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Author Topic: This is hard!  (Read 6346 times)
Ohio Buckeye
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« Reply #50 on: June 03, 2008, 12:16:09 PM »

Well, therapy went ok yesterday.
I was exhausted when I left.
She had me walk about 5-6 steps with a cane and holding onto her arm with the right hand and someone else
going along behind with the wheelchair in case I felt as if I was going to fall backwards.
It was so scary for me.  I didn't feel as if I was ready for that yet.
She said even 5-6 steps was good tho and we would increase it each time.
Next time she wants me to use a 4 pronged cane. 
Made walking with the wheel walker seem a lot easier tho. 
Practiced going up and down backwards on a small step about 2" high.
Holding on to both sides and person in front and back.  As soon as I can do steps safely
I want to get back home.  I miss my house.  I'm sorting my stuff today, throwing out what I don't
need and putting into a box things I'm not using right now. (winter gloves, etc.).
I keep wondering how you get to he place where you can walk without a cane or any aid.
Wish I could just put one foot in front of the other and take off.  Seems like I could now with
2 legs and 2 feet. 
The prosthesist forgot to tell me how to get my leg off Thurs when I got it and they were closed
and I called a friend and she called a guy who has an artificial leg and he called me and there
was a release button under the skinlike material.  Thank God I didn't have to sleep i it. 
It is funny now but wasn't then. 
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If I must do this to live, I must strive to live
while I am doing this.
rose1999
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« Reply #51 on: June 03, 2008, 12:35:18 PM »

You are doing so well, I hope you will be back home soon, no place like home is there.  I know it must be hard but I'm so proud and in awe of you. :grouphug;
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kidney4traci
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« Reply #52 on: June 03, 2008, 02:33:27 PM »

Thank you for sharing, it makes me realize how even daily routines are not to be taken for granted.  I am humbled by your daily routine now, as it sounds like everything is a stuggle, but you seem to be handeling it so well.  Bless you and keep up the updates.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
monrein
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Might as well smile

« Reply #53 on: June 09, 2008, 08:29:28 AM »

OB,  I wonder if you know how much of an inspiration you are to so many of us?  Your grace in handling all you have to is a real example for me as I try also to cope with what is on my plate.  You don't deserve to have to go through all that you are but you sure deserve our admiration.  Sending you a big hug and the wish that getting around with that new leg will soon be second nature for you.

Gail
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #54 on: June 09, 2008, 10:04:31 AM »

I am so proud of you OB, you've really made incredible progress from where you were only a few months ago!
I am glad you didn't have to sleep with the prosthesis on - good idea to call a friend!
Keep going - you're doing great!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #55 on: June 09, 2008, 08:34:45 PM »

 :grouphug; Hang in there... I am thinking of you and praying for you! 
Mikey
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
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