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Author Topic: going to the hospital  (Read 3298 times)
Roxy
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« on: April 21, 2008, 09:19:03 PM »
Ok so since they switched me to Prograf, I have had ridiculously bad diarrhea and some minor vomitting. I've lost 14lbs in the past two weeks and can't eat anything. We're suppose to test this week for infections that would be found in the stool and if nothing shows then I'm switching to Rapamune I guess. I took a few days off work since I've been feeling really bad the past 2 weeks and tried working tonight. I was kidding myself to think I could work after not eating for a few days and losing so much weight. I almost passed out at work tonight and when I tried to eat I almost threw up. I called my doctor and he said I should go to the hospital. I have tried so hard to stay hydrated and everything but I just can't keep up with my body. I hate missing work and feel like I'm letting so many people down. I will be in the hospital for at least a couple days maybe a week I guess. I don't know....I just want to find a medication that I'm not so damn sensitive to!!!!!!!! Sorry, I just had to rant a little, I have just a mix of emotions right now. I'll check back when I can.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 21, 2008, 09:38:52 PM »
Oh Roxy, that sounds just awful. Are they checking for VRE? I hope they figure it out - be careful about dehydration. Sending you some big HUGS!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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willieandwinnie
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« Reply #2 on: April 22, 2008, 03:40:12 AM »
Roxy, I'm so sorry.  :cuddle; I hope they get things straightened out and quickly. Try to get some rest and fluids in you. Keep us updated.  :grouphug;
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Sluff
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« Reply #3 on: April 22, 2008, 04:06:12 AM »
Hope you are back on your feet in no time.  :grouphug;
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twirl
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« Reply #4 on: April 22, 2008, 04:22:59 AM »
:rant;        rant on Roxy


I will be waiting to hear how things are going. ( I would had a flower here if I knew how)
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kitkatz
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« Reply #5 on: April 22, 2008, 06:24:31 AM »
I hope you recover quickly and are out of the hospital soon!  :bestwishes; :bestwishes;
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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Romona
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« Reply #6 on: April 22, 2008, 03:09:46 PM »
 :grouphug;
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angela515
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i am awesome.
« Reply #7 on: April 22, 2008, 03:11:52 PM »
I am on Prograf AND Rapamune... have had no problems with them at all. I hope you get it figured out soon. :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
monrein
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Might as well smile
« Reply #8 on: April 22, 2008, 04:17:08 PM »
Good luck getting this sorted out.  We're pulling for you. :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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« Reply #9 on: April 22, 2008, 04:21:30 PM »
get better quick
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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KT0930
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« Reply #10 on: April 22, 2008, 05:18:21 PM »
Hope they get it figured out for you, Roxy! Are they also checking for CMV?
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #11 on: April 23, 2008, 04:38:53 AM »
 :grouphug; hugs for ya roxy

thinkin of ya

Tamara xxx ooo  :cuddle; :grouphug; :cuddle; :waving;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Lori1851
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« Reply #12 on: April 23, 2008, 03:10:45 PM »
Get well soon!!!!!!!
Lori/Indiana
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MyssAnne
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« Reply #13 on: April 23, 2008, 04:56:50 PM »
Oh hon, that's just pure misery! I hope they figure it out soon, so you can get stabilized!!

 :bestwishes; :bestwishes;
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thegrammalady
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« Reply #14 on: April 23, 2008, 05:24:20 PM »
rant away. hope you're soon well and back on-line
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......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Roxy
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« Reply #15 on: April 23, 2008, 10:36:51 PM »
Thank you guys for all your comments. I just got home and do feel better. When I got in my creatinine was 3.4 and BUN 40, so I was very dehydrated. All of my levels were low as far as phos, potassium, etc. They got me stabilized enough to where the creatinine has come down to 2.4 and I'm still just a little dehydrated but I will fix that. I started Rapamune today and will slowly come off of Prograf as the Rapamune gets to the right level in my body. So far Cyclosporine and Prograf do not like me, but hey third times a charm right???  :-\  Maybe Rapamune will be the key.
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Sluff
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« Reply #16 on: April 24, 2008, 04:21:21 AM »
Roxy, glad you are doing better.  :grouphug;
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willieandwinnie
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« Reply #17 on: April 24, 2008, 05:47:52 AM »
 :cuddle; Roxy. Hope you continue to feel better. We are also going through the medication change dance and it is proving to not be much fun. Take care and drink.  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MyssAnne
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« Reply #18 on: April 24, 2008, 04:49:56 PM »
I'm glad you're stable (relatively!) Roxy!!!  Now for the hard part....taking the stupid pills AGAIN!!!

GOOD LUCK!!!!!!

 :2thumbsup;
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monrein
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Might as well smile
« Reply #19 on: April 25, 2008, 09:43:00 AM »
Hoping for pill compatibility this time around.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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