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Author Topic: I've been notified! I get my kidney transplant on June 20th!!!  (Read 7457 times)
spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008

« Reply #25 on: June 23, 2008, 02:45:45 PM »

I hope everything is going great for you! =)
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
donnia
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me and my donor Joyce

« Reply #26 on: June 25, 2008, 12:51:10 PM »

Thinking of you and hoping everything went great!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
pelagia
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« Reply #27 on: June 25, 2008, 02:56:43 PM »

Hope all went well. :waving;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #28 on: June 25, 2008, 04:34:03 PM »



MMR is home, doing well, and says she will post when she can.


 :bandance;  :bandance;  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #29 on: June 25, 2008, 05:21:30 PM »

Fantabulous :clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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Might as well smile

« Reply #30 on: June 25, 2008, 07:20:49 PM »

 :bandance; :bandance; :bandance; :clap; :clap; :clap; :bandance; :bandance; :bandance;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #31 on: June 25, 2008, 07:22:24 PM »

Awesome News! :2thumbsup;
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Adam_W
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Me with Baron von Fresenius

« Reply #32 on: June 25, 2008, 07:34:39 PM »

Awsome!  :bandance; :bandance;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Sluff
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« Reply #33 on: June 25, 2008, 07:43:25 PM »

GREAT NEWS!!
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rose1999
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« Reply #34 on: June 25, 2008, 11:10:59 PM »

 :yahoo; wonderful news  :bandance;
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donnia
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me and my donor Joyce

« Reply #35 on: June 26, 2008, 11:45:38 AM »

  :yahoo;  :yahoo;  :yahoo;  :yahoo;  WOOOOOOOOOO HOOOOOOOOOO!!!!  :yahoo;  :yahoo;  :yahoo;  :yahoo;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
MyRenalRomance
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« Reply #36 on: June 26, 2008, 09:54:20 PM »

Hello everyone,   :waving;  :waving;  :waving;
I did receive my kidney from my (incredible and awesome) brother on June 20th.  He was discharged on the 23rd and I was home on the 24th.  I had meant to keep a journal while at the hospital, but sadly, I did not. Now, the days spent at the hospital are all blurred together.  I'll attempt to collect my thoughts in a cohesive manner, and relay them to you, as soon as I can.  I am so happy to be home.  The Stanford Hospital nurses were all so nice, and I had a wonderful surgeon . . . but ya can't beat HOME SWEET HOME!

My surgeon took out my peritoneal dialysis catheter (YAYYYY!)  He said my brother's kidneys were BIG and HEALTHY!  So, I suppose that means I have a big and healthy kidney, now!  :yahoo;

I had my first post op visit, this morning.  My creatinine is .86   I'm very pleased.

These are my meds:
PROGRAF:  7 mg twice a day
PREDNISONE:  20 mg once a day (tapering off during the next 6 months)
CELLCEPT:  750 mg  twice a day
PENTAMIDINE:  300 mg  one treatment per month
VALCYTE:  450 mg MWF
NYSTATIN:  5cc three times per day
IRON, VITAMIN C, MULTIVITAMIN, STOOL SOFTENER, PRILOSEC & COATED BABY ASPIRIN
and of course . . . a pain reliever (DILAUDID) which I hope to be off of by the weekend.  If needed, Tylenol will be taking its place.

Well, its almost time for my 10 pm meds, so I'll sign off for now.  Thank you to EVERYONE for all of your support, encouragement, and good wishes.  It has helped me so much through my dialysis and my transplant.  I hope you don't mind if I lean on y'all some more in the upcoming time. This site is  such a wonderful community.  My sincerest appreciation to my friends, here!   :thx;  :cuddle;
Charlene
(aka MRR)   :grouphug;



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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
rose1999
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« Reply #37 on: June 26, 2008, 11:22:19 PM »

Hi Charlene  :yahoo; great news that all is going so well with that 'big healthy kidney'  :2thumbsup; You've got a great brother.  Wishing both of you all the best - keep in touch and don't forget us  :grouphug;
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monrein
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Might as well smile

« Reply #38 on: June 27, 2008, 04:48:52 AM »

So glad things are going well for both you and your bro.  I just love reading successful transplant posts.  :yahoo; :clap; :yahoo;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #39 on: June 27, 2008, 05:31:45 AM »

Congratulations Charlene  :yahoo; :yahoo; :yahoo; :bandance; :bandance; :bandance; :clap; :clap; :clap;

Thank you also for sharing your list of meds. 


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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Sunny
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Sunny

« Reply #40 on: June 27, 2008, 10:15:47 PM »

Glad to know you are doing well.
I hope the medical staff at Stanford is treating you like a queen.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
KT0930
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« Reply #41 on: June 28, 2008, 06:39:08 AM »

Absolutely wonderful news! What an awesome brother you have!!!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
MyRenalRomance
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« Reply #42 on: June 29, 2008, 06:17:44 PM »

Hello everyone,  :waving;
Thank you for all your wonderful words of support!  I've been meaning to write up a more technical post, recounting my stay at the hospital, but I've not reconstructed the days, yet, unfortunately!  I'd like to write something up to help others get an idea of what my transplant hospital stay was like, so when their time comes, they'll have somewhat of an idea what their's might be like.   :grouphug;  This community has helped me so much, like I had said, before, I'd like to contribute back.

I'm still getting acclimated here at home: remembering to take all my meds on time, dealing w/ pain management, and TRYING to take it easy . . . I don't realize I'm doing too much, don't relax enough, and boy, do I pay the consequences!   I am drinking my fluids, tho!!! (Think I might invest some $ in a company that manufactures toilet paper!  - sorry - BAD JOKE)

So, "Nabby" is 1 week and 2 days old!!! (and doing well, thank you very much!)  Yes, I did name my new kidney.  I know - I'm so weird, but he's all mine, now, so I can do what I want!     LOL

I had really wanted to name my kidney "Davey" (AFI), but my dear dear brother, my donor,  isn't too familiar with my favorite band (unfortunately!), and I really wanted to choose a name that was meaningful for both him and me.

Here's the story (long version - sorry!):  Surgery was, originally, scheduled for June 11, 2008.  I called the surgeon's office in a panic.  I wanted my new kidney, ASAP, but my older daughter was graduating high school on the 12th and my younger daughter was graduating middle school on the 13th. We had relatives coming in from out of town, and a very lovely dinner party celebration planned at Forbes Mill Steakhouse for us, my family and hubby's family on the evening of the 13th. Surgery on the 11th would have thrown life into complete and utter chaos for everyone!

My surgeon suggested postponing the transplant to a Friday (normally, he performs kidney transplants on Wednesdays, as he is guaranteed op room time every Wed.)  If he scheduled us for a Friday, we'd be on "standby" and could get "bumped" (THIS IS SURGERY STANFORD -  NOT AN AIRLINE FLIGHT!! LOL).  But, my wise & wonderful surgeon, Dr. Busque, said to relax & enjoy both graduations with my beautiful children and our families, and then proceed w/ the transplant.  He would choose a Friday when he was "on call" for the weekend so he could follow up w/ my brother and me during the weekend.

I was torn.  I wanted my new kidney sooo badly, but could not bear the thought of missing my girls' graduations.  My surgeon informed me that June 20th was a good date for the transplant. I was distraught that I would have to wait, but ultimately, it was a wise decision that I absolutely do not regret - PATIENCE.

My younger daughter, in all her youthful wisdom, pointed out that June 20 was a good date because it was a good omen.  SJ Sharks hockey goalie, Evgeni Nabokov's number is 20.  "Nabby" is one of the most talented, hardest working, most dedicated, and unrelenting hockey goalies, EVER! Sharks fans adore him! (and if you know anything about me - you know I'm a Sharks fan(atic!). It was very fitting to name my  kidney "Nabby".  I want my new kidney to have all the strong and positive qualities as Evgeni Nabokov/"Nabby".  And, my brother is a Sharks fan, too!

So, I'd like to introduce you to my new kidney "Nabby".  I ran this name past my brother, and I could have sworn he looked at me like I was crazy. However, being the dear, gracious, generous, and loving brother that he is, he gave me his acknowldgement that naming my/our kidney "Nabby" was fine with him!  :cuddle;

MRR

« Last Edit: June 29, 2008, 06:21:12 PM by MyRenalRomance » Logged

Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
monrein
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Might as well smile

« Reply #43 on: June 29, 2008, 06:22:07 PM »

Great story MRR.  All the best to you, your brother and of course Nabby.  May he keep on making power pees. :rofl;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #44 on: June 29, 2008, 06:26:26 PM »

It's great that you were able to go to the graduations.  Happy to hear that all is well.   :bandance; :bandance; :bandance; :bandance;

Urine my thoughts! and Nabby, too :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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Might as well smile

« Reply #45 on: June 29, 2008, 06:29:03 PM »

That ought to be a new IHD motto...Urine our thoughts.  Love that. :clap; :clap;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MyRenalRomance
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Posts: 256


« Reply #46 on: June 29, 2008, 06:34:10 PM »

Monrein & Pelagia - you crack me up!!!   :rofl;  "Power pees" & "Urine my thoughts"  :rofl;

luv,
MRR
P.S. The very first thing my post op nurse said to me, after introducing herself, was that I was "peeing like a racehorse!" LOL
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
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