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Author Topic: I'm on the list!  (Read 4770 times)
kellyt
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« on: February 13, 2008, 12:06:18 PM »
Actually, I was "activated" today!  :yahoo;   I originally made the list on Dec. 5, 2007.  However, now I can be called!  I guess I better pack my suitcase!

 :lol;      yeah...right!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
anja
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« Reply #1 on: February 13, 2008, 12:49:41 PM »
So happy for you kelly!!! :yahoo; :clap;
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Sunny
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Sunny
« Reply #2 on: February 13, 2008, 01:05:53 PM »
Wonderful news. Hope you get the call soon.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Laurie
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May 13, 2008
« Reply #3 on: February 13, 2008, 01:06:38 PM »
 :yahoo; Congratulations Kelly. It's such a relief to finally be on the list.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
jbeany
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Cattitude
« Reply #4 on: February 13, 2008, 01:27:49 PM »
 :yahoo;
Everyone asks if I have a bag packed as well.  I figured why bother - if they call, I'll send someone to Walmart to buy me jammies and a toothbrush.  As long as I'm getting a kidney, I'll make do without my stuff!

Welcome to the club - hope you're not in it for long!  ;D
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
charee
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« Reply #5 on: February 13, 2008, 02:11:23 PM »
 :yahoo; great news kelly
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Joe Paul
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« Reply #6 on: February 13, 2008, 02:13:25 PM »
Thats GREAT! Heres to a speedy phone call  :beer1;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #7 on: February 13, 2008, 02:35:56 PM »
Thanks everyone!  It is a huge relief.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
lovemypts
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« Reply #8 on: February 13, 2008, 02:39:16 PM »
I pray they call you!! We don't have enough calls going out to all of you. I wish that every pt. would get a call, this would be the best way I could be without a job. An loving the idea that Dialysis would not longer be necessary for anyone. GOOD LUCK!! :grouphug;
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My boss is an idiot!
kellyt
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« Reply #9 on: February 13, 2008, 02:40:09 PM »
Quote from: lovemypts on February 13, 2008, 02:39:16 PM
I pray they call you!! We don't have enough calls going out to all of you. I wish that every pt. would get a call, this would be the best way I could be without a job. An loving the idea that Dialysis would not longer be necessary for anyone. GOOD LUCK!! :grouphug;


YEAH!!!!!!     :yahoo;   :yahoo;    :yahoo;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Wattle
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« Reply #10 on: February 13, 2008, 02:40:57 PM »
Congratulations Kelly! Try not to jump every time the phone rings  ;D
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kellyt
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« Reply #11 on: February 13, 2008, 02:47:03 PM »
I just thought of a good question...

What shows up on your caller ID when "the list" calls?     :thx;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
KT0930
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« Reply #12 on: February 13, 2008, 02:57:12 PM »
kelly, when I was put on the list, my coordinator said he would be the one to call, but it may not show up as his normal phone number, since it may be after office hours or he may not be in the office for some reason. I got two calls within a month, both after hours. One was my regular coordinator, and one was a woman he worked with...never did get an explanation as to why...plus she called my husband's cell, not mine.

As for packing a bag, I know it's different for everyone, but each time I had an overnight wait before I needed to worry about being at the hospital. One call came at about 1:00 am, and I would get another call about eight hours after that telling me to go on to the hospital. The other call came at about 9:30 pm with a follow-up at at 9:00 am telling me to be at the hospital around noon. You should have time to pack after the call. Plus remember, it's a lot of hurry up and wait once you get to the hospital due to the final cross-match.

Anyway, congrats on getting activated! Here's to a quick call!!!  :beer1;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
KR Cincy
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Home hemodialysis since May 07
« Reply #13 on: February 13, 2008, 04:49:29 PM »
 :bandance; :bandance; Congrats Kelly! Fingers crossed that it's a short wait!!
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Not giving up...thanks to Susan.
karen547
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« Reply #14 on: February 13, 2008, 06:57:13 PM »
That's awesome news! I'm sure everyone knows what a hassle it is to get on the list in the first place, and to stay active! Good luck! :cuddle;
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Sluff
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« Reply #15 on: February 13, 2008, 07:03:45 PM »
WOW !! That is fantastic news. Stay compliant and getter done.
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kellyt
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« Reply #16 on: February 13, 2008, 07:53:27 PM »
Quote from: Sluff on February 13, 2008, 07:03:45 PM
WOW !! That is fantastic news. Stay compliant and getter done.

I plan on it!   :2thumbsup;

Here's another question (sorry) for those of you who have received "the call" - when you receive the call how much information do they already have as far as "match"?  I now have to have my blood drawn every two weeks.  I know they use that in the process of matching, but I was just curious if they tell you when they call that they have a "perfect match" or whatever.

:thx; again!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Ohio Buckeye
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« Reply #17 on: February 13, 2008, 08:38:29 PM »
That's great news to hear.
Hope you get a kidney soon.
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If I must do this to live, I must strive to live
while I am doing this.
kitkatz
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« Reply #18 on: February 13, 2008, 08:40:11 PM »
 :clap; :clap; :bandance; :bandance;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angellady07
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« Reply #19 on: February 13, 2008, 09:05:33 PM »
I'm happy for you Kelly,congrats.  :clap;
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2_DallasCowboys
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« Reply #20 on: February 14, 2008, 02:50:03 AM »
Wonderful news, Kelly!
I hope you get that call rite away!

Anne
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Romona
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« Reply #21 on: February 14, 2008, 01:28:16 PM »
Quote from: kellyt on February 13, 2008, 07:53:27 PM
Quote from: Sluff on February 13, 2008, 07:03:45 PM
WOW !! That is fantastic news. Stay compliant and getter done.

I plan on it! :2thumbsup;

Here's another question (sorry) for those of you who have received "the call" - when you receive the call how much information do they already have as far as "match"? I now have to have my blood drawn every two weeks. I know they use that in the process of matching, but I was just curious if they tell you when they call that they have a "perfect match" or whatever.

:thx; again!


Hi Kelly,
When I got my call, I was told the age and sex of the donor. I was told that we were a good match. I found out later we were a three out of six match. The deciding factor was that both of us had similiar and low antibody counts. I didn't have my bag packed. I figured the elastic in my underwear would dry rot before I was called. I had read statics on UMOS and thought I had a 5 year or more wait. My wait was 6 weeks. Good Luck to you!
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Deanne
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« Reply #22 on: February 14, 2008, 03:05:35 PM »
Congratulations!!!!!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
willieandwinnie
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« Reply #23 on: February 14, 2008, 03:42:33 PM »
:yahoo; kellyt. This is wonderful news. Good Luck and I hope you receive your call quickly.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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