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DAUGHTER
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« on: August 11, 2008, 06:44:12 AM »

hi,

my dad is 73 years old in march they found he had a 5.5 cm  abdominal aneurysm he was asymptomatic very active in fact last June he was awarded first place champion golf coach for the blind.  The surgery went perfectly no major complications Fortunately we live just outside of Boston and he was treated at Mass General Hospital

Surgery was on a Friday the following Thursday he had developed HIT (heparin Induced Thrombocytopenia)  he did not get a bad batch of hep-arin as many assume he is allergic to heparin.  a synthetic med was ordered and he was released one week to the day of his surgery.

That Monday at home a visiting nurse came he was very swollen all over and yellow (jaundice) ultimately he had acquired a hemolytic reaction (red blood cell breakdown) which in turn caused his kidneys to fail.  Since then he was readmitted to the hospital about three times and has been on dialysis since.  At first they seemed to indicate that they were hopeful kidney function would return his renal studies showed no blocked renal arteries and they never could figure out why or what actually occurred.

We are now dealing with diet and symptoms of  CRF.  My dad is a fighter  an ex marine who fought for our country in Korea, a retired firefighter ,quit smoking in 1990 , quit drinking alcohol in 1979 but right now no sleep is really getting to him also he is exhibiting symptoms of restless leg and perhaps some anxiety related to breathless ness

He does have COPD has seen pulmonologist,  has cardiac echo booked for Thursday (in May he had one it was good) has dialysis 3week and PT 2x week. His strength is returning slowly.  I am hoping to get him a little happier with more tasty meals He misses tomato sauce and summer garden tomato sandwiches,  hates garlic

I just hope to find tid bits here.  I did see alot of similar symptoms he is exhibiting and reminded him how horrible last month was with bowel habits ( that has improved ) I told him about all the people I read about that complain about a lot of the same stuff as him.  We will be speaking with the nephro guy this week.

Thanks to you all and God bless
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willieandwinnie
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« Reply #1 on: August 11, 2008, 07:02:43 AM »

:welcomesign; DAUGHTER. Bless your heart and I'll say a prayer that his kidneys can recover. There's lots of information here and so much support. Keep us posted.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
peleroja
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I have 16 hats, all the same style!

« Reply #2 on: August 11, 2008, 07:30:49 AM »

Welcome, Daughter.  We're here to tell you that there is definitely life after kidney failure, and very productive lives at that.  Keep on coming back.  There are so many wonderful and knowledgeable people here.  Keep us posted on your dad's progress.
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monrein
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Might as well smile

« Reply #3 on: August 11, 2008, 08:19:19 AM »

I'm so sorry to hear about the tough time your Dad's been having.   :welcomesign; to IHD and I look forward to hearing more from you.






EDITED: Icon error corrected -  Bajanne, Moderator
« Last Edit: August 11, 2008, 09:55:04 AM by bajanne2000 » Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #4 on: August 11, 2008, 09:19:07 AM »

 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #5 on: August 11, 2008, 10:14:04 AM »

Welcome to our community!  I appreciate the love and concern which prompted you to join us.    There is lots here that will help = loads of information, but also caring and sharing people.  :grouphug; So please take advantage of all this site has to offer.  Looking forward tohearing from you. :flower;


Bajanne, Moderator



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I LOVE  my IHD family! :grouphug;
pelagia
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« Reply #6 on: August 11, 2008, 01:56:45 PM »

 :welcomesign;  sorry to hear of your dad's health issues.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
cookie2008
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« Reply #7 on: August 11, 2008, 08:08:06 PM »

 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Joe Paul
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« Reply #8 on: August 12, 2008, 01:27:14 AM »

Welcome Daughter, good to have you aboard.
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G-Ma
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« Reply #9 on: August 12, 2008, 01:56:22 AM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Ang
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« Reply #10 on: August 12, 2008, 02:21:05 AM »

 :welcomesign;
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carla13
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« Reply #11 on: August 19, 2008, 01:43:09 PM »

 :welcomesign;
xx
carla
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kellyt
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« Reply #12 on: August 19, 2008, 01:45:27 PM »

 :waving;       :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
devon
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« Reply #13 on: August 19, 2008, 02:02:30 PM »

He is so fortunate to have someone like you to look after him!  I hope we are able to assist in that effort.

Welcome aboard!

-Devon
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Ohio Buckeye
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« Reply #14 on: August 20, 2008, 02:31:50 PM »

 :welcomesign; Daughter!
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If I must do this to live, I must strive to live
while I am doing this.
kitkatz
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« Reply #15 on: August 31, 2008, 09:27:43 PM »

Welcome to the site. I hope your Dad is getting better every day. Tasty tidbits will get his appetite back and dialysis frequently should help, too.



kitkatz,moderator
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