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Author Topic: Please allow me to introduce myself  (Read 3143 times)
caregiver66
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« on: January 23, 2008, 12:51:10 PM »
I want to start out by saying this is a great site, I have been lurking on and off a couple of years and the info has become invaluable. My dad will be starting dialysis hopefully in a month. He has been, for  the most part, quite stubborn about this to the point I fear is too late. I do tend to his needs such as transportation, etc...but I will have to step up a little more in this situation as I don't think my mother will be able to grasp the magnitude of the Nxstage home treatment. I will be bombarding you with questions in all topics so please bear with me.
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MyssAnne
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« Reply #1 on: January 23, 2008, 12:56:18 PM »
Welcome!!  You'll find lots of experieced people on this site!

 :welcomesign; :welcomesign;

Ask all the quesitions you wish, that's how I learned!

Anne
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bolta72
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my best friend
« Reply #2 on: January 23, 2008, 01:18:06 PM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
oswald
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« Reply #3 on: January 23, 2008, 01:41:21 PM »
 :welcomesign; to IHD
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
willieandwinnie
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« Reply #4 on: January 23, 2008, 02:24:13 PM »
 :welcomesign; caregiver66, lots of great information and people here.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
petey
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« Reply #5 on: January 23, 2008, 03:02:27 PM »
 :welcomesign; I'm ready and waiting to share with you.  Glad you're here.  I'm a caregiver, too (to husband -- on NxStage).
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Deanne
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« Reply #6 on: January 23, 2008, 03:40:12 PM »
 :welcomesign;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: January 23, 2008, 04:02:41 PM »
 :waving; Your parents are lucky to have your help - welcome - I hope you get all the support you need here!

okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #8 on: January 23, 2008, 04:41:49 PM »
Welcome caregiver66, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sluff
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« Reply #9 on: January 23, 2008, 06:09:50 PM »
Bring on all the questions you have Caregiver66. Welcome to ihatedialysis.com

If you have been lurking since the site has been around then you know how tight knit we have become. Thanks for taking time out of your schedule to introduce yourself. Remember being a caregiver can be trying at times but make sure you take time out for yourself.

Sluff/ Admin
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Ang
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« Reply #10 on: January 23, 2008, 06:39:48 PM »
welcome  aboard :2thumbsup;
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live  life  to  the  full  and you won't  die  wondering
Krisna
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« Reply #11 on: January 23, 2008, 06:40:47 PM »
 :welcomesign;

I am also stubborn!  When my last transplant was failing I waited a whole lot longer than my doctor wanted.  My Creatinine was off the charts!  I was real sick for a while and got sick to my stomach on dialysis for a while but I eventually got better. 
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #12 on: January 24, 2008, 04:33:13 AM »
Welcome to our community!  You chose the best day of the  year to join - my birthday!!!!!  i am glad you finally decided to become a part of this wonderful family.  I don't have to sell you on it - the fact that you lurked for a while means you see what a great site it is.  So continue to read, but now we expect you to post and let us know how your father is doing, step by step.  We are here for you, and for him.  Just continue to take advantage of all this site/family has to offer.


Bajanne/Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kitkatz
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« Reply #13 on: January 26, 2008, 06:54:38 PM »
Welcome. Remember your Dad has to make his own decisions as to what he wants out of treatment.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Hawkeye
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« Reply #14 on: January 28, 2008, 12:40:33 PM »
Hello and  :welcomesign;
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It's not easy being green.
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #15 on: January 29, 2008, 05:35:02 AM »
 :welcomesign;
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Ken
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« Reply #16 on: February 29, 2008, 02:21:39 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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