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Author Topic: Getting myself straightened out!  (Read 3486 times)
Krisna
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« on: November 14, 2007, 11:21:37 PM »

That's why I haven't been here much this week.  I have been dialyzing every day this week except Sunday to try and get all the fluid off that I gained as a result of missing treatment time!   Hopefully I won't need to go on Sat.  But I will if need be.  I'm okay though!  The stat K the kidney center drew on Friday was 4.0, down from 7.0.  :banghead; :banghead; :banghead; :banghead; :banghead;
« Last Edit: November 15, 2007, 07:09:21 PM by Krisna » Logged

Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
okarol
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« Reply #1 on: November 15, 2007, 01:19:41 AM »

Good girl! It's tough to go through this but i am glad you're taking care of yourself!  :thumbup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #2 on: November 15, 2007, 04:18:37 AM »

You better take care of yourself or  :boxing; :boxing; else...J/K, glad you are taking the steps towards better care.
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Joe Paul
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« Reply #3 on: November 15, 2007, 06:50:26 AM »

Good luck  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
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« Reply #4 on: November 15, 2007, 12:37:12 PM »

Best wishes!  :cuddle;
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goofynina
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« Reply #5 on: November 15, 2007, 03:56:22 PM »

Wow, how much fluid were you over?  and how much treatment time did you miss?  I am just glad they are able to get you everyday and take it off in a more natural manner than try and run you for like 7 hours (yes, that was me, guilty  ::))  Take care and hang in there Krisna, we will be here when you are feeling better and not dialyzing so much anymore.   :cuddle;
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Krisna
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« Reply #6 on: November 15, 2007, 07:32:09 PM »

Wow, how much fluid were you over?  and how much treatment time did you miss?  I am just glad they are able to get you everyday and take it off in a more natural manner than try and run you for like 7 hours (yes, that was me, guilty  ::))  Take care and hang in there Krisna, we will be here when you are feeling better and not dialyzing so much anymore.   :cuddle;

The only days I really have to stay on the full 3 hrs are my normally scheduled days.  Other than that it's up to me.  They drew monthly labs yesterday so I'll have to wait and see just how messed up I was this week.

So here's what I remember abt missing time and rearranging my schedule.

Monday, October 29th - missed 30 minutes; Wednesday, October 31st - missed 15 minutes; Saturday, November 3rd - changed from Friday, but got my full 3 hrs.

Tuesday, November 6 - came off 2 hrs. early due to severe back pain; Tuesday, November 6th went to ER but got impatient so I left.  Hubby and I went to pick up my prescriptions.  Hubby called 9-1-1 in the parking lot because he said I wasn't making sense!; Wednesday, November 7th - admitted to different hospital where nobody knows me; November 7th - Dialyzed 4 hrs in hospital; Friday, Wednesday, November 7th - Signed myself out of hospital, AMA; Thursday, November 8th went to see my own doctor; November 9th - Full 3 hours.

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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
Krisna
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« Reply #7 on: November 15, 2007, 07:36:38 PM »

You better take care of yourself or  :boxing; :boxing; else...J/K, glad you are taking the steps towards better care.

I'm still in shock that it even happened.  I never do that stuff.  I'll change one day here and there but the whole week?  And to drink orange juice knowing that I've missed time that week! 

My Nephrologist called me yesterday to see how I was doing.  He said he had to tripple check the patient who had a Potassium of 7 because I never do that sort of thing.  But I am getting better!
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
goofynina
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« Reply #8 on: November 15, 2007, 07:37:59 PM »

Mmmmm, orange juice, i would love some right about now  :-\
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angela515
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i am awesome.

« Reply #9 on: November 15, 2007, 08:07:06 PM »

Glad your doing better  :grouphug;
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Krisna
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« Reply #10 on: November 16, 2007, 05:39:26 PM »

Mmmmm, orange juice, i would love some right about now  :-\

Yeah, I know.  But I really don't have any set restrictions because I already know what I shouldn't eat or drink.  Now, I do eat and drink things high in potassium and sodium but I do so during the week.  I dialyze on M-W-F so if I want that stuff I do it on Tuesday or Thursday and only if I have gotten all my treatment time during the week.  I think I was just really sick and wasn't thinking clearly.  But I am better now!
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
goofynina
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He is the love of my life......

« Reply #11 on: November 16, 2007, 05:49:10 PM »

As long as you better, that is whats important here my friend, (and so glad you are too) ;)  :cuddle;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
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