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Rerun
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« on: March 23, 2008, 04:23:52 AM »

At my new dialysis center there are a lot of forms to sign and people to meet and talk to.

On Wednesday of last week the nurse had some papers for me to sign.  One form was from a doctor I had never met.  She said he had filled out a form and I needed to sign it.  Well it basically questioned my current medication and he checked "Medically unfit for a transplant."  WTF
I lost it!  Why am I medically unfit for a transplant?  She didn't know, but just wanted me to sign.  WELL  HEEEEELLLLL NO !!!  I'm not signing any paper without knowing WHY he.... this bastard whom I've never met.... thought I was medically unfit.  AND why they had a meeting without ME present!!  I wanted to know just WHO was at this meeting!!!  She went and got the director and she was all "Oh, don't worry, he just hadn't met you so he didn't know what to put, you don't have to sign that."

Well, GOOD because you would have to pry the pen out of my dead fist.  Why would any professional put such a thing?  What about "unknown at this time"??  So, I already hate the SOB and I haven't even met him.  Although I can't wait because I'm going to rip him a new one.

Circling..............................   (bird flying around prey)

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Sluff
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« Reply #1 on: March 23, 2008, 04:31:36 AM »

I wonder how many people just sign the forms with out reading them. Good thing you read them. I don't blame you for raising hell. Here's a little help from Kitkatz's big stick.   :boxing;  :Kit n Stik;  and a Hug for you.  :grouphug;
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stauffenberg
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« Reply #2 on: March 23, 2008, 09:10:32 AM »

I was examined by three different medical teams for a transplant, and two regarded me as medically unfit for a transplant, while one said that I was fit.  I went ahead with the transplant and I am doing fine three years later, so you can see from my example how utterly arbitrary these judgments can be.  I think a large part of the assessment is determined by whether the physicians feel their kidney transplant waiting list is already too long or not, since if it is, they don't want to make it any longer by failing to find a reason to exclude you.
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willieandwinnie
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« Reply #3 on: March 23, 2008, 09:14:43 AM »

Rerun, we had the same problem for years, one would say fit and 2 others said not fit. None of them bothered to read the records or review history. After 5 years I got a really bad attitude toward the 3 of them and they finally sent paperwork to transplant center agreeing to FIT. It was an ordeal but you need to scream (and loud) at these doctors.  :banghead;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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« Reply #4 on: March 23, 2008, 09:37:23 AM »

 :boxing; Thatta girl Rerun! Don't let them push you around!
What is really scary is that many patients sign whatever is put in front of them, not knowing their fate is sealed.  ???
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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« Reply #5 on: March 23, 2008, 10:38:09 AM »

Unbelievable! And so many centers/workers/nephs would bully the patient into signing it, even if the patient did read it! Good for you for sticking up for yourself!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
rose1999
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« Reply #6 on: March 23, 2008, 11:05:08 AM »

Disgraceful! Good job you read it and well done for standing up to them. :bunny:
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petey
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« Reply #7 on: March 23, 2008, 11:24:39 AM »

Oh, Rerun!  How awful!  I'm glad you read that form and didn't sign it.  Now, how do you get that stupid doc to check "Fit"?  If they ask you to sign anything else this asinine, give them the pen and tell them to sign this   :sir ken;
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kelliOR
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« Reply #8 on: March 23, 2008, 12:23:04 PM »

WOW, Rerun....................I would've gone BALLISTIC !!!!!  What a bunch of SH*T.

Good for you for giving 'em hell !!   >:D

kelli

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Denied PKD for years (Boy, was I good at it!)
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Transplant from a friend March 24, 2006 at OHSU
kitkatz
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« Reply #9 on: March 23, 2008, 12:28:59 PM »

You just  :Kit n Stik; :Kit n Stik; the blankety blank doctor when you get a hold of him!
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Cincygrandma
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« Reply #10 on: April 22, 2008, 05:43:41 AM »

I'm still fairly new to the dialysis/transplant world, but a concern I have is that the same nephs, surgeons, etc., are buying into, owning, setting up, running, and profiting from dialysis centers, thus giving them more incentive (and $'s) to keep patients on dialysis.  Prior to starting dialysis, the only mention of transplant was in a video showing available options.  I had to bring up and pursue the subject with my neph.  Does anyone know of any data on this subject.
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Sunny
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Sunny

« Reply #11 on: April 24, 2008, 03:14:08 PM »

I can see your anger over this.
At least you read it and now you can act.
How dare they consider you medically unfit with no explanation.
It's your life there messing with.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Romona
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« Reply #12 on: April 24, 2008, 09:00:01 PM »

Transplant people should determine that. He is a moron.
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KR Cincy
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« Reply #13 on: April 29, 2008, 11:00:21 AM »

wow...just read this and now I wonder what papers I signed my first day of dialysis (did I mention I was looped up on Vicodin as I just had my second nephrectomy?) Guess I'll have to find out and, if necessary, pull out MY  :Kit n Stik;
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Not giving up...thanks to Susan.
monrein
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« Reply #14 on: April 29, 2008, 11:13:46 AM »

Rerun,  how are you?  I miss your posts and have been wondering about how you're doing.  I saw a post from you on another thread today (I still have to learn how to copy text) that sounded like you're feeling sad/mad/irritable, you know, like you have kidney disease or something ****ing awful.  Sending some thoughts your way...some wine, beer or whatever else that might in fact be more useful too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Katonsdad
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« Reply #15 on: May 01, 2008, 08:31:20 PM »

I am sorry but the pen woulld not have been in my hand .....

The doctor would need to pull down his trousers to sign is perscription pads
had he written that about me !!!!!!!
 :bow;
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



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kellyt
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« Reply #16 on: May 19, 2008, 08:17:13 AM »

What would make someone "unfit for transplant"?    :thx;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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« Reply #17 on: May 19, 2008, 11:04:06 AM »

  If you have severe heart problems, that would make you medically unfit - they aren't going to do surgery if you you are likely to die on the table, for example.  Every transplant center has different criteria - being morbidly obese might make you medically unfit as well.
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