|
donnia
|
 |
« Reply #25 on: January 28, 2008, 09:22:35 AM » |
|
Hugs and prayers for you and your sister. This sucks bigtime! Maybe you could go through a different facility?   |
|
|
|
|
Logged
|
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
|
|
|
|
okarol
|
|
« Reply #26 on: January 28, 2008, 09:24:43 AM » |
|
Sometimes the path is not clear, but that doesn't mean it's not the right way to go. It's just not always the results we expected. As disappointing as the denial of being a donor is, consider the negative impact it could have on the recipient if the donor had problems subsequent. If someone is prevented from being a donor, here's an example of how they can strive to assist in other ways. Success at transplantation requires a lot more than a donor. Your sister has already made a difference created through her offer and testing. Ultimately her efforts may lead to another donor.
|
|
|
|
|
Logged
|
|
|
|
|
boxman55
|
|
« Reply #27 on: January 28, 2008, 09:34:54 AM » |
|
You are so right Okarol, for a while there was no discussion now e-mails are being sent, and phone calls are being made. My sister was more disappointed then I was, I had the IHD insight to cushion the blow...Boxman
|
|
|
|
|
Logged
|
 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
|
|
|
KT0930
|
|
« Reply #28 on: January 28, 2008, 03:05:14 PM » |
|
Hopefully the email your sister sent out will get more people in your respective circles to consider being tested. Sounds like it may have worked, if there is more discussion about it now. I'm sorry you're both having to go through this. |
|
|
|
|
Logged
|
"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
|
|
|
|
kimcanada
|
|
« Reply #29 on: January 28, 2008, 03:14:52 PM » |
|
What a nice letter your sister wrote. |
|
|
|
|
Logged
|
|
|
|
|
paris
|
|
« Reply #30 on: January 28, 2008, 04:29:53 PM » |
|
Tell your sister that we loved her letter. Very well written  |
|
|
|
|
Logged
|
It's not what you gather, but what you scatter that tells what kind of life you have lived. |
|
|
|
kellyt
|
|
« Reply #31 on: January 28, 2008, 05:51:31 PM » |
|
The fact that she tried is so wonderful! to your sister! |
|
|
|
|
Logged
|
1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
|
|
|
rose1999
|
|
« Reply #32 on: January 28, 2008, 11:43:15 PM » |
|
Sorry to hear this disappointing news, but you must be very proud of Lynn for tryinf and she must love you a great deal to offer. Big love to both of you |
|
|
|
|
Logged
|
|
|
|
|
Wattle
|
|
« Reply #33 on: January 29, 2008, 03:41:14 AM » |
|
The fact that she tried is so wonderful! to your sister!
I agree. for Lynn for Boxman |
|
|
|
|
Logged
|
PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
|
|
|
skyedogrocks
Sr. Member
 Offline
Gender: 
Posts: 904
Rob showing off his pot of gold!
|
|
« Reply #34 on: January 29, 2008, 05:20:31 AM » |
|
|
|
|
|
|
Logged
|
Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
|
|
|
|
Sunny
|
|
« Reply #35 on: January 29, 2008, 12:52:30 PM » |
|
Sorry your sister didn't qualify. That is a very touching E-mail she sent out and hopefully it will raise awareness of your needs to others.
|
|
|
|
|
Logged
|
Sunny, 49 year old female
pre-dialysis with GoodPastures
|
|
|
|
2_DallasCowboys
|
|
« Reply #36 on: January 29, 2008, 03:13:09 PM » |
|
So, so sorry to read this, Boxman!
I would definitely look into trying another
transplant center, to get their opinion
Anne
|
|
|
|
|
Logged
|
|
|
|
petey
Newbie
Offline
Gender:
Posts: 0
MEMBER BANNED
|
|
« Reply #37 on: January 29, 2008, 05:57:35 PM » |
|
I'm so sorry, Boxman! Marvin had to go through this several times. The worst time was with MY sister -- she went through all the testing -- about four months. She was at the final test when they disqualified her. She called Marvin and started crying, and he ended up comforting HER !! Even though it's tough to swallow, we had to think that it happened for a reason. If my sister had donated to Marvin and then something had happened to her remaining kidney, Marvin would have never forgiven himself -- even though he would have not been at fault.
Love that sister, Boxman! She's a gem -- just like mine!
|
|
|
|
|
Logged
|
|
|
|
|
Slywalker
|
|
« Reply #38 on: February 08, 2008, 04:21:16 PM » |
|
Boxman- having lived through the nightmare of having living donors rejected during my path to a transplant - I will tell you that I found out that most of the transplant centers get federal funding for the transplants and the centers need to keep their success rate very high so the money continues to flow. That is one of the major reasons they are pretty darn picky about chosing live donors. Both my husband and daughter were rejected. However, I was lucky enough to have a dear friend donate.
Hang in there - I'm sure things will work out.
Take care
Sandyb
|
|
|
|
|
Logged
|
|
|
|
|
Psim
|
|
« Reply #39 on: February 09, 2008, 11:11:01 AM » |
|
I'm so sorry your sister was turned down, Boxman. What an awful disappointment. Her letter was great -- her love for you is clear and strong. I'm hoping this leads someone else to take the plunge...
|
|
|
|
|
Logged
|
|
|
|
Lori1851
Full Member
Offline
Posts: 363
This is me Lori , Dustin's mom
|
|
« Reply #40 on: February 10, 2008, 05:33:57 AM » |
|
Boxman,
Praying things will work out for you.
Lori/Indiana
|
|
|
|
|
Logged
|
|
|
|
|
RichardMEL
|
|
« Reply #41 on: February 11, 2008, 06:00:14 AM » |
|
Boxman.. I know your pain since my sister was also disqualified as a donor last year and it was pretty rough. I guess though you have to remember that they need to protect the donor's health as much as the potential recipient... and so they wanted to do the right thing by her as much as you. I had a similar issue with my sister (in her case it was her slightly elevated BP.. despite the fact she was willing to go ahead despite that they wouldn't allow it). In a way I'm kind of happy for that because if something had happened to her down the track that could be pointed to as a result of the transplant I'd never forgive myself for taking that organ and causing something bad for her...
... so now I wait for the call!
|
|
|
|
|
Logged
|
3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
|
|
|
|
I Hate Dialysis Message Board
Author
