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Author Topic: hello my name is Amanda  (Read 3480 times)
MandaMe1986
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« on: January 08, 2009, 10:45:03 AM »
Well hello everyone, my name is Amanda and I am 22.  :waving; I have had kidney problems for 9 years now. I found out when I was 14 that my kidneys were giving out.  I later found out it is because I have lupos.  I have fought it for a very long time but it looks like I won't be able to avoid dialysis for to much longer, and I wanted to get to know as much as I can about it that I can before I start.  And I can't think of a better way to do that then to talk to people who are going through it.  Kinda scares me, but I have been through a lot so far, so I am hoping it won't be as bad as I am thinking.  I also found out Christmas Eve that my fathers kidneys are gone, the doctors have no clue why.  He actually is going in on monday to get preped for dialysis.  So even though I have been sick for a very long time and I have know that this is where I would end up someday. It seems like dialysis has jumped into my life full force.  And sadly to say into my fathers.  I know I am as as ready as I can get for all of this, but it brakes my heart to see my father having to go through it aswell.  Well that is me, thanks everyone.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
willieandwinnie
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« Reply #1 on: January 08, 2009, 10:53:08 AM »
 :welcomesign; Amanda, glad you found us. you will find lots of information and support here. You should have your Dad join also. We look forward to hearing more from you and check out the older threads as they are loaded with information.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Zach
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"Still crazy after all these years."
« Reply #2 on: January 08, 2009, 11:20:40 AM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paul.karen
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« Reply #3 on: January 08, 2009, 11:25:32 AM »
 :waving; Amanda

Welcome aboard.  Hope to see you on many of the boards here.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
swramsay
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My son, Scotland, is my heartbeat.

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« Reply #4 on: January 08, 2009, 11:48:26 AM »
Hi Amanda!
I'm new here too so we will be learning together. It's great to have a home base like this forum.
I think the smiley things are a cute touch don't you?   :waving;
Wendy
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
Joe Paul
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« Reply #5 on: January 08, 2009, 12:00:28 PM »
Welcome Amanda, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
peleroja
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I have 16 hats, all the same style!
« Reply #6 on: January 08, 2009, 12:03:03 PM »
Welcome, Amanda.  This is a great place for information.  Come back and post often and let us know how you and your father are doing.
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G-Ma
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« Reply #7 on: January 08, 2009, 12:06:02 PM »
 :welcomesign;   Welcome to a great site.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Hilrose
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Me and my sister 09/08
« Reply #8 on: January 08, 2009, 01:10:14 PM »
Nice intro  :welcomesign;

I'm new too so keep us posted

H
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hilrose- hemodialysis patient since April 2007
Transplanted from living donor March 2007 and failed
Kidney rejected August 2008 no longer considering removing
No longer on waiting list 2008

Neverless very happy to be alive!
Romona
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« Reply #9 on: January 08, 2009, 01:57:09 PM »
 :welcomesign;
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Wenchie58
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Always carrying the big silly grin!
« Reply #10 on: January 08, 2009, 02:07:30 PM »
 :welcomesign;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
monrein
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Might as well smile
« Reply #11 on: January 08, 2009, 02:34:27 PM »
 :welcomesign; Amanda.  Glad you found and joined us.  I hope your Dad will consider it also since together we have a lot of good info about dialysis and kidney disease.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster
« Reply #12 on: January 08, 2009, 03:25:27 PM »
G'day and  :welcomesign;
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Razman
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« Reply #13 on: January 08, 2009, 05:20:10 PM »
I think that you've found the best place to share with other that will understand.   :welcomesign;
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Jess21
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WWW
« Reply #14 on: January 08, 2009, 05:27:21 PM »
 :welcomesign; :welcomesign; :welcomesign;
Hi! I am 22 as well!  Unfortunately, I am already on dialysis.  But this is a great site to be involved on!  Great info and support!  :waving;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
cookie2008
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« Reply #15 on: January 08, 2009, 07:07:06 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
coorsbob
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I dont live for dialysis, I do dialysis to live.
« Reply #16 on: January 09, 2009, 06:46:24 AM »
:welcomesign; Hi Amanda! Sorry to hear about you and your dads condition. Keep up the good fight and stop in here often and let us know how you and your dad are doing. And feel free to ask any questions. Keep it real :2thumbsup; Coorsbob :beer1;







EDITED: Fixed Icon Error - Bajanne, Moderator
(always make sure there is a space after any icon you put in the text.  If you don't it will only come out as text)
« Last Edit: January 13, 2009, 01:31:52 PM by bajanne2000 » Logged
Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #17 on: January 13, 2009, 01:30:41 PM »
Welcome to our community, Amanda!  We are so glad you found us!  This is just the place for you to be.  Here you will find lots of information, lots of support and even some fun.  You have a great deal to cope with - your own situation as well as your dad's.  Feel free to vent, rant, rage, or rave when you need to.  We are family here.  :grouphug;  Please keep us updated on how things are going for you two.
Looking forward to hearing from you. :flower;




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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