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Author Topic: Local Support Groups for CAPD/Transplant Patients in Atlanta?  (Read 1976 times)
dlady64
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« on: March 26, 2008, 07:02:27 AM »
Hi all,

I hope this isn't in the wrong section of the forum. 

I'm hoping to hook up with a face to face support group in the Atlanta metro area.  Does anyone know of any resources?  I'm in Gwinnett County, but would be willing to drive outside my county.

Thanks,
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: March 26, 2008, 10:09:11 AM »
I don't have any info for you but I wish you luck finding a group. I tried really hard to find something similar here in our city for hemodialysis patients, but there was nothing within about 40 miles. After spending time at in-center hemo, they are even less likely to go attend a group meeting. More and more people are using online support groups.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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« Reply #2 on: March 27, 2008, 11:48:02 AM »
dlady, I was looking for exactly that in the Cobb/Cherokee county area the whole time I was on PD. I finally gave up. As far as I can tell, there are no PD/dialysis support groups in Atlanta - which is another reason I love IHD so much! Though I absolutely understand your desire for face to face contact.

I think Piedmont hospital may have a support/information group for transplant patients and those on the waiting list. I seem to remember it meets the second Sunday of each month. I'll have to look for that information to be sure of the specifics, though. I'll let you know what I find.
« Last Edit: March 27, 2008, 11:52:51 AM by KT0930 » Logged
"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
kitkatz
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« Reply #3 on: March 27, 2008, 02:57:38 PM »
Try the Emory Hospitals in Atlanta. There might be support groups there.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
KT0930
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« Reply #4 on: March 29, 2008, 09:43:30 PM »
I just got the most recent newsletter from Piedmont, and it did not have the usual calendar in it. I also checked their website and couldn't find anything. Either they aren't having the meetings anymore or they're off for a couple of months. Sorry. Have you asked your PD nurse?
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
dlady64
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« Reply #5 on: March 30, 2008, 12:50:52 PM »
Oh yes.  She just gave me a blank look.  It's the strangest thing.  Seems like there are support groups for everything--except dialysis patients.  Maybe it's because we don't like having "one more thing" to do on top of everything else we have to do just to stay healthy.

On the other hand, if I will just participate online, I think I'll get almost as much as a face-to-face type of support.  It's the showing up and participating that's hard sometimes.  ;D
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kitkatz
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« Reply #6 on: March 30, 2008, 05:36:57 PM »
We are having get together in Chicago and Vegas this year.  See if you can make one of those.  Also depending on where you live there may be an IHD member you can get together with and talk.  There is also the telephone to use to call one of us when you need it. I am kitkatz2 on skype.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
annabanana
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« Reply #7 on: March 30, 2008, 05:43:39 PM »
You could start a support group yourself.  8)
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HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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