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Author Topic: Back in the hospital  (Read 11622 times)
aharris2
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Volcan Pacaya, Guatemala

« Reply #25 on: August 26, 2008, 02:17:56 AM »

Marley,
 :grouphug;
We are with you.
Alene and Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
annabanana
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« Reply #26 on: August 26, 2008, 11:09:44 AM »

i am so sorry. I know it's scary.  :cuddle;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
thegrammalady
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« Reply #27 on: August 26, 2008, 03:11:33 PM »

:grouphug; more hugs, i really don't know what else to do or say. scary thought me at a loss for words. hopefully when we hear from you again you will have good news. we are all praying for you.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Marley
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« Reply #28 on: August 26, 2008, 10:59:43 PM »

Who was the guy that said things come in 3's??  How many times?  :)  My dad volunteered to come check the fluids in my car yesterday morning and I was out of brake fluid, or there was very little in the bottom of the holder, OMG.  After he filled it up, I went for a test drive around the block and my brakes are exactly the same, so it's parked again.  If I was completely out of fluid, wouldn't I need to bleed my brakes now---wouldn't there be air in the brake lines??  Anyone mechanically inclined?  It makes sense to me so tomorrow I'll ask my brother to come by.

I talked to his heart doc yesterday and he said that Mikey's endocarditis is NOT any better---NOT getting smaller like I was told.  It's a 2 cm vegetation on his mitral valve and he's got so much calcification on the valve that he "isn't a good candidate for surgery". He said that even if they replaced the valve, he's got too much calcification and it wouldn't work.  This surgery would save his life and I'm so confused right now!!  He told me he would talk to a cardiac surgeon and have him go over the test results and give his opinion.  Also, M's nephrologist came back from vacation today, it was his first time seeing him since Thursday last week.  I told him what the cardiologist told me yesterday and the first thing he said was----he doesn't know Mike---my thoughts exactly!!  He said that we all need to sit down and discuss the options.  They all agree that he needs this surgery to stay alive but they differ as to if he should.  This is very typical, it's rare when I see two doctors agree and it's always something important.

The nurses have been testing M's ability to breathe with less help from the machine and every time, he gets agitated and start gaging.  He was pretty restless and has tried pulling the tube out of his mouth so they put restraints on his wrists.  His stats didn't go down much during the test and so they pulled out the tube. (right in front of me)  Within minutes, he settled down and slept.  One thing that is bothering me and Dr H (neph) is that his sedation was turned off and he still didn't come out of it.  He's got a blank stare and isn't responding to the doctor, he will look at him but I don't think he is seeing him.  Dr H ordered a CT of his brain and I should know the results of that tomorrow.

I am feeling a little more optimistic today since I talked to Dr H, he and I both have witnessed Mikey getting to the edge of that cliff and come back, more than once so I know he will fight for Mike to get THE best care and treatment.
As for me, I am one tired out, worn out, brain fogged sore and achy woman---the 'sore and achy' part isn't that bad though, must be all the good and sincere wishes I got from you'all----THANK YOU!!  It's nice to come to a place where people understand what I'm going through right now.

Marley   :guitar:
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Marley
rose1999
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« Reply #29 on: August 26, 2008, 11:20:13 PM »

Yes the brakes do need bleeding, but you also need someeon to check if there is corrosion/holes in the brake pipes as there must be a reason why it was so low. Do you have the vehicle regularly serviced?  If so then checking levels is part of that so again there must be a reason such as a leak for it to drop so low. You are right not to drive it until someone has checked.

It's good to hear Dr H is back, he obviously knows Mike well and will know what is best for him.  You've had such a rollercoaster, I think about you a lot and send all  good wishes your way  :grouphug;
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pelagia
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« Reply #30 on: August 27, 2008, 09:54:58 AM »

just stopping in to read where things are today and give you a  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
annabanana
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« Reply #31 on: August 27, 2008, 10:14:02 AM »

I'm glad you're feeling more optimistic.  :grouphug;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
twirl
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« Reply #32 on: August 27, 2008, 10:30:38 AM »

I am praying for you now.
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Marley
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« Reply #33 on: August 27, 2008, 12:35:34 PM »

The CT scan came back ok!!!!  WOOHOO!!!  I called Dr H since I missed him on rounds this morning and he told me about the Ct scan. He also said that I would have an answer by the end of this week as to whether they will do the surgery he needs or not do it.  I don't see why they would deny him what he needs to save his life!!  Dr H was right, Mike's cardiologist doesn't know Mike well enough and thank God for Dr H!!!  I know he is in our corner. 
He will have dialysis this afternoon and after that, they are taking him out of ICU and putting him back on the Telemetry floor.  We know the nurses well and they know Michael too and I've found that when that happens, they seem to take more care with him.  He's such a sweetheart of a man when he is awake and they all know that.  When I was with him yesterday our daughter and son in law came in to see him.  While I was standing by his bed, I leaned down and told him how much I love him and to mostly just get close to him, feel his skin and breathe in his scent.  He leaned over and put both arms around me!!!  He still can't talk to me but just that gesture alone sustained me for a long time!!  He held me as long as he could until his arm dropped back down to the bed, so now I know he knows I am there. 
Marley

 :guitar:

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Marley
monrein
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Might as well smile

« Reply #34 on: August 27, 2008, 12:54:21 PM »

Oh Marley, I'll be thinking about you both all day today and in the days ahead.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #35 on: August 27, 2008, 01:38:48 PM »

 :grouphug; :cuddle; Marley. You'll continue to be in my thoughts and prayers.  :cuddle; :grouphug;
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G-Ma
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« Reply #36 on: August 27, 2008, 01:52:57 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
lola
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I can fly!!!

« Reply #37 on: August 27, 2008, 02:08:43 PM »

Marley, you and Mike have been in my prayers :grouphug;
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annabanana
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« Reply #38 on: August 28, 2008, 11:16:30 AM »

So happy for you and him that he hugged you. How beautiful!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
paris
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« Reply #39 on: August 28, 2008, 12:36:23 PM »

One hug can make the whole world better.  I keep praying for both of you.  Great news about the CT scan.  That was scary. He is one very strong man!  Now we will pray for the surgery.  It is good that the neph is totally on your side.   I hope you can get some rest.   Sending love to you both  :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #40 on: August 28, 2008, 10:56:03 PM »


Thinking about you guys. HUGS!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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circleNthedrain
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« Reply #41 on: August 28, 2008, 11:16:36 PM »

Marley, you and Mike are in my prayers.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
annabanana
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« Reply #42 on: August 29, 2008, 08:12:38 AM »

Sending extra good thoughts your way. :grouphug;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Marley
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« Reply #43 on: August 29, 2008, 10:46:49 PM »

THANK YOU THANK YOU THANK YOU for all the love, support and prayers you sent our way!!! 
See "very scared"

 :guitar:
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Marley
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« Reply #44 on: August 30, 2008, 05:29:21 AM »

A late get well soon, Mike.
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