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Author Topic: Thinking of an original grand entrance...hmmmm....Hello? lol  (Read 5035 times)
lruffner
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Posts: 146

« Reply #25 on: April 29, 2008, 10:36:53 AM »

Hi Anna, thanks for the welcome. I know how it is being a caregiver and all of the worries. I am still my mom's caregiver and this kidney stuff just makes it more complicated. I have to keep up with all of her appt., meds, problems, and now I am in the same boat and have to keep up with mine at the same time. My energy is going down the tubes quick, but I have too many responsibilities to slow down.

I am so thankful that I took the time to look into the kidney stuff and find all of the great sites. IHD is by far my favorite...I am thankful that Flip sent me this direction!  :thx;

Everyone around here is so sincere and helpful....thats enough to make me smile!  :2thumbsup;
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
Deanne
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« Reply #26 on: April 29, 2008, 12:28:08 PM »

Welcome Lee! I'm another pre-ESRD FSGSer. I'm at about 25% function and hopefully holding there forever!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
lruffner
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« Reply #27 on: April 29, 2008, 02:14:21 PM »

Hey Deanne, I would love to talk to you a little more in depth. I am exactly where you are and would love to know if you are being treated and so forth. I am having a hard time with the nephs and need a lot of help from those in our situation!

Thanks for saying hi!
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
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