I decided to have a Surgeon look at me

[kimcanada]

Oh JP, you sound like you have been through the ringer, I hope the bad is behind you now

[okarol]

Good to hear from you Joe Paul. I hope that ultimately you're feeling better and no more fluid retention!

Take care and get some rest! 

[Red from Canada]

Good to have you back, Joe Paul.  I'm glad you're on the cycler now.  It will take getting used to.  Do you know yet whether you are a fast transporter or a slow one?  My 9 hour cycles  have 5 dwells of i hr and 20 mins each, using 2 green bags, and I get good UF of about 1350 eqch.  If I have longer dwells, I wind up absorbing some of the dialysate.  Lots of adjustments can be made until you are happy and comfortable with your clearance.  You are right about the pet tests.  They are a pain, but necessary.

[Joe Paul]

Good to have you back, Joe Paul.  I'm glad you're on the cycler now.  It will take getting used to.  Do you know yet whether you are a fast transporter or a slow one?  My 9 hour cycles  have 5 dwells of i hr and 20 mins each, using 2 green bags, and I get good UF of about 1350 eqch.  If I have longer dwells, I wind up absorbing some of the dialysate.  Lots of adjustments can be made until you are happy and comfortable with your clearance.  You are right about the pet tests.  They are a pain, but necessary.

Red, the test results should be in sometime this week. As it is now, my cycler is set up for 4, 1 hour 46 minute dwells. Using 2 green bags, total ufs are around 1300 average.

[Sluff]

Hang in there buddy. 

[Joe Paul]

Got my PET test results & they aren't so good. My clearance is low, so I will be going to 2500 mls for the overnights. Nurse also said that I will be starting on Extraneal (Icodextrin) solution, as soon as Baxter OKs me for it, for my daily dwells. I will have that in me for the whole day as it takes 8 - 16 hours for it to do its best. I was told I will need 2 days of training for this solution. I hope the new combination works as I am just about fed up with the whole dialysis thing. I don't want, and probably will not go back to in center, I have had enough of that place. Those of you who pray, please pray that the new combination of PD works, or I get a transplant soon.

[pelagia]

Joe Paul - I am a relatively new caregiver and I don't really understand all of this, but I will pray for you.   

[Red from Canada]

Hi Joe Paul. . I am also on icodextrin all day and it works just fine for me.  The 5 cycles of 1 hour 20 mins overnight also work well.  Don't give up.  It takes a while for your body to get used to everything.

[monrein]

Just wanted to send you some good thoughts and hope the changes will help and you start to feel better soon.

[rose1999]

Just to let you know that you are still in my thoughts and prayers. 

[okarol]

Hey Joe Paul,
It sounds pretty frustrating, I hope you get the right system working for you.
Best wishes my friend 

[charee]

hang in there joe paul