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Author Topic: I'm Claudia and here is my intro  (Read 3916 times)
Claudia30
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« on: January 05, 2008, 06:48:21 PM »
Hi everyone - first of all good luck to everyone both donors and reciepients and secondly God Bless America!!  :usaflag; :usaflag; Here is my story. I am 30 year old female who has been on dialysis for a year and a half. I was doing hemo and then switched over to PD. I had a kidney transplant 3 years ago but it failed and thus on dialysis. I have always had kidney failure and found out when i was 12 that i would need medication. The great doctors at Bostons Children's Hospital and then at Mass General helped me maintain kidney function to some capaicity over the years. I managed to get through high school, college and then grad school. I am a well educated woman who can't hold down a job because of my kidney issues, and depression. I taught for a while but it got to be too hard to do and each year my contract would not be renewed. I miss alot of days of work because i unfortunatly spend alot to time in the hospital. i have family but we don't speak after a big falling out and very few friends so talking to others on this site is extreamly helpful. i am back on the list but was told that it woiudl take a long time to get a cadaver donor due to my being so sensitive and also being an O type of blood. My doctors suggested i look into getting a living donor. While it would be a miracle to get a kidney, i pray that i will get one this year. I want to live a long happy NORMAL life. i don't want to do dialysis forever though there are plenty of people who do it for long periods of time. Thanks in advance for any support i recieve. my doctors tell me that going through another transplant will be very hard and that i need as much support that i can get as i dont have support from any family.
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A little Consideration, a little Thought for Others, makes all the difference. ~ Eeyore
Joe Paul
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« Reply #1 on: January 05, 2008, 06:50:46 PM »
Welcome Claudia, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
boxman55
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« Reply #2 on: January 05, 2008, 07:00:34 PM »
Well welcome Claudia to the IHD family. We fight, we laugh, we argue, we discuss, we have fun, and we mis behave just like any other family. So come join us...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
bolta72
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my best friend
« Reply #3 on: January 05, 2008, 07:16:38 PM »
You will find family here and then some. :welcomesign; :bestwishes;
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gotta do what I gotta do.. 2 yrs in ctr hemo
KT0930
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« Reply #4 on: January 05, 2008, 08:05:15 PM »
Welcome Claudia. You've found a great place to get support and information!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Sluff
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« Reply #5 on: January 05, 2008, 10:26:35 PM »
Welcome Claudia,

Great to have you as part of our community. If you read some of the many posts and subjects, I'm sure you will gain knowledge that will be helpful. Please post often and don't be afraid to ask questions.

Sluff/ Admin
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Mimi
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For any who do not like me I use - prayer.
« Reply #6 on: January 05, 2008, 10:32:10 PM »
 :welcomesign; Claudia.  Sorry you are estranged from your family.  You could really use their support now.
But we are here and we will help you through.
 :)

Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
kellyt
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« Reply #7 on: January 06, 2008, 05:13:00 AM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #8 on: January 06, 2008, 05:27:36 AM »
 :welcomesign;
We're here for you. :cuddle;
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donnia
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me and my donor Joyce
« Reply #9 on: January 06, 2008, 12:02:22 PM »
 :welcomesign; Claudia!

Welcome to the family!!! :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
frankieb
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Carpe Diem
« Reply #10 on: January 06, 2008, 12:07:26 PM »
 :welcomesign;
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FrankieB


ESRD DIAGNOSED 10/20/82                                                                                         
Dialysis- 12/20/83-5/18/91
Kidney transplant  5/18/91-7/18/07
Dialysis- 7/18/07- 9/24/07
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER,  Love you Don
MyssAnne
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« Reply #11 on: January 06, 2008, 12:14:22 PM »
Welcome, Claudia.  Dialysis is hard, it's harder when you're single, so I can sympathize with you there!
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Lori1851
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This is me Lori , Dustin's mom
« Reply #12 on: January 06, 2008, 01:18:20 PM »
Welcome  Claudia,
Sorry to hear about the family deal. Once you meet ppl on here they are like family ;)
Lori/Indiana
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paris
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« Reply #13 on: January 06, 2008, 04:45:12 PM »
 :welcomesign; Claudia, I think you will find all the support you need here. This is an incredible group of people and are always there when you need someone.  There are several of us with high PRA's who know that getting a transplant may not be possible. Thankfully, everyone here has helped me through a lot of emotions and feelings.  Keep posting and tell us more about you.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rookiegirl
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« Reply #14 on: January 06, 2008, 05:38:52 PM »
Claudia  :welcomesign;.  I really hate that you don't have the support of your family.  But don't loose hope, we are here day or night.  Share all that you feel you need to get out.  We'll be your support.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
kitkatz
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« Reply #15 on: January 06, 2008, 06:59:58 PM »
Welcome to the site.  Join on in on any conversation we have here.





kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
goofynina
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He is the love of my life......
« Reply #16 on: January 06, 2008, 10:36:09 PM »
Hi Claudia, Welcome to ihatedialysis.com.  You've found a terrific place for knowledge and support and i am sure you have some experiences to add as well. :)  Looking forward to hearing more from you


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
KR Cincy
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Home hemodialysis since May 07
« Reply #17 on: January 07, 2008, 09:35:21 AM »
Hi Claudia... :welcomesign; to IHD...there's a lot here, but mostly support and friendship!
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Not giving up...thanks to Susan.
Deanne
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« Reply #18 on: January 07, 2008, 12:13:24 PM »
Welcome Claudia! I'm sorry your biological family hasn't been supportive. You're part of this family now and I hope we can fill in some of the holes.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
st789
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« Reply #19 on: January 07, 2008, 12:28:34 PM »
 :welcomesign;
You are not alone in feeling this way.  We are here to support each other.  Many of us here have to stop working due to the kidney stuff.

Is your failed transplant kidney from a cadaver or live donor?
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Hawkeye
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« Reply #20 on: January 07, 2008, 12:38:37 PM »
Hello and  :welcomesign;
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It's not easy being green.
Ang
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« Reply #21 on: January 07, 2008, 02:21:03 PM »
welcome  aboard :thumbup;
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live  life  to  the  full  and you won't  die  wondering
Claudia30
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« Reply #22 on: January 07, 2008, 05:09:39 PM »
I am so happy i am going to cry! I can't remember the last time so many people were happy i was around and were so supportive and welcoming. THANK YOU from the bottom of my heart. Ok now i am crying. Thanks guys - lol. i am actually off to go do my third exchange for the day and unwind a bit. Again thanks and i hope i can help others here as well as you can help me...nice to be part of a family again!  :2thumbsup;
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A little Consideration, a little Thought for Others, makes all the difference. ~ Eeyore
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #23 on: January 08, 2008, 07:02:23 PM »
Welcome to our community, Claudia!  My lateness is due to computer problems.   I really understand what you are going through.  I am an educator as well, who is presently unemployed because of my dialysis.  this site is just the place for you to come.  this is a real family.  Such a group of sharing and caring people are rare, but that is what we have here.  When you need to vent and rage, this is the place to be.  When you want people to share your joy (about anything!) this is the place to come.
Please take advantage of all this site has to offer, and above all, keep posting.  We need to know how you are doing, and this is the only way.  Here is a hug from all of us. :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Katonsdad
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« Reply #24 on: January 09, 2008, 06:48:14 PM »
 :welcomesign;

You are here at a great time ....This site rocks ...... Look around and you will find somethings to laugh
about . 

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
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