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Author Topic: Prayers for Rebecca  (Read 3651 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 21, 2008, 10:47:16 AM »
A friend of ours from Jenna's dialysis unit needs some prayers. Rebecca had a kidney transplant years ago when she was 13 but it rejected pretty quickly. For years she has had access problems due to vascular problems, causing scarring and fluid retention in her head, neck and chest. She is in the 20's and this has been a very difficult time. She had no luck getting a transplant here in Los Angeles so I recommended she go to the San Diego area. She was listed at Scripps where Jenna's transplant took place and last Friday got the call for a transplant! Unfortunately now she is having trouble due to a sleepy kidney, and she's still getting dialysis. I just spoke to her and she's alarmed because her head and arms are so swollen and she cannot take the discomfort. She had dialysis yesterday but the fluid is still building up. She isn't making much urine but the IV is still hydrating her and she's asked for more dialysis. But they asked her to wait as they want to keep plenty of fluids on board so the kidney doesn't get dehydrated. Poor girl, she sounds worried and miserable. Please send good thoughts and prayers her way. Thank you.
« Last Edit: May 21, 2008, 11:57:18 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #1 on: May 21, 2008, 11:20:33 AM »
She has mine, I hope she will soon be well  :grouphug;
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monrein
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Might as well smile
« Reply #2 on: May 21, 2008, 11:24:05 AM »
Count me in.  Poor girl, I'll be sending my best thoughts her way.  Come on sleepy...time to get waking.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
vandie
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« Reply #3 on: May 21, 2008, 11:41:08 AM »
Poor baby.  Positive thoughts headed her way.

xoxo
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
stauffenberg
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« Reply #4 on: May 21, 2008, 12:04:43 PM »
Is she getting Furosimide to stimulate urine production?  Hyperhydration plus diuretics is the way to go to overcome the delayed graft function, so let's hope she can be patient and tolerate the discomfort for a while longer.
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willieandwinnie
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« Reply #5 on: May 21, 2008, 12:43:29 PM »
:cuddle; She has my thoughts and prayers okarol.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
donnia
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me and my donor Joyce
« Reply #6 on: May 21, 2008, 01:03:45 PM »
Bless her heart!  She is in my prayers.  Back in October I had alot of trouble with swelling and retention in my neck and face.  We finally figured out that it was a blood clot at the end of catheter.  Hope they can get everything under control quickly!    :grouphug;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Sluff
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« Reply #7 on: May 21, 2008, 02:26:48 PM »
Rebecca, I do hope things get better for you.  :grouphug;
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Ang
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« Reply #8 on: May 21, 2008, 03:12:42 PM »
hope  she's  on  the  improve  real  soon
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live  life  to  the  full  and you won't  die  wondering
MIbarra
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Stopping to smell the bluebonnets
« Reply #9 on: May 21, 2008, 03:15:42 PM »
I too dealt with a sleepy kidney. I'll keep her in my prayers and ask God to wake that thing up!
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Cadaver transplant April 29, 2007
Romona
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« Reply #10 on: May 21, 2008, 03:19:50 PM »
 :grouphug;
In my prayers!
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spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008
« Reply #11 on: May 21, 2008, 03:28:12 PM »
Aww. :/ I'll be thinking of her today. I hope things turn around soon and that kidney starts working. <3
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
kidney4traci
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« Reply #12 on: May 21, 2008, 03:40:49 PM »
Praying for Rebecca to get this over and feel better real soon!!! :grouphug; Need a prayer smiley!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
paris
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« Reply #13 on: May 21, 2008, 07:58:15 PM »
Lots of prayers :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Laurie
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May 13, 2008
« Reply #14 on: May 21, 2008, 08:05:20 PM »
Prayers are being sent her way. I hope she gets better soon  :cuddle;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Rerun
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Going through life tied to a chair!
« Reply #15 on: May 21, 2008, 08:11:11 PM »
I prayed for her and will continue to do so.  I do hope the kidney wakes up and she will be on her way.
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Chris
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« Reply #16 on: May 21, 2008, 09:43:12 PM »
Sorry to hear. Hope her kidney wakes up soon so she can feel better and quickly.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Mimi
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For any who do not like me I use - prayer.
« Reply #17 on: May 21, 2008, 10:17:45 PM »
Prayers going up!.
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it is putting out the lamp because the dawn has come.
ODAT
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Nala - Mom's Cat
« Reply #18 on: May 22, 2008, 05:29:49 AM »
Prayers for you Rebecca, get better

 :cuddle;
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As is your sort of mind, so is your sort of search: you will find what you desire.
Beth36
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« Reply #19 on: May 22, 2008, 07:13:08 AM »
Bless her heart....I hope that kidney wakes up soon!!


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #20 on: May 22, 2008, 12:30:06 PM »
 :bow; :bow; :bow; (praying!)
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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