Urinating at Night

[oleboy]

Here is a question for those of you doing CCPD, I still make water and usually go to the bathroom 2 to 3 time a night, once I start doing CCPD will the cycler help reduce these trips to the bathroom,or will I need to have wheels on my cart with an extension cord?

[flip]

I don't know about CCPD but I imagine hemo is similar. Before I started dialysis, I had to get up and pee 5-6 times a night. Now I never do.

[KICKSTART]

Well i do CAPD so dont need to disconnect anything , but yes i still go 4 or 5 times during the night and it drives me mad!!!

[KT0930]

Yep, when I was on the cycler, I was still getting up my usual 1-3 times per night. My tube was just barely long enough to make it to the bathroom without disconnecting, but an extension cord and cart might not be a bad idea. When I was on vacation and couldn't reach the bathroom, I also took a 5 gallon bucket with me...not pretty, but it got the job done.

[MiSSis]

I'm currently on PD and have been on it for a little over 4 years and I still pee, even during the nights sometimes.  I use a Fresenius cycler and supplies and I'm able to attach a 10 ft. extension to the regular tubing which allows me to reach the bathroom.  My husband and I do quite a bit of traveling and sometimes the bathroom has been further away and there've been occasions where I've attached 2 of the 10 ft. patient tubing extensions.  I think Fresenius offers a 20 ft. extension but since I don't normally need that much extra, I stick with the 10 ft. and use 2 of them when I need to.

[KT0930]

After reading about them on here, I asked my PD nurse about the tubing extensions (I also was on Fresenius), and she told me they no longer offered them. WTF!!!

[MiSSis]

Wow, KT.  I'm thinking she must just not have wanted to make a simple phone call.  I'm still receiving the extensions, no problem.  I can't imagine having to use a bucket!

[KT0930]

Thankfully I only went on one vacation where I had to use the bucket, though it's definately an experience I would NOT want to repeat!

[jbeany]

KT - the fresenius website is www.fmcna.com.  Follow the link on the home page to the product catalog.  The 20 foot extensions are listed in with the cycler accessories, somewhere around pg 43 of the 64 pg catalog.  Print it out and smack your nurse over the head with it.

 

[Adam_W]

If I do CCPD, I'll be on the Baxter machine. Does anyone know if Baxter makes the long extensions as well?

Adam

[mikey07840]

Baxter makes patient extensions. My PD nurses prefer I don't use them: they explained that the extensions need to be primed and that means that there is more fluid that doesn't get drained really, just stays in the line. I have a urinal I keep in the bedroom at night while hooked up to the cycler in case I have to pee.

Hope that helps.

Mike

[Kini]

My Daughter has been on PD for 5 yrs. she still make urine although not as much. I was told it's not unusual to stop totally. Guess everyone is different. I keep a potty chair in her room near her bed.

[petey]

Disposable urinals (they have male and female) are another option.  Check with your local drug store or pharmacy.  Unfortunately, Marvin hasn't urinated in a little over four years.  He wishes he could, though (still has the urge -- and sometimes it's a very, very strong urge -- goes to the bathroom, but nothing!  Poor Marvin!)

[peleroja]

I don't usually have to pee in the middle of the night, but I usually have to do "other" stuff first thing in the morning.  Kaiser was kind enough to provide me with a bed pan which has come in handy on occasion!  You do what you gotta do, right?!

[twirl]

my husband, the coach, had knee surgery
and had one of those portable pee containers
he got home with it and when he was better and could walk he wanted to keep it
he gets up a lot to pee pee at night
I said NO
I wish I could pee pee at night
oh the memories

[Ken Shelmerdine]

I keep a 1 litre pee bottle at the side of the bed and empty it in the morning when I disconnect from the cycler. I could get a 12 foot extension tubing but I figure that walking to the bathroom would make me too awake to get back to sleep again.