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Author Topic: Bags Missing Middle Hole?  (Read 7247 times)
alrightstill
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BAH!

« on: January 13, 2008, 10:45:49 PM »

My mom and I have a routine, she hangs my bags and I pretty much do everything else.  We've noticed lately that the bags are missing the middle hanging hole..
She feels uneasy just hanging them by the corner hole so she bunches them together to hang them by both corner holes (if that makes sense..).

Has anyone else noticed this?
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1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
silverhead
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« Reply #1 on: January 14, 2008, 08:52:12 AM »

If you are talking about the 5L dialysate bags - they are supposed to be hung by both outside holes, the bags are to heavy to safely be hung by one hole, the probably removed the middle hole to prevent that from happening
Tom
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alrightstill
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BAH!

« Reply #2 on: January 14, 2008, 10:28:48 AM »

If you are talking about the 5L dialysate bags - they are supposed to be hung by both outside holes, the bags are to heavy to safely be hung by one hole, the probably removed the middle hole to prevent that from happening
Tom

Yes, sorry I should've been more specific.  I was referring to the 5L dialysate bags.

In '05 I was taught to hang them from the middle hole - and only the middle hole.  So - seeing that middle hole suddenly gone after 2 years threw us for a loop.  Thanks for your reply!
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1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
jbeany
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« Reply #3 on: January 14, 2008, 11:14:18 AM »

The new training is for using both holes - that's what I was taught last August when I started.  One more thing they've changed as they go!  I wish they had made the manual a regular 3 ring binder, so that I could add the updated procedures as they send them.  Right now I have the instruction manual and a separate binder for all the changes they've sent.
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cev
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« Reply #4 on: January 14, 2008, 09:49:30 PM »

We have the bags with the 2 end holes too.  I hate them, they hang all katywampos.  We were taught to hang from which ever hole we wanted.  I always used the middle.  But tonight one of the bags fell, didn't break so no harm done.  I will try hanging from both end holes, just don know how that is going to work, but thanks for the idea.  I have asked my husband when he places an order to complain about the missing middle hole.   I hate it when I see NxStage cheapen things then tell us it is better for us this way.
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Black
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« Reply #5 on: January 15, 2008, 08:28:55 AM »

Get a PureFlow and the bag problem is gone.  You will LOVE the Pureflow.  So easy to use.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
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Russ
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« Reply #6 on: January 15, 2008, 08:34:13 AM »

I have a Pureflow but use 5L bags whenever there is a problem with the Pureflow.  I was surprised too when the middle hole was no long there.  I received no notice of the change.  Pureflow is much easier.
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cev
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« Reply #7 on: January 15, 2008, 09:13:15 AM »

thanks for the pureflow suggestion - but with the probelms I have read on this site, I will stick with the bags, I have no time or space for leaks, bad batches, bad water, etc.
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Bill Peckham
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« Reply #8 on: January 15, 2008, 09:35:16 AM »

Here is how I hang 30 liters using the corner holes - let's see if I can write it out.

There are four spots (loops) to hang from at the top of the pole - assign each loop a number going around clockwise 1; 2; 3; and 4.

First I hang a bag using both holes on loop 1 and then the second bag the same way using both holes on loop 3.

Next I hang a bag with one hole on loop 1 and then the other hole on loop 2.

The forth bag has one hole on loop 3 and the other hole on loop 4.

The fifth bag is then hung by both holes on loop 2; the sixth bag by both holes on loop 4.

The end result is 7.5 liters on each loop. 

It does make one kinda loopy.
« Last Edit: January 15, 2008, 02:21:47 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
KR Cincy
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« Reply #9 on: January 15, 2008, 01:13:52 PM »

This is good to know...in the 8 months I've been on home hemo, we've never used the bags...only the PureFlow...partly because we have never been able to get out hands on a warmer, and partly because we've only had one lead with the PureFlow, otherwise it's been a dream. And since I only get two treatments per sack, we've been OK making sure we get it drained and a new batch started in time for the next treatment.
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Adam_W
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« Reply #10 on: January 15, 2008, 04:41:29 PM »

I was also trained to use just the middle hole, but I had read somewhere about a bag falling and bursting open (ohhhhhh messy!), so I started using two or even all three holes. The removal of the middle hole didn't really bother me. Speaking of bags, has anyone heard when the new warmers will be available? I heard this month, but there hasn't been a peep from NxStage (at least that I've heard).

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
alrightstill
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BAH!

« Reply #11 on: January 15, 2008, 07:28:57 PM »

Wow, I'm glad to hear someone else is still ONLY using bags!  POWER TO THE BAGS!! (Or something).

I've been so paranoid that they're going to force me into using the PureFlow.  It sounds like its so much work, I mean compared to the simplicity of just hanging 15L worth of bags each day.   Plus - you need a sort of special water hook up as well, no?  That's the whole reason why I went on NXSTAGE to begin with - it was just a "plug & play" type of machine.  ( :lol; 'Plug & Play' might not have been the best word choice..) 
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1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
jbeany
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« Reply #12 on: January 15, 2008, 08:04:21 PM »

I was also trained to use just the middle hole, but I had read somewhere about a bag falling and bursting open (ohhhhhh messy!), so I started using two or even all three holes. The removal of the middle hole didn't really bother me. Speaking of bags, has anyone heard when the new warmers will be available? I heard this month, but there hasn't been a peep from NxStage (at least that I've heard).

Adam
My rep won't even give a month anymore - just says they are "close".  Close to hypothermia is what I am everytime I use bags without a heater, so it better be pretty darn close!

Wow, I'm glad to hear someone else is still ONLY using bags!  POWER TO THE BAGS!! (Or something).

I've been so paranoid that they're going to force me into using the PureFlow.  It sounds like its so much work, I mean compared to the simplicity of just hanging 15L worth of bags each day.   Plus - you need a sort of special water hook up as well, no?  That's the whole reason why I went on NXSTAGE to begin with - it was just a "plug & play" type of machine.  ( :lol; 'Plug & Play' might not have been the best word choice..) 

Once it's set up, I think the pureflow is easier than the bags.  You don't need a special water connection - it hooks into a regular water supply, right at the sink.  I've had one leak, and it was my fault, not a problem with the machine.  I did forget to start a batch once, but other than that, I prefer the pureflow to the bags - I don't have that much space for storage!  I doubt they'll force you to try the pureflow, though - they still have to keep making bags anyhow, so we have a backup when there's problems with the pureflow, or for when we are traveling.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

kidney4traci
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« Reply #13 on: January 22, 2008, 02:42:35 PM »

I heard today that medicare won't pay for the bags, that they want us all on pureflow.  After the BS from today on water testing and conductivity testing, I am wanting to go all bag or nothing.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
alrightstill
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BAH!

« Reply #14 on: January 22, 2008, 02:48:00 PM »

I heard today that medicare won't pay for the bags, that they want us all on pureflow.  After the BS from today on water testing and conductivity testing, I am wanting to go all bag or nothing.

Where did you hear this!?
Logged

1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
kidney4traci
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« Reply #15 on: January 22, 2008, 03:09:04 PM »

my nurse
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
alrightstill
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BAH!

« Reply #16 on: January 22, 2008, 03:11:19 PM »

Ahh.  I hope they're just "talking" about it - and nothing is set in stone.  Can we protest?  :-\

I had a feeling something like this would eventually happen thought.  Although, my nurse told me she didn't think they would ever do that because when doing pureflow you need the option of doing the bags.. So as long as they're already having to provide all patients with bags then it shouldn't be a big deal.  But.. as I've learned in the past, she's not always right.  :(
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1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
kidney4traci
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« Reply #17 on: January 22, 2008, 03:16:42 PM »

I asked her who absorbs the cost now and she didn't know.  This is a photo of the new test kit for the chloramines.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Bill Peckham
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« Reply #18 on: January 22, 2008, 04:00:18 PM »

Medicare reimburses exactly the same amount no matter which machine you use or if you use bags or PureFlow.

She may have meant that NxStage charges more for bag delivery than they do for PureFlow supply delivery. It is cheaper to be supplied for a month's worth of treatments on the PureFlow than it is to be supplied with a month's worth of treatments on bags. It isn't Medicare reimbursement that has changed it is the price being charged by NxStage for bags, compared to the price for being charged for PureFlow.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
jbeany
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« Reply #19 on: January 22, 2008, 04:18:35 PM »

Holy cow, traci - is that whole mess your test kit?  I've just got one little bottle of litmus-style strips to check for chloramines.  How I'd end up with chlorine by-products when I'm hooked to well water, I still haven't figured out, but I run the test with every batch just like I'm supposed to!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

kidney4traci
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« Reply #20 on: January 22, 2008, 05:37:22 PM »

That's all I had to do before too.  And about the prices, I guess that makes sense about the cost to ship those bags vs. the pureflow.  Oh well, will see how this plays out.  Thanks for the shoulder to cry on guys.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
skyedogrocks
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Rob showing off his pot of gold!

« Reply #21 on: March 12, 2008, 08:21:24 AM »

Our bags have the middle hole bag, thank God.  It was a pain in the neck hooking the bags up on each corner, those bags are so heavy after a while.
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
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