Oh well, welcome to IHD.

Adam

p.s. For anyone who may be wondering, "Run 8" refers to the highest throttle setting on a diesel locomotive.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
devon
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« Reply #17 on: September 08, 2008, 07:42:30 AM »
welcome Frank!

-Devon
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ODAT
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« Reply #18 on: September 08, 2008, 01:04:14 PM »
 :waving; Frank, so much info here for you. And on top of that - lots of people who are awesome - including you! I am here for my mom who is predialysis. I pray you get another call soon.
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As is your sort of mind, so is your sort of search: you will find what you desire.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #19 on: September 08, 2008, 07:15:03 PM »
Welcome to our community, Frank! [ And an extra special welcome because of your name.  My dad, brother, uncle-in-law, cousin, nephew, great-nephew, grand-son's surname - are all Frank.  Not to mention a very special friend.]   We are so glad that you found us. This is more than just a forum: it's a family  :grouphug; There is lots of information here, as well as support, and even fun at times.  Please take advantage of all this site has to offer.  Looking forward to hearing from you as you let us know how you are doing.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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