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LadyStardust89
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Best darnest bowie fan dialysis patient ever...

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« on: April 09, 2008, 04:49:54 PM »
Howdy!

Well my name is Michelle (Mishy) (some of you all might know me from KidneySpace :)) I'm 18.. and obviously have ESRD.. so I do in center hemodialysis.. fun times..

Well I'm a pretty "typical" 18 year old.. music,movies,tv,school.. that whole shebang.. Feel free to IM me at SkandalousBanana via AIM.. I love talking to others about kidney stuff... among other things.









EDITED:Moved to introduction section-kitkatz,moderator
« Last Edit: April 09, 2008, 08:46:41 PM by kitkatz » Logged
Bowie fan,llama fanatic... dialysis patient. Wicked.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 09, 2008, 05:43:22 PM »
 :waving; Hi Michelle -
I am glad you joined our group and hope to see you post often!
Welcome!
 :welcomesign;


okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MyssAnne
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« Reply #2 on: April 09, 2008, 05:51:07 PM »
Welcome, Michele! Was that your choice, to do in-center hemo? 

I'm glad you're here!  I'll be sure to put your name on my IM list!
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willieandwinnie
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« Reply #3 on: April 09, 2008, 06:01:15 PM »
:welcomesign; Michelle, you'll find a hell of a group here to talk to. Sit a spell and read some of the older posts. Great information and plenty of input to all questions.  :cuddle;
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Mimi
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« Reply #4 on: April 09, 2008, 06:58:47 PM »
Hi Michelle, Welcome and come right in and make yourself at home.  We're glad to have you.

Love, Mimi
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it is putting out the lamp because the dawn has come.
Bajanne
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« Reply #5 on: April 10, 2008, 05:48:14 AM »
Welcome to our community!  I am sorry that you had to face ESRD as such an early age.  However, I know the strength of the human spirit in face of challenges, and it seems to me you are taking them head-on!  Keep on keeping on!  We are with you all the way!  :grouphug; There is lots to read here and we expect you to post a lot as well.  We even have a section specially for people of your age group.  So please take advantage of all this site has to offer.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
boxman55
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« Reply #6 on: April 10, 2008, 06:36:51 AM »
Welcome welcome welcome. Thanks for joining. Look forward to your insight

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
ODAT
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« Reply #7 on: April 10, 2008, 06:48:51 AM »
Howdy Mishy !  :waving;

You'll get lots of  :cuddle; and  :rofl; here. That's what makes this site so great is the seriousness when needed and the lightheartedness to offset the crappy stuff. My mom is still predialysis. IHD is a place to talk about anything because that's what dialysis affects - everything. And like you said in another post it is a pain in the  :sir ken;. (gotta love those icons)
« Last Edit: April 10, 2008, 06:52:25 AM by ODAT » Logged
As is your sort of mind, so is your sort of search: you will find what you desire.
Psim
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« Reply #8 on: April 10, 2008, 10:17:14 AM »
Ahhhhh, Bowie! No, I mean welcome to IHD!
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LadyStardust89
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Best darnest bowie fan dialysis patient ever...

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« Reply #9 on: April 11, 2008, 12:26:47 AM »
haha thanks! yea.. I'm a HUGEEE bowie fan.. or as I like to say " his biggest smallest fan!" lol

Well It's wasnt really choice.. I couldn't do PD because I had way way too many stomach surgeries and they said that PD wouldn't even work one bit and I may get an infection that will be even worse.

and I have extremely crappy veins.. I mean crappy.. it takes them like 5 sticks to get in a 24gauge baby IV! so I had only one choice a graph.. and you can't do Nxstage with a graph..

so yep..

I actually had CKD since very early childhood.. about 6(maybe) and went into ESRD at 11.. But I have been "sick" my entire life.. (born without a bladder..need I say more?) and some other problems.. so I am kinda used to.. like I know about "normal" life.. but this is all i know.. I'm like those polygamist wifes.. who don't know the outside world.. but have heard of it. But I try my best at being "normal" i think as I get older and begin to "find" myself I have learned better to seperate myself from my "illness" .. like before I always put my medical stuff ahead of everything.. But I have been trying to live.. and not always think about medical stuff.. It sounds bad when I say it "outloud" but It's not like I forget it all and go crazy.. but I always tended to put my life on hold for the medical stuff... and work my life AROUND my illnesses.. now I try to work my illnesses around my life..

liek with dialysis i know nothing is going to change suddenly so I know that I'm busy from a to b.. but all my friends know this so we hang after whatever.. or they visit sometimes..
plus I do my best at doing things even if I don't always feel up to it(who ever feels up to school reports and algebra?! :urcrazy;) ..

I seriously HATE calling it "kidney disease" it's not a "disease".. it makes it sound like the plague...
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Bowie fan,llama fanatic... dialysis patient. Wicked.
monrein
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Might as well smile
« Reply #10 on: April 11, 2008, 04:56:26 AM »
Hey Mishy  :welcomesign; to IHD.  I cracked up at your comparison to being a polygamist wife. :rofl; know what ya meant. exactly.  Great attitude btw. You're so right about having to try to have a real life even though CKD takes up way too much time (and sucks up too much energy).  Sounds like you already have some good friends and now you have tons more from being here. Hope to hear from you often.
Gail
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #11 on: April 11, 2008, 05:46:40 AM »
Welcome Mishy to ihatedialysis.com,

Are you from the Boston area? Great that you found us and I hope that we can help you through your ESRD journey.  :cuddle; here's hoping you are enjoying your teenage years despite having to be on dialysis and dealing with ESRD. If you need anything just ask, we are here to help you with any questions. Post often and be a part of this community it is a lot of fun sometimes.

Sluff/Admin
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annabanana
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« Reply #12 on: April 11, 2008, 05:47:26 AM »
"now I try to work my illnesses around my life.."

Welcome, Mishy. You do have a great attitude! I am a caregiver to my husband and you make a great role model for BOTH of us. (I tend to work my life around his illness.)

From one big Bowie fan to another,
Annabanana
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
rose1999
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« Reply #13 on: April 11, 2008, 08:12:11 AM »
Hi and welcome. I like Bowie too, reminds me of my 'youth' all that glam rock  :2thumbsup; 
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NolaGail
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« Reply #14 on: April 11, 2008, 11:08:25 AM »
 :welcomesign; Mishy!  I have followed your posts on kidney space.  You have a lot of wisdom for your young age.  Welcome to IHD.  Hope to talk a lot.

NolaGail
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In His no-slip grip!

Living donor has one more test to go (4-14-2008).  Her left kidney could be mine in a few months.  No surgery date yet.
kellyt
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« Reply #15 on: April 11, 2008, 11:15:36 AM »
 :waving;  and   :clap;  Great introduction.  No bladder?  That sounds wild!  What had to be done immediately?  Were you permanently fixed with a catheter or some sort?

Welcome  Welcome  Welcome
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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« Reply #16 on: April 12, 2008, 09:15:32 PM »
 :welcomesign; :ausflag;
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live  life  to  the  full  and you won't  die  wondering
LadyStardust89
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Best darnest bowie fan dialysis patient ever...

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« Reply #17 on: April 13, 2008, 07:30:50 PM »
Well.. I had a stoma until I was about 6.. then they built the bladder part out of stomach and they used the appendix and other bits.. really I was too young to remember. But yes, I must use a cath.. since i was born without a bladder there is no "sensation" or nerves to control the muscles and feeling the need to go.. so the way out is a cath ... unless you like being septic.. but the procedure is called  a "mitrofenoff" sp? its not too bad except somehow it is now full and i cannot put the cath in and I have to go in tomorrow and have a look inside.. which includes the bonus of general anaesthesia. :2thumbsup; 


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Bowie fan,llama fanatic... dialysis patient. Wicked.
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #18 on: April 14, 2008, 06:28:46 PM »
 :welcomesign;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
LadyStardust89
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Best darnest bowie fan dialysis patient ever...

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« Reply #19 on: April 18, 2008, 06:02:48 PM »
haha I love your signature Mikey07840!

It is true... But thanks for the support..
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Bowie fan,llama fanatic... dialysis patient. Wicked.
kitkatz
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« Reply #20 on: June 13, 2008, 11:02:38 AM »
Welcome to the site.  You sound like you are busy in spite of kidney disease.  Keep keeping on.





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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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