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Topic: New to here (Read 3040 times)
AmyK3
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New to here
«
on:
May 06, 2008, 10:59:13 AM »
Hmmmm where do I start....First of all I am 49 (at least for a few more months). I am married and live in New Jersey for now....we are in the process of moving to Georgia.
I must say from the beginning and my husband Frank is my ROCK and I don't think I would have been able to get through this whole think without him!!
In January 2006 my doctor told me I should look into getting on the kidney transplant list. At the time I was not on dialysis. While doing the start-up testing (one of them being a mammogram) they found a lump in my left breast(not scheduled for that test for another 8 months).
Went in the hospital February 2006 for them to do a lumpectomy and do my fistula surgery, 17 days later I came out of the hospital. The surgeon said my number where to high to do the surgery, and instead inserted a Udol catheter. The catheter became infected almost immediately and had to be removed.
March 1, 2006 while still in the hospital they were able to finally do the lumpectpomy and fistula and tesso catheter surgeries.
I was diagnosed with stage 2 breast cancerand started chemotherapy in July 2006, following up with radiation September 2006. Now cancer free for 2 years!!!
My tesso catheter got infected on October 2006, with the infection going to my back and causing a fracture between t8 & T9.
Dialysis at times is a real b*tch, but life does go on, even if it means 4 hours and day three times a week.
Well for now that is my story.....off to read about yours!
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Don't sweat the small stuff....and remember EVERYTHING is small stuff!!
willieandwinnie
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Re: New to here
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Reply #1 on:
May 06, 2008, 11:04:44 AM »
Amy. We are a great group, that offer lots of support. Bless your heart, you have been through so much. Glad to hear that you have been cancer free for 2 years. That's great. Give Frank a big
for us. I am a caregiver and know how much he loves you. Keep posting and read, read, read.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: New to here
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Reply #2 on:
May 06, 2008, 11:47:31 AM »
Welcome to our community, Amy! so glad you decided to join us. I see you have been faced with some of the same challenges as I have. I am post-mastectomy (15 years this December
) and now this renal challenge. WE ARE SURVIVORS!! You will find that this website will become one of your weapons in dealing with this renal challenge. We have become a real family and our arms are always open to welcome another family member. So keep reading (there is loads here) and please, keep posting. We need to know how you are doing. Not nosy - just family.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
monrein
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Might as well smile
Re: New to here
«
Reply #3 on:
May 06, 2008, 11:50:18 AM »
Nice to meet you Amy. Sorry you've had to endure so much and hope that you'll be glad tohave found us to add to Frank and your support system. Look forward to knowing you better and to learning from your experiences as well.
Gail
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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Re: New to here
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Reply #4 on:
May 06, 2008, 11:57:36 AM »
this is a fantastic place to land. you will, however find many of us just a little
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Sluff
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Re: New to here
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Reply #5 on:
May 06, 2008, 12:19:23 PM »
Welcome to Ihatedialysis.com Amyk3,
Sorry to hear about all you have been through in such a short time span but I'm glad you are a survivor. Hopefully dialysis is going smoothly for you. If you have any questions please ask and post as often as you like. There is a lot of information here, and only a mouse click away.
Sluff/Admin
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boxman55
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Re: New to here
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Reply #6 on:
May 06, 2008, 03:07:23 PM »
Welcome Amy, It is a tough road we are here to support you
Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
Re: New to here
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Reply #7 on:
May 06, 2008, 03:39:17 PM »
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma
• Don't Knock on Death's door; Ring the bell and run away. Death hates that.
• I'm not a complete Idiot -- some parts are missing.
Romona
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Re: New to here
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Reply #8 on:
May 06, 2008, 05:32:06 PM »
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Ang
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Re: New to here
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Reply #9 on:
May 08, 2008, 07:22:52 PM »
welcome amy.
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live life to the full and you won't die wondering
annabanana
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Re: New to here
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Reply #10 on:
May 09, 2008, 06:12:23 AM »
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
celtic warrior
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Re: New to here
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Reply #11 on:
May 09, 2008, 06:22:14 AM »
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paris
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Re: New to here
«
Reply #12 on:
May 09, 2008, 02:03:03 PM »
You have been through so much the past few years. Glad to hear that you have been 2 years cancer free. Glad you found us. There is so much information and support here and so many compassionate members willing to help.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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Re: New to here
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Reply #13 on:
June 13, 2008, 07:42:00 PM »
That is a lot to go through over the past three years. I wish you lots of luck and send hugs your way. There are a lot of people here who are going through similar things. Support is here when you need it.
kitkatz,moderator
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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