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Author Topic: Any one travel with NXstage???  (Read 14024 times)
breezysummerday
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« Reply #25 on: July 25, 2008, 08:47:56 PM »

I recently traveled with my machine in a RV.  Finding a place to put the machine was the hardest part of it all.  We ended up putting it next to the bed in the back.  Ir didn't fit there real well, but we could bungee cord it in while we were driving and we could handle the small issues to get to travel like this.  We had to remove the heater to put the green lines into it, then put it back on to run.  The cartridge was also pretty tight against the wall which also made hooking the heparin pump line up difficult.  For the most part things were cool.  We stored my bads underneath the RV in the huge storage compartment.  I am not sure but I think we carried seven or ten days worth of fluid at a time.  We had to set up a fluid pick up spot along the way.  Most of the time we were staying in campgrounds with full hook-ups.  35amp electricity is the most common, but 15amp home power works too.  We ran on the generator a few times and that went well.  We even tested fate and used the microwave while on the generator without any trouble.  We had a 29ft RV and it was very nice.  We turned the shower area into our trash can.  We would take empty fluid boxes break them down then stand them up open so we could put a trash bag inside them.  We use those tough no rip trash bags.  They are expensive, but they help with keeping the cartridges from ripping the trash bags.  Most RV campgrounds had big dumpsters we could dump our trash in.  My connection supplies I kept in the closet behind were the machine sat.  I bought rubbermaid containers that were deep and small.  I filled them with everything I would need to connect for however many days I could fit in a box.  The trip went really well as far as the machine working great, generator or regular power,  We had enough supplies for the trip,  we were able to handle the trash really well,  everything worked out great.  I also made sure I planned to do a few extra skip days.  It was good I did, because I had other medical problems that kept me from getting a TX in a few nights.  The thing was that I was prepared for that event.  There was even a skip night that I had planned and it happened just so we could enjoy a night without a TX.  I can't wait to win the lotto.  We will be buying a RV and we will live full time in it.  You can work at campgrounds and live there all year round all over the place.  There are all ready plenty of people that do it.  I think there is even a magazine about it.  That is what I want to be my live.  I don't want to live in a house in a city.  I want to live in a campground below sea level in death valley.  Or at eagle lake, or lassen volcanic park.  or etc.....   Sorry for the tangent.  Traveling with NxStage in a RV is nothing more then doing it at home really. 
LSB
I was reading posts today and LeafSunBear had written this.  I wonder what magazine he was talking about?

Dang it, I wanted to post this in the Snowbird post
« Last Edit: July 25, 2008, 08:51:54 PM by breezysummerday » Logged

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« Reply #26 on: July 25, 2008, 09:08:52 PM »

I'm sure there is one. I've met several people who work in the campgrounds around here who live that lifestyle. I'll ask one of them.
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M3Riddler
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« Reply #27 on: June 26, 2009, 01:54:14 PM »

The ability to travel with NxStage is great!  It helps to you to live a more normal life. NxStage gives you this ability. Its not easy, but can be done.
For more information on traveling with Nxstage, check out http://www.nxstageusers.com/files They have some pretty good documention on what to expect and what the process is....

HH
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