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Greetings
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Topic: Greetings (Read 2896 times)
Ambo
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Greetings
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on:
April 17, 2008, 10:21:42 AM »
Hello all! I'm just figuring out all this great site has to offer, cool! So I figured I should start by telling a bit about myself (and it was suggested).
I'm a Canadian, living in Winnipeg, Manitoba (the heart of Canada). I'm a diabetic and have been dealing with its complications since 2000. I've been through it all; blindness, poor circulation... and now kidney disease. I've been on dialysis for a couple of years now and am on the waiting list for a transplant. Being that I've been dealing with sickness and poor health for so long I found myself "having enough". So I had decided to stop dialysis, it's been a process. Last Oct. I had stopped treatment for 5 weeks, then a friend said he was "thinking" of donating a kidney to me after we discovered we were the same bloodtype. Alas after he had a chat with the doc, he decided that it wasn't for him, wonk wonk. At this time I was going through a bout of peritonitis. But I decided to stop treatment again. So I managed amazingly to live for 10 weeks. I was tremendously uremic and the sickest I've ever been in my life. I just couldn't handle being sick anymore, it was awful. I also didn't think I would make it much longer and sucking it up and going back on PD dialysis seemed most appealing. So I ended up in Emergency and spent a week in the hospital getting everything back to normal.
I feel good about my decision. I'm working extra hard on this gig, so prayerfully I won't burn out. It helps to have a fantastic, caring doc.
Oh and a little about me besides my health issues... I dig reading, drawing, travel, I spend time with family and friends, I am a professional listener of music like jazz, and blues, cooking a big meal for a potluck with friends is one of my favorite things to do, usual stuff.
Thanks for spending some time reading this. Feel free to send words my way...
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"To live with a chronic illness is not a limitation, but a special invitation to those of us who are willing to accept the challenge.'” -Shad Ireland
monrein
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Might as well smile
Re: Greetings
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Reply #1 on:
April 17, 2008, 11:12:34 AM »
Hi Ambo
Glad you found this site and hope that it/we can help you feel a little less alone with this wretched illness and all the complications. Nice you now have a doc who cares, makes a huge difference.
BTW I'm from Toronto and don't know Manitoba well but I did fly to Bissett(sp?) once and canoed the Bloodvein River. There were over 50 portages but what a beautiful river.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Greetings
«
Reply #2 on:
April 17, 2008, 01:36:38 PM »
Welcome to our community! I feel the pain you have been through, but I am so glad that you are still here to join our IHD family. You have much to share with us. And we have lots to share with you as well. I would love to ask you (in the General Discussion) to describe those 10 weeks (when you stopped treatment) to us. Here is a place where you are free to vent, rant, rage, rave when you want to. Check out our posts and you will see. My caring thoughts are with you as you play the hand that you have been dealt (as we all have to)
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Romona
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Re: Greetings
«
Reply #3 on:
April 17, 2008, 01:53:19 PM »
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willieandwinnie
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Re: Greetings
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Reply #4 on:
April 17, 2008, 02:00:58 PM »
Ambo. Your story brought tears to my eyes. So glad that you didn't give up and that you found us. We are very good listeners and are the greatest support group. Keep posting.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
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Re: Greetings
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Reply #5 on:
April 17, 2008, 02:47:26 PM »
What an introduction. I'm glad you are still with us Ambo and welcome to ihatedialysis.com,
You will find lots of support here and so much information it gets overwhelming at times. What better way for things to be, knowledge is power. I'm sorry you went through the helpless stage and was ready to give up. Hopefully you will gain friendships here from some members who have felt the same or are feeling the same. I'm glad you are feeling better now but anytime you need to talk we are only a keyboard away.
Enjoy the site and feel free to post all you want.
Sluff/Admin
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flip
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Re: Greetings
«
Reply #6 on:
April 17, 2008, 02:52:26 PM »
Welcome, Ambo. After reading your story, I feel like I don't have any problems at all. You've found the right place for help and support.
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That which does not kill me only makes me stronger - Neitzsche
kellyt
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Re: Greetings
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Reply #7 on:
April 17, 2008, 03:20:12 PM »
I can't wait to get to know you better!!!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
boxman55
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Re: Greetings
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Reply #8 on:
April 17, 2008, 04:45:23 PM »
Hey Ambo, welcome aboard. If you need a place to rant we are here to listen. Look forward to your posts
Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
twirl
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Re: Greetings
«
Reply #9 on:
April 17, 2008, 05:07:41 PM »
stop stopping dialysis
you may not always get the choice to go back
you have a new family now and it is IHD
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Ang
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Re: Greetings
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Reply #10 on:
April 17, 2008, 05:16:15 PM »
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live life to the full and you won't die wondering
annabanana
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Re: Greetings
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Reply #11 on:
April 17, 2008, 06:23:42 PM »
Ambo!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Razman
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Re: Greetings
«
Reply #12 on:
April 20, 2008, 02:45:12 PM »
Thanks for sharing your story and dialysis is no fun but you've made it through the tough times and I am sure that things will get better. I live in Toronto and have family in Winnipeg. Please stay in touch and ask lots of questions . I know that there are people here that care.
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kitkatz
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Re: Greetings
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Reply #13 on:
June 13, 2008, 11:09:24 AM »
Welcome to the site! It sounds like you have been through the mill. Decisions to quit dialysis are always not taken lightly. It is nice to see you back in a routine and feeling better. Post any thoughts you have and if you need support we are here.
kitkatz,moderator
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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