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Author Topic: Hello and thank you for being such a plethora of information  (Read 3798 times)
the fread angels
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The Fread Gals

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« on: August 16, 2008, 03:34:38 PM »

:flower; hello to all of you here at IHD~~ my mom and i started training friday for CAPD for my dad who will be 75 next month.  he has
been a brittle type I diabetic since 1954~~54 years, and most of those days in that 54 years he took 3 or 4 shots.
he had a heart attack and 6 bypasses in 2001
in dec of 2006, my husband committed suicide and i came home for a while~~dad was not feeling well then and has continued his decline
in early july, he went into a diabetic coma that mom couldn't get him out of and the ambulance was called
there was a weekend doctor at the local, small hospital and ran a complete blood workup and he told
us that dad was in End Stage Renal Failure, he scheduled us an appt with a nephrologist for August 11
On July 8, we returned dad to hospital because he couldn't get a deep breathe and was having chest pains
he was admitted to Arkansas Heart Hospital for Congestive Heart Failure
On July 10, he went into a 6 hour diabetic coma and had a stroke while his blood sugar was below 50 almost the whole time, regardless of what
actions was taken.  It affected his right side
dad would no longer be able to manage his diabetes due to right arm and mental confusion
mom learned how to give my dad shots after 52 years of marriage and a wonderful diabetic doctor at Arkansas Heart Hospital found a formula of insulin for dad where he is given 2 types of insulin, a total of 4 shots a day
he was admitted to the hospital on August 5 for total kidney failure and received his first of 3 dialysis treatments in the hospital
this brought dad's weight down to below 130
mom and i started our training on August 15 and return to north little rock on August 18 for further training
i am so proud of my mom, she will be 70 in a couple of months and has bravely taken over dad's care
while fighting bladder cancer herself
She beat stage 3 breast cancer in 1996

i am so happy that i found this sight
i will most likely do the most posting,
but mom will also
 :bandance; we are glad to know this place exists
and i have learned so much from reading the post
that i was able to pass my tests 100% before training
even starts
We are the Fread's~~like bread or fred flintstone
Charles is the patient
mom is main caregiver
with me doing backup,
research and helping her with dad

dad is in a motorized wheelchair and can take a few steps~~remember those toys "...weebles wobbly but they don't fall down..." that's kind of like
dad except he does fall down sometimes

dinner is just about ready so i will close this post
see you soon
Charlene
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Charlene (50 y/o daughter)
Shirley (wife of 52 years)

Charles
Brittle Type I Diabetes since 1954,
     currently taking 4 shots of 2 insulins
6 Bypass Open Heart Surgery 2001
Total Kidney Failure July, 2008
Right Side Stroke July 10, 2008
Congestive Heart Failure July 2008
Wife and Daughter currently in Training for
Continuous Ambulatory Peritoneal Dialysis for
 Charles at home along with
managing brittle Diabetes

Charles has had many laser treatments
for eyes since 1981, last treatment told
he can only have a "few more", but the
doctors said he would be blind by 1985
paris
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« Reply #1 on: August 16, 2008, 04:04:54 PM »

Dear Freads, :welcomesign;  We are so glad all of you are with us.  Your father must have incredible inner strength to endure everything he has gone through.  It is so good that you are helping your Mom.  It so much for the spouse to learn and do.  Sounds like the three of you make a good team.   There is tons of information here but there is even more support. We all lean on each other.  Come here whenever you can.   I am also sorry about your husband.  You have had a lot on your shoulders. :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Joe Paul
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« Reply #2 on: August 16, 2008, 04:09:40 PM »

Welcome fread angels, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
the fread angels
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The Fread Gals

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« Reply #3 on: August 16, 2008, 04:20:28 PM »

 :guitar: i am in love with this site already~~~thanks for the warm welcome
charlene
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Charlene (50 y/o daughter)
Shirley (wife of 52 years)

Charles
Brittle Type I Diabetes since 1954,
     currently taking 4 shots of 2 insulins
6 Bypass Open Heart Surgery 2001
Total Kidney Failure July, 2008
Right Side Stroke July 10, 2008
Congestive Heart Failure July 2008
Wife and Daughter currently in Training for
Continuous Ambulatory Peritoneal Dialysis for
 Charles at home along with
managing brittle Diabetes

Charles has had many laser treatments
for eyes since 1981, last treatment told
he can only have a "few more", but the
doctors said he would be blind by 1985
pelagia
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« Reply #4 on: August 16, 2008, 05:19:08 PM »

 :welcomesign; Charlene and Charlene's mom and dad,

We are very happy that you found us.

You have been through a lot, but sounds like you also love each other a lot, which can be a real source of strength.

 :grouphug;

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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
boxman55
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« Reply #5 on: August 16, 2008, 05:31:01 PM »

Hi Charlene and Mom, we are all glad that you found IHD. WE are hear for you guys

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
the fread angels
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The Fread Gals

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« Reply #6 on: August 16, 2008, 05:50:58 PM »

:sarcasm; i can tell i am going to love the dialysis

this site has a wonderful name

ya'll are making me feel so very welcome

i know i have a ton of questions i should

be asking but not even sure of what

i need to know~~~i have been

reading several of the threads

and have learned so freaking much

more than i knew a week ago

hopefully dad will not be to

anxious to sleep tonight

mom is going to get on

here with our main pc

(i use my laptop) just

as soon as she is finished

with the info the PD center

gave us to study up on

 :yahoo; :clap; :2thumbsup; :cheer: for all the wonderful info and people here
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Charlene (50 y/o daughter)
Shirley (wife of 52 years)

Charles
Brittle Type I Diabetes since 1954,
     currently taking 4 shots of 2 insulins
6 Bypass Open Heart Surgery 2001
Total Kidney Failure July, 2008
Right Side Stroke July 10, 2008
Congestive Heart Failure July 2008
Wife and Daughter currently in Training for
Continuous Ambulatory Peritoneal Dialysis for
 Charles at home along with
managing brittle Diabetes

Charles has had many laser treatments
for eyes since 1981, last treatment told
he can only have a "few more", but the
doctors said he would be blind by 1985
G-Ma
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« Reply #7 on: August 16, 2008, 07:05:43 PM »

 :welcomesign; Charlene, Mom and Dad.  I am so sorry for what you have endured.  I believe you will find strength in each other and the people on this site who are wonderful as friends and with information.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #8 on: August 16, 2008, 07:12:29 PM »

Hi Charlene and Mom!  :welcomesign;
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monrein
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Might as well smile

« Reply #9 on: August 16, 2008, 07:33:26 PM »

 :welcomesign;  to IHD.  We, together, as a collective of people, have had experience with almost every aspect of kidney disease, dialysis and transplantation.  As a result there is a wealth of information here to sift through and from which to take what suits you.

I'm sorry that you, your Dad and your whole family have had such tough times but now you have a place where there are many who can relate to your struggles.

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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!

« Reply #10 on: August 16, 2008, 07:52:40 PM »

 :welcomesign;
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Ang
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« Reply #11 on: August 16, 2008, 08:04:14 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Lori1851
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This is me Lori , Dustin's mom

« Reply #12 on: August 16, 2008, 08:34:01 PM »

 :waving; Fread,
Welcome to IHD. You will learn so much on here and make wonderful friends!!!

Lori/Indiana :flower;
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mcjane
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« Reply #13 on: August 16, 2008, 10:12:01 PM »

Hi fread, this is the right place. There is not a question you could ask that someone will not be able to answer.
I'm glad you found us & a big welcome to both you & your Mom.      :cheer:
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rose1999
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« Reply #14 on: August 16, 2008, 11:27:24 PM »

Hi Charlene and the Freads  :welcomesign; - sounds like this is good a place for you to come, there are so many knowledgeable, sharing,caring people.  Ask anything, someone will know and loads will care.  What an awful time you have had, I hope life will throw a few good things your way soon.  :grouphug;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: August 17, 2008, 12:12:54 AM »

Welcome to our community!  This is just the place for you to be!  You have certainly, as a family, had more than your share of challenges.  But I am always amazed at the strength of the human spirit under pressure.  Sometimes it even brings out the best in us.  Well, you just got yourself another family - the IHD family  :grouphug;  You are guaranteed information, support, fun with a wonderful group of caring, sharing (and daring, as Twirl says) people, who are with you for the long haul.  this website has been a real weapon for many of us in dealing with this renal challenge, as well as many others that we face.  So take advantage of all that this site has to offer.  Read and read and post and post.  Looking forward to hearing much more from you :flower;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
peleroja
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I have 16 hats, all the same style!

« Reply #16 on: August 17, 2008, 07:28:42 AM »

Welcome aboard.  This is a great place for info, ranting and raving!  Keep us posted on what's going on in your life.
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willieandwinnie
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« Reply #17 on: August 17, 2008, 08:03:45 AM »

:welcomesign; Charlene. So glad you found us, this is the place for information and support. Bless your Mom's and your heart. Post often. :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Mercurial
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Building a Zen deathray.

« Reply #18 on: August 17, 2008, 11:17:07 AM »

There are many 'ifs' and they vary widely for each patient due to their circumstances and the way they maintain their situation.  Try not to get frustrated when there's not a definite answer available in any form and just flow with them.  It's knowing where those 'if's are that's the important part.
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"Tick tock tick tock tick tick."  -   six word story by Neal Stephenson
Sluff
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« Reply #19 on: August 18, 2008, 08:23:33 PM »

Welcome Charlene and your family to ihatedialysis.com,

Your family has been through a lot of rough times, but the real lesson here is your family faces these challenges together and that is an honorable trait. You have learned from your Mom and maybe someday you will be rewarding her by being there for her when and if it would ever be necessary. Sorry to hear about your husband, I'm sure that had to be rough on you. We are here for your family any time day or night, so ask all the questions you need and I'm sure you will get the answers you need.

Sluff/Admin
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carla13
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« Reply #20 on: August 19, 2008, 01:31:19 PM »

 :welcomesign;

carla
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Ohio Buckeye
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« Reply #21 on: August 20, 2008, 02:44:33 PM »

 :welcomesign; Charlene!
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If I must do this to live, I must strive to live
while I am doing this.
kellyt
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« Reply #22 on: August 31, 2008, 04:24:42 AM »

God Bless you and your Mother!  I hope all goes well for your Father.  You've been through so much!!!   :welcomesign;      :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kitkatz
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« Reply #23 on: August 31, 2008, 08:59:03 PM »

Welcome to I hatedialysis.com. we have lots for you to see and learn around here.  Good luck with your Dad. You are a special person helping your parnet out like you are.


kitkatz,moderator
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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