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Author Topic: Hello my name is Bill. I am a dialyzor.  (Read 12061 times)
jedimaster
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Stainboy is....alive!!!

« Reply #25 on: January 13, 2007, 11:08:22 PM »

 :welcomesign;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #26 on: January 14, 2007, 12:02:26 AM »

Hi Bill,
I recall being referred to your webpage a few years ago when I was researching "traveling on dialysis" for
our daughter. We kept postponing a trip for two reasons. One, we were afraid a change in centers,
even temporarily, would introduce an infection. Secondly, we didn't want to be too far away in the event
a call came through with a kidney. In 3 years we never went more than 3 days from her dialysis center.
I hope you will share more about your travel experiences on here.
Welcome!

~Karol :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kelliOR
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« Reply #27 on: January 14, 2007, 04:06:59 PM »

hello Bill,

I am just down the road from you, in OR.  Lived in wet Olympia before moving to Bend 12 yrs ago.  Have ties to Seattle, my son plays hockey up there.  I have enjoyed reading your intro.  Too bad about the Seahawks, we're fans also. Caught Peter Gabriel's Secret World Tour at the Tacomadome in the 90's, and heard Don't Give Up live.  No Kate Bush, but Paula Cole was just as spectacular.  Nice to meet you,

Kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
melshell
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« Reply #28 on: January 15, 2007, 03:24:07 PM »

WOW!! FANTASTIC INTRO!! I too dreamed of world travel as a young girl, and although I've been to a couple of places, unfortunately, finances limited my choices. Even though finances continue to limit my choices, I still dream of all the places I have yet to explore...SOMEDAY!! I suppose I'll be showing everyone how "fresh outta the plastic" I am, lol!, but I've yet to build up the courage I feel will be necessary to venture far from home as yet... :( ...I am, however, VERY encouraged by your ongoing travels, and am feeling that old familiar antsy feeling about going somewhere...ANYWHERE! Even on a limited budget (pre-dialysis), Hubby and I managed to get in at least 3-4 "trips" a year--I am the QUEEN of $200-300 weekend jaunts!!  :)  (of course it wasn't China, but the mountains, or the beach, or even a night or two in an upscale motel in a "foreign" metropolis sampling the fair of unfamiliar cuisine, or night life suits us average hicks!! -eating out somewhere besides Golden Corral is adventurous as far as hubby is concerned!! lol!) Finances are worse than ever now that I'm outta work-but I'm thinking with a few MORE frugal budget choices, I may be able to swing SOMETHING!! Welcome aboard Bill, and THANKS for the inspiration!! Please do continue to share your travel experiences so that we may live vicariously through you, until, that is, I get real confident about dialyzing away from home and STRIKE OUT!!
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FSGS since 1991
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Bill Peckham
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« Reply #29 on: January 15, 2007, 08:53:22 PM »

Thanks for the welcome. Kelli does your son play with the Tbirds?  I had Tbird tickets about 20 years ago when I was a urinator. Maybe start a Tbird thread in OTs

melshell I was thinking I would copy existing travel writing into my intro - a entire biography in one place. But if anyone is curious I have posted most of it on the globaldialysis.com blog.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
nextnoel
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« Reply #30 on: January 16, 2007, 10:01:36 AM »


Sleeping on deck under a clear night sky while anchored out on Sucia Island adjacent to Canadian waters.
 

I love your writing style - by the time I got to the quote above, I was wishing I could be there, too, and I'm scared of the water!   :-\
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I can't reach the hill like I used to, but I'm not at a standstill yet!
mallory
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« Reply #31 on: January 16, 2007, 11:37:51 AM »

Wow, Bill, that was a great introduction!  I'm glad you've joined the site, and I'm looking forward to your posts!   :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Bill Peckham
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« Reply #32 on: January 16, 2007, 05:44:17 PM »

Thanks for the encouragement. I've added a a bit more - through starting dialysis.

For me the only question is when to stop writing and get on with the story. Just writing it out I've thought of things for the first time in a long time.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
okarol
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« Reply #33 on: November 04, 2007, 11:49:52 AM »

I think it would be so great to have a section on IHD that focuses on "Traveling on Dialysis!"
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #34 on: November 04, 2007, 01:43:10 PM »

I'm going to Aruba a week from today.  My epic introduction (I'm trying for 10,000 words) is just getting to the part where I start more elaborate travel - '94: 40 day/11 unit/22 state road trip; '95 3 weeks in Costa Rica; '96 2 months/7 countries in Europe; '97 1 month 6 countries in Europe; '98 2 weeks land in Europe/2 weeks dialysis at sea Scandinavia; '99 3 months around the world in 27 flights; 2000 in Turkey for Thanksgiving; etc.

There is an article that was just posted on kidneytimes that is written by some one I was traveling with this summer
http://www.kidneytimes.com/article.php?id=20071011194103
Different for me to read about one of my trips from someone else's perspective.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Wattle
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« Reply #35 on: November 04, 2007, 10:06:24 PM »



Bill, What do you do about insurance?

I tried to organize a trip to Hawaii (from Australia) and it became evident that I was going to find it extremely difficult to get insurance to cover me in the States. There was no trouble getting my PD supplies, that was easy. I would be crazy to go without coverage, so I have given up.

Queensland looks like the destination now.  :)
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Bill Peckham
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« Reply #36 on: November 04, 2007, 11:46:26 PM »



Bill, What do you do about insurance?


In 1995 I join the carpenters union.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Wattle
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« Reply #37 on: November 05, 2007, 09:58:33 PM »



Bill, What do you do about insurance?


In 1995 I join the carpenters union.

Does this cover you overseas? I am not familiar with US insurance.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Bill Peckham
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« Reply #38 on: November 09, 2007, 09:52:56 AM »



Bill, What do you do about insurance?


In 1995 I join the carpenters union.

Does this cover you overseas? I am not familiar with US insurance.

The US insurance system is complicated but yes in general Unions have comprehensive health insurance. My union reimburses 90% of overseas dialysis charges. They are prompt payers too. No complaints from me about my union. Again though there is a great deal of variety among policies. I took the attitude that I should avail myself of the benefit while I had it - I am so glad I did ... because of the weak dollar I could not repeat my trips today. The insurance company still reimburses but everything else is 50% more expensive from my point of view. Now would be a good time to visit the US from your point of view - we just need to figure out a solution to the insurance situation.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Wattle
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« Reply #39 on: November 09, 2007, 08:00:16 PM »


Thanks Bill. I do have private insurance on top of the government funded medicare system Australia has, but unfortunately it does not cover me overseas. I could have pushed the travel insurance company further but it still would not cover me for pre-existing.   :banghead;  I had no problem with my supplies and Fresenius were great. I just would be crazy to travel to the states without cover.

The holiday is to celebrate turning 40 (ahh) I have booked the Gold Coast. It will still be fun, but Hawaii would have been great with the Aussie dollar so high at the moment!

Thanks for your help.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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