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Author Topic: Hello-Intro  (Read 2630 times)
drivermwm
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« on: September 12, 2008, 02:19:28 PM »
Well here goes...I am a 50 year old male, father of two teenage daughters who is really new to all of this. Have been on hemo for two whole weeks (were having fun now). Somewhere in my 30's they told me i have PKD (polycystic kidney disease) and that my kidneys could last forever or i could have a problem in the future...so here i am. My numbers started to go up on a consistent basis so the Dr. had me have a fistula put in my arm in preparation for dialysis...Well evidently it wasn't ready to use yet (whole forearm bruised and turned purple, tell people i am turning into a smurf)... so i had to have a catheter installed and although it is a pain to deal with at least i am getting a full treatment. Trying to go at this as positive as possible and take it one day at a time and try to keep some peace and serenity in my life...(no sense getting all upset over thing we can't control, everything happens in Gods time not mine). Thanks for being here with some info that i need...take care and peace...drivermwm   





EDITED: Moved to proper section - Sluff/Admin
« Last Edit: September 12, 2008, 05:24:41 PM by Sluff » Logged
drivermwm
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: September 12, 2008, 02:41:11 PM »
 :waving; Hi - Glad you joined IHD drivermwm. I hope your fistula matures and works well in the future. I bet it's tough to go through all these changes now and I wish you the best. There are a lot of nice people her with lots of strength and hope! Welcome!


okarol/admin
« Last Edit: September 12, 2008, 06:30:28 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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« Reply #2 on: September 12, 2008, 02:50:27 PM »
 :welcomesign;  to IHD.  Lots of info here and many people who care about each other.  Glad you found us and joined the site.  I too had a permacath inserted because I was ready for dialysis before my fistula was.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
xtrememoosetrax
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« Reply #3 on: September 12, 2008, 02:57:27 PM »
 :welcomesign;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
willieandwinnie
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« Reply #4 on: September 12, 2008, 03:49:40 PM »
:welcomesign; drivermwm. Glad you joined us. Great folks with lots of information and even more support. Look forward to hearing more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Joe Paul
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« Reply #5 on: September 12, 2008, 03:51:10 PM »
Welcome drivermwm, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
peleroja
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« Reply #6 on: September 12, 2008, 03:57:02 PM »
Welcome.  I know the feeling about trying to remain positive.  I became a lot more positive when I switched from hemo to PD.  Guess I like being in charge!  Come back and post often.
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lola
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I can fly!!!
« Reply #7 on: September 12, 2008, 04:03:36 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
Sluff
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« Reply #8 on: September 12, 2008, 05:28:58 PM »
Welcome to IHD drivermwm,

Glad to see you trying to keep your spirits up. We are here through good days and bad, so if you need us we are here. I hope you find everything that you need here, if you have any questions just ask. Read and post often, it's good to meet you.

Sluff/Admin
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Razman
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« Reply #9 on: September 12, 2008, 05:36:28 PM »
Its great that you found the site and that you seem so positive about everything.  Please stay in touch and visit the site often.   :welcomesign;
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paris
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« Reply #10 on: September 12, 2008, 06:17:11 PM »
 :welcomesign;  Glad you joined us.  You have a great attitude!  This is a great site for information and for support.  Everything is easier when you have others to help.  Looking forward to hearing more of your story.   :2thumbsup;







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It's not what you gather, but what you scatter that tells what kind of life you have lived.
G-Ma
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« Reply #11 on: September 12, 2008, 07:37:57 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #12 on: September 12, 2008, 07:45:46 PM »
 :welcomesign;
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Ang
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« Reply #13 on: September 13, 2008, 02:30:41 AM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: September 13, 2008, 05:59:21 PM »
Welcome to our community!  Just the place for you to be!  I liked my days with a catheter for one thing only - I was able to get up and go as soon as the machine finished!  I hope everything goes well for you.  My experience is that it takes a little time, but after a while you start to feel better, and though we never get to like dialysis at least we can appreciate it helping us to be there for our loved ones a bit longer.  Take advantage of all this site has to offer - information, support, outlet, and even fun!  We have a great family here. :grouphug;
Looking forward to hearing more from you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
devon
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« Reply #15 on: September 15, 2008, 11:39:46 AM »
welcome!  And I concur... your attitude is very positive!  Thanks for joining us.

-Devon
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southyard
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« Reply #16 on: September 15, 2008, 03:24:37 PM »
A hey der welcome to you. I am on my 4th week of hemo, Had a bad start also First cath did not work sothey rushed a 2nd one(same operating team)  This one works perfect. Getting fistula started on the 29th.  Surgeon siad it will take up to 6 months to mature.  Hopefully she is wrong, but I am satisfied with what I have. Being an diabetic  octogenarian I take what I can get. 

ish you the best

Harold the old guy  alias southyard
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boxman55
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« Reply #17 on: September 15, 2008, 04:50:11 PM »
Welcome to IHD. We are glad to have here. Please post often there are a lot of people here with a lot of experience with dealing with dialysis

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Pierre
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Let's have a drink !
« Reply #18 on: September 17, 2008, 03:19:46 AM »
Welcome from a fellow PKD patient! Sorry to hear about the problems with the fistula, but it will get better in time. Give it a few months and you'll feel the same as before.
I don't have kids myself, the doctors told me there was a 50/50 chance my kids would enherit PKD so I choose not to have any. And BTW, think twice before you let them tested, because since I knew I had PKD I was denied life insurance and hospital insurance. Just tell them to live their life healthy as possible, stop smoking, and watch the bloodpressure.

Pierre
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When things are at their darkest, it's a brave man that can kick back and party.
carson
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« Reply #19 on: September 17, 2008, 08:25:10 PM »
Welcome!
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
lruffner
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« Reply #20 on: September 19, 2008, 06:05:51 AM »
 :welcomesign;
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
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