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Author Topic: My transplant story  (Read 2995 times)
Just Me
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« on: December 02, 2007, 03:27:05 PM »
Since I just had my transplant on Nov. 29th, I thought I'd share my story with you.

For 6 years, my creatinine level held steady around 3.3.  This past June, it jumped up to 7.2 and my nephrologist said I needed to start looking for a donor.  My sister-in-law was the first to be tested and she was a match.  However, less than 24 hours from our scheduled surgery, the doctors cancelled the surgery, due to my SIL's high blood pressure.  This was on September 19th.  Then, my sister's friend/co-worker offered to be tested.  Within a month, she was approved to be my donor. 

Our surgeries went really well and we were both up and walking around the next day.  My donor was just discharged this afternoon at noon.  I am hoping to be discharged tomorrow.  My creatinine level is now at 1.0 and all other test results look great!  My doctors said I got an awesome kidney and it started working right away. 

I was asked by my transplant center to be a part of a new drug therapy study (it's in phase III with Bristol-Meyer Squibb).  So, I am not on Prograf, Prednisone, or Cellcept.  They are hoping to have the new drugs FDA approved within 2 years.  So far, things are going well, but it's still very new for me.
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Learned of kidney failure--2000
Met with transplant team--Jan 2007
1st transplant surgery canceled--Sept 20, 2007
New donor found--October 2007
Started PD--October 16, 2007
Transplant scheduled for Nov 29, 2007!
willieandwinnie
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« Reply #1 on: December 02, 2007, 03:58:28 PM »
:welcomesign; just Me

Congratulations on your transplant. You will find much information on this site and wonderful advise. Can I ask where did you have your transplant? My husband Len had his at Washington Hospital Center on Sept 7th and I believe that the transplant surgeon, Dr. Light is involved in the trial you are speaking of. My husband is only on 1 mg prograf twice a day, but has had 2 infusions of Zanapax and is suppose to have another this coming Thursday. There are so many new treatments and drugs that it is impossible to keep up.

Please keep us posted and good luck with getting discharged tomorrow.

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kidney4traci
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« Reply #2 on: December 02, 2007, 04:15:12 PM »
Congratulations on your transplant, it sounds like it has gone well.  Keep us all spdated - others like myself are waiting to be in your shoes. :welcomesign;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Lori1851
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This is me Lori , Dustin's mom
« Reply #3 on: December 02, 2007, 04:25:31 PM »
 :bandance;
So glad the transplant went well and HUG your donor for me! Donor's are AWESOME PEOPLE!
Lori/mom to Dustin 22 dialysis due to FSGS
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kelliOR
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« Reply #4 on: December 02, 2007, 05:22:58 PM »
  Hi Just Me....................

Are you involved with the  Phase III trial of Belatacept (LEA29Y) by any chance?  If so, what facility did you have your txp. at?

Kelli   :)
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
Just Me
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« Reply #5 on: December 02, 2007, 05:48:01 PM »
Quote from: kelliOR on December 02, 2007, 05:22:58 PM
  Hi Just Me....................

Are you involved with the  Phase III trial of Belatacept (LEA29Y) by any chance?  If so, what facility did you have your txp. at?

Kelli   :)

Yes, that's the trial.  I'm doing it at Carolinas Medical Center in Charlotte, NC.  I get my first round of Belatacept on Monday.  I'm also on thymoglobulin and sirolimus.
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Learned of kidney failure--2000
Met with transplant team--Jan 2007
1st transplant surgery canceled--Sept 20, 2007
New donor found--October 2007
Started PD--October 16, 2007
Transplant scheduled for Nov 29, 2007!
goofynina
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He is the love of my life......
« Reply #6 on: December 02, 2007, 06:22:32 PM »
Thank you for sharing your story with us Just Me :)  I am so happy that things seem to be working out so well with you and your transplant and your donor as well  :2thumbsup;
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....and i think to myself, what a wonderful world....

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angela515
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i am awesome.
« Reply #7 on: December 02, 2007, 08:46:04 PM »
Great story! So glad you were able to get it rescheduled so quickly.

I've never heard of the trial med your on, nor one of the others you mentioned, but I am on the Rapamune.

Anyways, look forward to hearing more from you and I hope your discharged soon and home!  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
oswald
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« Reply #8 on: December 02, 2007, 08:54:42 PM »
congratulations on your transplant.  time to celebrate.    :wine;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Romona
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« Reply #9 on: December 02, 2007, 09:28:01 PM »
 :bandance;
Best Wishes! Can't wait to hear more!
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KR Cincy
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Home hemodialysis since May 07
« Reply #10 on: December 03, 2007, 10:48:06 AM »
Great story! I hope the new medication works and thanks for being part of the trial...those of us who will come after you and take advantage of better meds appreciate it!!
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Not giving up...thanks to Susan.
Just Me
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« Reply #11 on: December 03, 2007, 03:07:04 PM »
I was discharged this afternoon and it feels so good to be at home.  However, I ended up leaving the hospital with a fractured foot!  I had broken the same bone a few years ago and was told the fracture may not completely heal.  I remember waking up one morning with my foot pressed really hard against the end of my bed and it gradually started to hurt, swell, and throb (it was almost more painful than my huge incision!).  There's not much I can do about it except to stay off my foot for awhile...which I'll be doing anyway during my recovery.
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Learned of kidney failure--2000
Met with transplant team--Jan 2007
1st transplant surgery canceled--Sept 20, 2007
New donor found--October 2007
Started PD--October 16, 2007
Transplant scheduled for Nov 29, 2007!
goofynina
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He is the love of my life......
« Reply #12 on: December 03, 2007, 03:35:19 PM »
Aye yi yi, if it isnt one thing its another huh? ;)  Hope your not in too much pain and that you recover from your surgery and your foot soon.   :2thumbsup;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
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