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Author Topic: Suggestions for Care Package for Transplant Patient in Hospital  (Read 10756 times)
dlady64
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« on: May 22, 2008, 09:36:04 AM »

First, forgive me if this is the wrong section.

I have a friend in the hospital a few days after receiving a liver transplant.  I know we're supposed to be talking kidneys here, and I'm still waiting for my own kidney transplant.  But I want to visit my friend (or more appropriately, his family, as I'm not sure he's receiving visitors yet) and I'd like to take something--either for him or for his loved ones waiting with him at the hospital.

Can anyone tell me what they needed when they were hospitalized?  Anything in particular that helped or brightened your day?

When my turn comes, fingers crossed, I'll be able to suggest what I might like, as well.

Thanks all!

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Chris
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« Reply #1 on: May 22, 2008, 05:31:58 PM »

Well it all depends on their likes. Maybe something they couldn't have, but now can. For me, I wanted real coffee, not the hospital stuff they call coffee. But found out I could only have decaf. I also got some candy (ie life savers, suckers, jelly beans) and something to read. I'm not sure what limitations liver patients had prior to transplant and what their limitations are post transplant, but just getting something they like would work. If you can, call them first and ask some basic questions to get an idea. With me, I could finally have sugar again, but what I got and what I had a taste for where two different things, so asking questions would help. As for the family, I have no clue there.

Hope you find something.
Chris
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jill D.
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« Reply #2 on: May 22, 2008, 08:06:13 PM »

I didn't need much of anything while I was in the hospital...except a hot shower!  :) Actually, I spent a lot of time on my laptop, but I know not every hospital room is wireless and not everyone has a laptop. Maybe take a magazine or two?
Most of the food I craved  were things I was supposed to avoid on the renal diet (milk, potatoes, cheese) and could be ordered for my meals. Some chocolate is always good!
It seems like I was pretty busy with doctor and nurse visits and getting up and walking the halls - didn't have much time to be bored.
The only thing you should not take are flowers or plants. I don't believe you can take latex balloons either.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
dlady64
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« Reply #3 on: May 23, 2008, 08:13:20 AM »

Thanks for the suggestions.  He's actually doing very poorly--contracted pneumonia and pleural effusion.  It occurs to me that this is really no different from any friend in the hospital.  Except I've never known the appropriate things to do for that either!

Do you think just visiting to site with the family would be appropriate?  I think the patient is out of it and right now his family needs support.

I'm terrible at this kind of thing.
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Deanne
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« Reply #4 on: May 23, 2008, 09:56:56 AM »

I'm sorry he isn't doing well! I bet his family would appreciate your support. Just sitting with them, maybe offering to run out to get them some real food or coffee if they aren't willing to leave, or giving them a break and staying there while they take a break from the hospital themselves, knowing you're there and will call them instantly if anything comes up.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
monrein
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Might as well smile

« Reply #5 on: May 23, 2008, 11:46:07 AM »

Really good advice Deanne.  And Dlady you certainly are NOT "terrible at this kind of thing".  You want to offer support, you care and you sound very thoughtful.  Nothing terrible there as far as I can see.
I think it would be entirely appropriate to offer the support to his family where it seems most needed right now.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MiSSis
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« Reply #6 on: May 23, 2008, 12:02:02 PM »

The hospital where I've had multiple procedures and surgeries has really nice family rooms on each floor.  These rooms have a family room type atmosphere with a table and chairs, couches, TV, VCR, games, puzzles, etc.  I know that when I had my open heart surgery, my husband's family visited with him a lot in that room, bringing cards to play.  I remember him mentioning the homemade cookies one of his aunts brought up.  Most of all he just appreciated having company during the long hours between visiting hours.
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
jbeany
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« Reply #7 on: May 23, 2008, 12:41:06 PM »

You can also ask if there's anything at their house that you could do for them.  Walk the dog, water the plants - inside or out, feed the cat. . . do they have any elderly relatives that they would like you to check on?  Errands to run?
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Chris
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« Reply #8 on: May 23, 2008, 05:55:12 PM »

Well Deanne summed it up pretty well on what to do and jbeane too if you are close to the family.

Sorry to hear about your friend.
Chris
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
dlady64
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« Reply #9 on: May 30, 2008, 10:46:35 AM »

Great suggestions!  Thanks, guys.

P.S.  He's turned the corner and is being moved to the transplant ward today!

Thanks again!
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Chris
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« Reply #10 on: May 31, 2008, 12:17:58 PM »

Hopefully that continues and they will be out of the hospital shortly to enjoy life.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: May 31, 2008, 06:31:39 PM »



Glad to hear he's better!

 ;D Silly gifts http://iheartguts.com/shop/index.php?main_page=product_info&cPath=8&products_id=72
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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