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Author Topic: YEA! I don't feel "weird" anymore!  (Read 4596 times)
donnia
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me and my donor Joyce

« on: October 31, 2007, 08:50:11 PM »

I went to the emergency room Monday at 5AM.  I pushed and pushed for the docs to do aaaalllllllllllllllllllllll kinds of testing on me.  Finally they just went ahead and admitted me.  Finally they sent an Ear, Nose, Throat specialist in.    The problem...... when I would lie down, the permacath would squeeze on one of my veins, causing swelling (massive swelling) in my face and neck.  Solution..... either have another surgery to "move over the cath" or sleep in a recliner for 3-5 weeks until my fistula matures.... I picked the latter!  I was in the hospital for 3 days, and slept with the bed upright, and no more swelling or other problems!!!!!

YEA!!!!  :clap; :clap;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
goofynina
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He is the love of my life......

« Reply #1 on: October 31, 2007, 08:58:33 PM »

Very glad to hear you found the solution to your problem Donnia  :2thumbsup;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: October 31, 2007, 10:22:52 PM »

Wow that's great news!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #3 on: November 01, 2007, 12:15:05 AM »

 :thumbup; Glad to hear they found out the problem
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
2_DallasCowboys
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« Reply #4 on: November 01, 2007, 03:33:39 AM »

Good For You, Donnia!

So glad you insisted that they 
check you out thoroughly, sometimes
the Drs. don't want to admit we know our
own bodies better than them.
Wonderful news, so happy this is over for you.

Anne
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Sluff
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« Reply #5 on: November 01, 2007, 04:03:33 AM »

Persistence pays off. I'm so glad they figured out that you were right about the permacath.    :2thumbsup;
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donnia
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me and my donor Joyce

« Reply #6 on: November 01, 2007, 05:34:08 AM »

Thank you so much!  When they admitted me and my GP came to see me, he was all open to ideas.  99.9% of doctors are not open to suggestions, I am glad he was.  Actually my ER doctor was great this time too.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
KR Cincy
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Home hemodialysis since May 07

« Reply #7 on: November 01, 2007, 05:40:46 AM »

So glad you figured things out and are feeling better!!  :2thumbsup;
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Not giving up...thanks to Susan.
angela515
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i am awesome.

« Reply #8 on: November 01, 2007, 05:55:29 AM »

Glad you pushed them and demanded they find out what was wrong, thats how I do it too! Glad you can feel better, and comfortable until the fistula matures! :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
skyedogrocks
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Rob showing off his pot of gold!

« Reply #9 on: November 01, 2007, 07:40:24 AM »

Yeah!!!!  You go girl!  Good for you on being persistent!!!! :clap; :bandance;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #10 on: November 01, 2007, 12:40:37 PM »

 :bandance; Keep fighting 'em!  :boxing;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
KICKSTART
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In da House.

« Reply #11 on: November 01, 2007, 01:54:42 PM »

I hope you get plenty more sleep 'sat up'!! Why is it doctors think they ALWAYS know best. I hate it when they wont accept what you tell them , do they think we imagine things or make it up because we like spending time with them ? Im glad you got someone to see it from your point , i hope all is ok now , but if you have any doubts over something else, you stick to your guns again!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
paris
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« Reply #12 on: November 01, 2007, 02:08:46 PM »

Yeah! So glad you got it figured out.  I think renal patients know their bodies so well and we need to be heard when we know something isn't right. Glad you doctor listened! :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #13 on: November 01, 2007, 02:46:39 PM »

Why is it doctors think they ALWAYS know best. I hate it when they wont accept what you tell them , do they think we imagine things or make it up because we like spending time with them ?

My doctor does!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
MyssAnne
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« Reply #14 on: November 02, 2007, 12:51:14 PM »

YAY!!!!  :clap; Good for you, for pushing the issue!!!!  Enjoy the rest, sitting up, til it matures!!! Whew!!
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Black
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« Reply #15 on: November 02, 2007, 05:33:26 PM »

:2thumbsup;  WAY TO GO!  Sometimes you just have to  :boxing;  :boxing;  :boxing; until they really listen.  Glad surgery was not necessary.

Don't worry about sleeping in a recliner.  I've been doing it for almost a year due to an inoperable blockage in my femoral artery.  It took a few nights to find the comfortable positions, how to punch up my pillow, and how to keep my feet covered, but I now sleep pretty good most nights.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Laurie
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May 13, 2008

« Reply #16 on: November 02, 2007, 06:20:37 PM »

Glad you got it figured out.  :clap;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
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