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Author Topic: A Father's Experience With Daughter in Need of Transplant Leads to Registry  (Read 1278 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: November 10, 2007, 01:06:53 AM »

A Father's Experience With Daughter in Need of Transplant Leads to National Kidney Registry to Facilitate Living Donor Kidney Transplants

Friday November 9, 8:00 am ET

BABYLON, NY--(MARKET WIRE)--Nov 9, 2007 -- When Garet Hil's youngest daughter was ten years old, her kidneys unexpectedly failed. With the same blood type and after passing the required medical tests, Hil was scheduled for surgery to donate his kidney. 36 hours prior to surgery he learned that he had failed a final cross match test and could not donate. Fortunately, after an extensive donor search, Garet's nephew passed all the tests and donated his kidney on July 12th. Both his nephew and his daughter are doing well.

As Hil immersed himself in the complexities and challenges facing incompatible kidney donors, he thought there must be a better way. He was amazed that a national registry to facilitate living donor kidney transplants did not exist. After his daughter's successful transplant, he recruited a world class medical and advisory board and formed the National Kidney Registry. The idea was simple: bring together incompatible or poorly matched donors and recipients in a national pool to facilitate kidney exchanges. The result is not only more transplants, but better matching kidneys that will function longer in the recipient.

In just two months, the organization has raised $170,000 from 112 Benefactors. Founder Garet Hil hopes that "with enough financial support, we will be able to facilitate over 100 living donor transplants next year." Seven transplants are already planned for early 2008.

Meanwhile, over 180 people have contacted the start-up organization in its first two months, most seeking to donate a kidney. "It is truly amazing how many wonderful, courageous people there are in this country who are willing to sacrifice their time and go through major surgery to help another person. These people are incredible and are making a real difference," said Hil.

For more information about making a financial donation or becoming a living donor, contact the National Kidney Registry at 1-800-936-1627 or visit its website at www.kidneyregistry.org.

The National Kidney Registry

The National Kidney Registry is a nonprofit 501C3 organization registered under the laws of the State of New York. The mission of the National Kidney Registry is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world.


Contact:

     Contact:
     
     John Zaher
     PRMG
     (631) 207-1057
     
     Garet Hil
     National Kidney Registry
     (800) 936-1627

http://biz.yahoo.com/iw/071109/0326507.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......

« Reply #1 on: November 10, 2007, 04:14:19 PM »

Amazing, could you imagine that if his little girl didnt get sick he wouldnt have done all he has done, sad to say but i am kinda glad she got sick, but i am even more happy that she is doing so great now  :clap;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
paris
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« Reply #2 on: November 10, 2007, 04:24:08 PM »

These are the articles that give us hope.   Amazing article.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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