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| | |-+  Somedays, you feel like Superwoman
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Author Topic: Somedays, you feel like Superwoman  (Read 4647 times)
Meinuk
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« on: July 27, 2008, 01:36:41 PM »

Everyone knows I dialyize alone.  Some days, it is incredibly lonely, other days it is empowering.  Today was the latter.  I kicked some home hemo ass.  Today was the most challenging session I have ever had.  I survived it, and I am pretty pleased with myself right now.

It all stated out as a normal 30L run using pureflow.  I primed the machine earlier today, went out for a long walk in Van Cortland Park.  Came home, cooked lunch, puttered and at 3pm sat down to start my run.

#1  Arterial wouldn't work with blunt.  Restuck with sharp.

#2  Arteial clotted- restuck with new sharp.

#4  got a # 36 alarm - fluid balance off had to terminate treatment and perform manual rinseback.

#5  couldn't rinseback.

#6  discarded cartridge.

Ok, now this is where the Supewoman part comes in.  I knew that I would have to re prime the machine, but I didn't want to recannulate myself again.  So, I flushed my lines and taped them to my shirt, like they do in the unit and primed the machine.

#7 pull new cartridge and new saline bag, prime machine.  BUT the cartridge had a manufacturing flaw (second I've seen) the spike for the saline is blunt.  I waste the cartridge and grab another one.

#8  prime cartridge #3.

#9  as cartridge #3 is priming, I head an alarm coming from the pueflow.  I have a leak in the pureflow unit.  (now, I am laughing.  Who would believe this???)

#10 I open boxes and set up for a 20L manual run.  (remember, I am hanging these bags one handed, as I am still cannulated)

I actually worked up a sweat today setting up for dialysis, and my apt looks like a war zone.  I just opened stuff up and threw it on the floor, I'll clean up later.

So, here I am, typing a post one handed, dialyizing away.  It will be a busy night of figuring out what happened with the pueflow and cleaning.  But this afternoon has proven that what ever does not kill you will only make you stronger.  It does remind me that having a partner would make thing so much easier.  I'm gonna have to work on that...

« Last Edit: July 27, 2008, 02:02:30 PM by Meinuk » Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Zach
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"Still crazy after all these years."

« Reply #1 on: July 27, 2008, 01:45:04 PM »

Congratulations!  You've passed the test.

:-*

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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Meinuk
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« Reply #2 on: July 27, 2008, 01:49:01 PM »

Thanks Zach - I never was a very good student - I'll take any passing grade I can get!

Could I consider a transplant to be a graduation present?
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Zach
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"Still crazy after all these years."

« Reply #3 on: July 27, 2008, 01:51:27 PM »


Could I consider a transplant to be a graduation present?


I'd gladly give you one of my kidneys, but that won't help you at all.
 
8)
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jbeany
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Cattitude

« Reply #4 on: July 27, 2008, 02:53:33 PM »

Nice going!  Coming thru with a sense of humor intact is the most important part!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

paris
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« Reply #5 on: July 27, 2008, 02:54:57 PM »

Meinuk, we already thought you were superwoman!  You just keep proving it over and over again.   That graduation present should be coming soon!!  I think this event officially puts you in the "rock star" catagory :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
G-Ma
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« Reply #6 on: July 27, 2008, 03:44:01 PM »

 :bow;  :bow;  :bow; You are my hero....OMG..and I have been wanting to do home hemo alone???? Fetal position in a corner sounds good to me.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #7 on: July 27, 2008, 07:11:17 PM »

You did not know Nxstage sometimes throws a pop quiz in there with their equipment?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
petey
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« Reply #8 on: July 27, 2008, 08:02:32 PM »

Way to go, Meinuk!   You truly are a superwoman, and you handled that awful situation like a real pro!
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RichardMEL
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« Reply #9 on: July 27, 2008, 08:15:48 PM »

Well done... of course I already knew you were superwoman... didn't I see you flying around in that cape, tight outfit and impossibly short skirt???? (flirt flirt  >:D)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KR Cincy
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Home hemodialysis since May 07

« Reply #10 on: July 28, 2008, 07:22:39 AM »

Anna...your courage and perseverance never CEASE to amaze me.

And can I get in on some of that flirting????????
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Not giving up...thanks to Susan.
cherpep
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« Reply #11 on: July 28, 2008, 07:29:44 AM »

I would have given up and called it a day after cartridge #2, and I have a partner.  Great job!!   I have tremendous respect for you, doing it alone.  Now, reading this and how you overcame this challenge - ALL HAIL ANNA!
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Meinuk
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« Reply #12 on: July 28, 2008, 08:17:15 AM »


OMG..and I have been wanting to do home hemo alone???? Fetal position in a corner sounds good to me.

The prudent thing would have been to end the session at Cartridge # 2 (this is what my nurse would have preferred that I do),  I am just stubborn.  I put a lot of pressure on myself to "prove that it can be done" which is why try to I post about the ups and the downs of doing it alone, I don't want to give the wrong impression.  Sometimes, when people read my posts, I feel like I make it sound too easy, which is a false representation.  It is not easy, but it can be done. 

And as far as being a superhero - well, there is plenty of kryptonite out there to take me down.  Yesterday was like I had just hiked a really long trail, and reached the mountain top.  It was grueling, exhausting but I had such a buzz when it was over (could have been the blood loss)  I had conquered that mountain. Then I celebrated with a game of online scrabble.  (which I promptly lost)

And as for all this flirting!  We need Amanda from Oz back - sorry guys, I am just not up to it.  It is confusing enough being me.  Online flirting does my head in.  This is not to say that the wicked flirt in me won't come out to play every once in a while, I just could never do Susie justice.  (she was the queen of IHD flirting - and Richard, I shudder to think of what I would look like in tights and a cape)

And Paris, as far as Rock Star status, I don't think that I would have been able to handle yesterday as well as I did if I didn't have the comfort of knowing that I am not the only one doing this. Meeting people through IHD really has changed my life.  So, I am really not doing this all alone.  I feel like I started dialysis at the right time in the right place to be afforded all of this support and encouragement, and I am grateful for it every day.
« Last Edit: July 28, 2008, 05:21:23 PM by Meinuk » Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: July 28, 2008, 11:26:57 AM »


I admire how you got through that one-handed, sweating, determined. You never know, with a partner you might have and more of a dispute or confusion (depending on the partner!  :-\ ) Now you've another notch in your belt of Superwoman experiences!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #14 on: July 28, 2008, 05:15:54 PM »

Well done... of course I already knew you were superwoman... didn't I see you flying around in that cape, tight outfit and impossibly short skirt???? (flirt flirt  >:D)
Richard needs to meet Superwoman. :clap;
I have almost no Superwoman days anymore but it is still expected by my family
they just do not understand
I am proud of you
I would have freaked
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RichardMEL
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« Reply #15 on: July 28, 2008, 05:44:34 PM »

meh you don't need tights and a cape to be superwoman... you're totally super to all of us... and that's not just me flirting!!

I'd love Amanda back but she has a life and a lovely partner I believe.... and I can't even flirt with Tamara.... *pout*

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
twirl
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« Reply #16 on: July 28, 2008, 06:00:40 PM »

I do not know about Amanda or Tamara
but a man who loves his cat so much has to be a wonderful person
good luck with the tech or nurse at dialysis who stated you might go get a drink together sometimes :guitar:
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pelagia
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« Reply #17 on: July 28, 2008, 06:30:16 PM »

 :bow;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
RichardMEL
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« Reply #18 on: July 29, 2008, 07:48:25 AM »

lol Twirl... the nurse... she's just a friend.. but thanks for the thought... hehe very kind :)

Now, let us return to the topic... I'm not trying to derail every thread I find !!!  >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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