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Author Topic: Where Have You Done PD?  (Read 3352 times)
peleroja
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« on: July 15, 2008, 02:53:18 PM »

Adam W had an interesting idea, about where we have all done PD, so I'll start:

Home
My car
The travel bus
On a train in a private compartment, on Amtrak right in front of everyone (including strangers), on a private train in the rest room
Airport rest room
On a ship, on a sightseeing boat
In the lobby of a hemo center while my friend was being dialyzed upstairs
On a sightseeing bus while parked at the Catalina airport
Too many hotels and motels to count!
In the nephrologist's office

That's all I can think of.  How about you?
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flip
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« Reply #1 on: July 15, 2008, 03:38:22 PM »

Are any of you PD'ers a member of the Mile High Club?
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That which does not kill me only makes me stronger - Neitzsche
Adam_W
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« Reply #2 on: July 15, 2008, 09:11:51 PM »

I haven't even been on PD a month, so my list is short.

My bedroom (the usual spot)
My living room while watching TV
The kitchen table while eating dinner (after hooking up in my bedroom)
My back yard
My grandmother's house in front of about ten people

I'm sure there will be many more places as time goes by.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
peleroja
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« Reply #3 on: July 16, 2008, 06:33:52 AM »

I admit, Adam, I've been pretty bold about where I will do dialysis, but under no circumstances would I do it outdoors.  Sooooooooooo many more germs and nasty things outdoors.  Just my tuppence!
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Kini
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" Just keep Swimming "

« Reply #4 on: July 16, 2008, 06:36:59 AM »

Now this is a post I am going to follow, interest. I want SOOOOO to take my daughter to Hawaii for Christmas ( hopefully a kidney will come soon) but if not I really would concider putting her on hold and just going. Her sister lives there, the one who gave a kidney and she really wants to see her sister and Hawaii. I have been over 4 times  ;D so I know how long of a flight it is, from here it's 17 hrs if the flights are on schedule. It's hard on me to sit and be confined that long, and going to be harder on her but what I worry about is doing her exchanges in Plane  :banghead; we all know the bugs that fly in them !! And since she on the cycler, I'll have to do manual and I suppose seek help from her PD nurse to see how often I will need to do it. Fresenis can get a cycler and all supplies right to my daugther home in Hawaii with  2 weeks notice so it's just a matter OF GETTING THERE. So how many have flown and did exchanges ???
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Mother of daughter on PD dialysis. Transplanted 1991, dialysis June 2003, transplanted 2004 this transplant never took, still on PD and waiting 5 yrs. and when the gift of life is once again never shall we be tied down, look out Hawaii we are coming back !! it's my daughter's dream.
peleroja
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« Reply #5 on: July 16, 2008, 08:59:50 AM »

Although I have flown while on PD, it was usually not more than 3 hours, and I did my exchanges before and/or after in the airport rest room or on the travel bus.  I know one of my friends did her exchanges in the plane rest room, but she doesn't honestly recommend it.  I'm sorry I can't be more helpful.  I'll be in Hawaii in November, but I'm cruising instead of flying.
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Adam_W
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« Reply #6 on: July 16, 2008, 09:11:34 AM »

I don't actually hook or unhook outside, I've just rolled the IV pole outside after I'm already hooked up. I wouldn't feel comfortable either with all the little nasties floating around outside. I've taken a few long bus trips (a day and a half on the bus), and if I take another one I'll have no choice but to do my exchange in the back of the bus. Now that would make me uncomfortable because you never know what might be floating around on a Greyhound bus.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
peleroja
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I have 16 hats, all the same style!

« Reply #7 on: July 16, 2008, 10:50:41 AM »

My bad, Adam, I should have known you have more sense.  You're right, we're really only at risk during the uncapping and capping stages (well, not counting the exit site, which is considered an open wound).  I agree with you about the Greyhound bus, but ya gotta do what ya gotta do.  I always think if you keep your wits about you and are really, really fast, you'll be ok.  In 5 years, despite the "germy" situations I've had to dialyze in, I've never gotten peritonitis.  Good luck to you on the bus.
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Kini
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" Just keep Swimming "

« Reply #8 on: July 16, 2008, 11:28:28 AM »

 :bandance; Oh Perlroja, HAVE A WONDRFUL TIME IN HAWAII !!! I so love it there. Cruising would be awsome but I don't think I would ger my hubby on a ship, it's going to take all I got to get him in a plane  ::) I suppose I will have to talk to my daughter's Neph about such a long trip. Even if I did exchanges in the airport in between the flights are still 6 hrs and 8 hrs. I was told a long time ago that you can go a day without, but I have never done that I am pretty routine with her PD. You have a blast in Hawaii, have you ever been there before ?? I have been over 4 times in the last yr. and hoping to get over myself again in Oct. ALHOA !!!
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Mother of daughter on PD dialysis. Transplanted 1991, dialysis June 2003, transplanted 2004 this transplant never took, still on PD and waiting 5 yrs. and when the gift of life is once again never shall we be tied down, look out Hawaii we are coming back !! it's my daughter's dream.
peleroja
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I have 16 hats, all the same style!

« Reply #9 on: July 16, 2008, 01:22:38 PM »

Hi, Kini, nope, never been to Hawaii, first timer.  I didn't realize you had a layover on your trip.  Should be ample time to do an exchange either in the rest room or maybe they might even have a first aid office you can do it in or an airport lounge (less people than right out in the open). 

Too bad you can't get your husband on a ship.  My November trip is all cruise, 15 days, and it takes 3 days just to get there and 3 days to get back.  We visit 4 islands (don't remember which ones) and even have a 4 hour stop in Mexico if we like.  I love cruising, the food is wonderful.  I gotta admit, though, that thanks to the amount of walking you do just to get to the elevator to get to the food, I'm the only person I know of who actually lost weight on my Alaska cruise!!!!!  One good thing about PD is that with all that fluid pressing on your stomach, you certainly can't overeat (well, at least I can't).
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Kini
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" Just keep Swimming "

« Reply #10 on: July 16, 2008, 03:07:25 PM »

Peleroja, I am almost positive you will dock in Honolulu, I have seen the HUGE cruise ships there. If you do Dock walk over to the Aloha Tower, many nice shops there & most important is DON HO'S restaurant  :2thumbsup; talk about great food ...ummmmmmm and it's just a fabulous place to see.

I am going to ask her Neph. if the trip is possible I am sure it is somehow, even if I have to fly her first class but hopefully by then she will have her gift of life. Good luck on you meeting soon.
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Mother of daughter on PD dialysis. Transplanted 1991, dialysis June 2003, transplanted 2004 this transplant never took, still on PD and waiting 5 yrs. and when the gift of life is once again never shall we be tied down, look out Hawaii we are coming back !! it's my daughter's dream.
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