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Author Topic: Kidney foundation holds symposium  (Read 1962 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: July 04, 2008, 01:46:31 PM »

Kidney foundation holds symposium

Staff Report

Thursday, July 3, 2008

The National Kidney Foundation serving West Texas will hold its first patient symposium from 11 a.m. to 3:45 p.m. July 11 at the First Christian Church, 29 N. Oakes St.

A complimentary lunch will be provided, and door prizes will be given.

The event is open to the public, and dialysis patients and their families are encouraged to attend. The symposium will feature five speakers who will address funding and treatment options, exercises and how the National Kidney Foundation advocates for patients.

For more information, contact Kym Thomas at the National Kidney Foundation at (432) 570-4880.

http://gosanangelo.com/news/2008/jul/03/kidney-foundation-holds-symposium/?partner=yahoo_headlines
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #1 on: July 04, 2008, 06:23:23 PM »

NKF use to do that here, but now has switched mainly to supplying knowledge about transplantation. They do have some vendors from dialysis though, but no speakers. I was going to post the pamphlet, but can not find the file.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: July 04, 2008, 07:02:59 PM »

NKF use to do that here, but now has switched mainly to supplying knowledge about transplantation. They do have some vendors from dialysis though, but no speakers. I was going to post the pamphlet, but can not find the file.

which pamphlet?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #3 on: July 04, 2008, 07:08:59 PM »

I had  a pamphlet from  the National Kidney Foundation of Illinois called Living with Transplantation. It listed the breakout sessions, who was speaking, so forth. After 2001, NKFI stopped having seminars that mainly focused on dialysis and switched it's focus to transplantation and donors, which led to needing a bigger space.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Member for Life
*****
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #4 on: July 04, 2008, 07:12:25 PM »


try this? http://www.nkfi.org/patients/transplantation.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #5 on: July 04, 2008, 07:26:05 PM »

Mine had pictures and more information that what's on the website now since it was held in April. I suggested to them to put it online also to save some trees or to email it to members. Then they wouldn't have to print out so many and save a little of natural resources.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
donnia
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Gender: Female
Posts: 1012


me and my donor Joyce

« Reply #6 on: July 04, 2008, 07:59:56 PM »

Wow, Karol... this is in my town  :clap;

My nephrologist's wife is a transplant recipient.  She started our local support group.  She has been working hard to bring in the NKF.  I went to my nephrologist yesterday and when he walked in the room I was reading the flyer for this event.  I told him, "Wow, that sounds interesting!"  He responded with a great big smile and said, "yeah, and thank God most of it doesn't pertain to you anymore!" 
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
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