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Author Topic: Rant (sorry if anyone fits this subject)  (Read 3073 times)
Adam_W
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Me with Baron von Fresenius

« on: January 17, 2009, 04:51:57 PM »

For years I've ridden my two wheeled vehicles (bicycles and scooters) all year round, even when I lived in Saskatchewan, where the temp would sometimes get down to -30 to -40 C. I just make sure I dress properly and I'm fine. However, I'm constantly having to deal with comments from family, friends, and complete strangers saying things like "Are you REALLY riding that when it's this cold?" or (for the ninth time) "Are you SURE you don't want me to drive you?" I've dealt with this a lot more in the States than I did in Canada. I appreciate peoples concern, but it really is starting to get old.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
kitkatz
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« Reply #1 on: January 17, 2009, 04:55:29 PM »

We love you and do not want you hurt.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #2 on: January 17, 2009, 07:40:44 PM »

My son says that I worry too much when I ask him questions like that.  I think it's just a mother thing.  I try not to do it, but sometimes I can't help myself.  I think the best thing for you do do is just say "No thank you."  and leave it at that.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #3 on: January 18, 2009, 12:26:20 AM »

To either of the questions I think I would give the person a "lonnngggg" look and say "no" and move on.  We had motorcycles and snowmobiles for each of us and the 2 boys in ND for years and used the cycles all year..so what...I really don't care what people think and thankfully my kids picked that up from me..I had decided to be this way because my mother "always" worried about what people will think..drove me nuts..I still will do things that people will say "are you sure you ????"...oh well, they are missing out on fun..I will jetski every chance I get if I feel well enough and have not a clue how to swim...   :rofl;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
twirl
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« Reply #4 on: January 18, 2009, 12:37:31 AM »

ride what you want to ride
drive what you want to drive
you are young and enjoy it while you can
I like to wear short sleeves and until dialysis I never wore a sweater or a jacket and that really bothered people
( it is not as cold as where you live but sometimes we had 17 degrees)
anyhow, tell them you look sexy riding two wheeled vehicles
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Sunny
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Sunny

« Reply #5 on: January 18, 2009, 12:44:43 AM »

I think people are projecting their fears onto you. You know what you can handle better than they so go ahead and do what's within your abilities. It isn't the same for everyone. Tell those you love nicely that you appreciate their concern but that you know what you're doing. Tell those you don't know that you'll be fine , thank you. However, I admit, if you were my son you would probably be hearing it from me too. Just be safe. My husband still rock climbs, mountain bikes, and skis fast. He tells me he knows what he's doing and don't bother him about it. I know him well enough to agree. Hopefully your loved ones will too.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
paris
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« Reply #6 on: January 18, 2009, 10:58:39 AM »

Adam, keep doing what you love to do.    This isn't the same, but when I was in Ohio last week, everytime it snowed I wanted to go out and clean my windshield and just dust the snow off the car.  My family kept saying to do it when the snow stopped.  I just wanted to be outside in the cold, feeling snow on my face.   Just let me do what I want to do without all the warnings and worry.   I think we are all smart enough to figure out what we can and can't do.  Dress warm and go have fun!  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
thegrammalady
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« Reply #7 on: January 18, 2009, 12:17:52 PM »

i can't remember how many times over the years i've said "yes mother, my coat is in the car" can't imagine where i learned to lie so well. just because she was cold she thought (and still thinks) i should be wearing my coat too. ignore them. it makes life much easier.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Adam_W
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Me with Baron von Fresenius

« Reply #8 on: January 18, 2009, 02:27:58 PM »

The thing that annoys me most is when I go into a store or something on a cold day carrying my motorcycle helmet, and I have completely random people asking me "Did you ride your motorcycle here?" Sometimes I feel like saying "No, I just carry a MOTORCYCLE HELMET wherever the hell I go". Some people are genuinely concerned for my health, but some are just nosy douche bags.

Adam
Logged

-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
kidney4traci
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« Reply #9 on: January 18, 2009, 02:30:41 PM »

I just think it's great you stay active.  So what... do what you gotta do.  I have a "new" 1985 honda scooter I love to ride.  It has a flat right now or I would ride it too!  We do have a Harley, and my hubby is on it right now.  Course, it is a lot warmer here.  But still, I love bike and motor bikes too!  More power to ya!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Sluff
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« Reply #10 on: January 18, 2009, 02:58:24 PM »

Ride it like you stole it!
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glitter
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« Reply #11 on: January 18, 2009, 06:32:52 PM »

Ride it like you stole it!

Thats HILARIOUS!!! 

Tell them your helmet is protecting you from the alien x-rays that keep trying to examine your brainstem!! and DONT laugh, just stare at them real seriously!  (nosy douchebags!!)   :rofl; :rofl;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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