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Author Topic: Hello from Miami  (Read 3799 times)
sugarfree1221
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« on: October 05, 2007, 06:38:22 AM »
Hi my name is Denise. My friends call me "Sugarfree" because I've been diabetic since I was 7. I am now 29 years old. I've been on hemo dialysis for six months now. I am happily married to the love of my life but we didn't have kids when we had the opportunity. So we have two lovely dogs now. I've had more bad days than good lately. I am currently on donor list for a kidney/pancreas transplant. I give great pep talks, but it seems that I'm the one who needs them more nowadays. My fistula never matured so I'm looking at another operation to bring it closer to the surface. I don't really know how I feel about that. That's me right now.
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Denise AKA "Sugarfree"
boxman55
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« Reply #1 on: October 05, 2007, 06:47:44 AM »
Welcome Sugarfree ..Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Joe Paul
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« Reply #2 on: October 05, 2007, 08:30:53 AM »
Welcome Sugarfree, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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« Reply #3 on: October 05, 2007, 09:43:16 AM »
 :welcomesign; Glad you found us. This is a great site with many people in the same situation.  Looking forward to hearing more from you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #4 on: October 05, 2007, 09:54:15 AM »
Hello Denise and welcome to ihatedialysis.com

Great picture, where did you get the tiara from? J/k

I'm glad you made it over to our side and hope you enjoy reading and searching the site. If you have any questions just ask,
post as often as you like.

See ya in the forums

Sluff/ Admin
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: October 05, 2007, 10:25:38 AM »
 :waving; Hi Princess Sugarfree (love the tiara!)
Welcome! I hope your days get better and you can work towards the transplant with optimism. You have been through a lot for so many years - it would be nice for things to improve! So happy you joined and I look forward to hearing more from you!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MyssAnne
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« Reply #6 on: October 05, 2007, 10:33:12 AM »
Welcome, SugarFree! We understand about the pep talks, all too well!! You'll find that here, as well as almost everything else you'll need or want!  That IS a cute picture of you with your tiara!
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Romona
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« Reply #7 on: October 05, 2007, 01:35:43 PM »
Hi Sugar Free! What a beautiful picture!  :welcomesign;
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goofynina
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He is the love of my life......
« Reply #8 on: October 05, 2007, 01:44:39 PM »
Hi Sugarfree, welcome to ihatedialysis.com :)  Before i go any further, i just want you to know there is only one Queen in this forum and it is ME, ;) ;)  just kidding :P  (you will get why i said that if you go here: http://ihatedialysis.com/forum/index.php?topic=4700.0 )  This is a great group of people who have become more like family, all willing to share their stories, give advice, support and/or encouragement whenever needed :)  So i hope you come often and please feel free to post any questions, comments and/or concerns of your own.  Looking forward to hearing more from you  :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Laurie
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May 13, 2008
« Reply #9 on: October 05, 2007, 05:38:59 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Chris
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« Reply #10 on: October 05, 2007, 08:26:01 PM »
There you are :banghead; :lol;  Finally found you without asking since you suggested this group to me. :rofl; MySpace messages gave me clues on what to look for.
Chris
« Last Edit: October 05, 2007, 08:30:01 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
angela515
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i am awesome.
« Reply #11 on: October 05, 2007, 09:50:20 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #12 on: October 05, 2007, 10:53:30 PM »
Welcome to our community!  We are so glad you found us.  This is just the place to be.  That is a beautiful picture!  You will find much information here.  You will also find a very supportive set of people (with some wacky ones in the mix!) who have become a true family.  So look around, take advantage of all this site has to offer.  And keep posting.  We need to know how you are doing. :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Wattle
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« Reply #13 on: October 06, 2007, 01:30:56 AM »
 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
bolta72
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my best friend
« Reply #14 on: October 06, 2007, 06:17:48 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
keefer51
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« Reply #15 on: October 06, 2007, 07:33:59 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
kitkatz
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« Reply #16 on: October 07, 2007, 03:26:30 PM »
I know the feeling, ususally I give great pep talks, but lately I am leaing more on my friends to get me through these sessions on dialysis.


Welcome to the site.


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Hawkeye
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« Reply #17 on: October 08, 2007, 09:07:16 AM »
Hello and  :welcomesign;
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It's not easy being green.
lola
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I can fly!!!
« Reply #18 on: October 08, 2007, 10:06:31 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
angellady07
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« Reply #19 on: October 08, 2007, 01:08:45 PM »
Welcome Sugarfree.
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #20 on: October 09, 2007, 09:15:36 AM »
Wow! Your story is exactly like mine! I was diagnosed with diabetes at 6 and am now 30, recently happily married and have 2 "kids" (dogs). I am also hoping to get a kidney/pancreas transplant.  Welcome!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Loretta
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« Reply #21 on: October 10, 2007, 08:01:50 PM »
 :waving;
Welcome!
What kind of dogs do you have?  I am a real dog lover!
Best Wishes,
Loretta
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myricle child
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« Reply #22 on: November 01, 2007, 10:55:19 AM »
hey suga suga!,
girl im 29 as well. i been on dialysis since iw as 17 yars old. one thing that i foind thta has helped me alot along the way (as well as my fiath in God and prayer) is exercise. girl youneed to exercise. that will keep you strong ont he days you dont wanna push. and it will keep your body at a steady pace for activeness, i guess thats how i wanna explain it. i go to dance classes and take choreography hip hop, cardio salsa, and yoga. you can swim , or jsut exercise ant home with some video tapes. so youre only 6 month in huh? i just started nxstage last fri. i dialyze myself. i was doin home hemo for awhile. (about 3 3/4 years). i was scared at irst but i find that i take better careof myself than the ppl in the clinic. i never thought i COULDNT do it. it was something else in my life where i thought it had to be done i guess so let me go ahead and sign up for this home hemo thing. stay strong girl! 
Quote from: sugarfree1221 on October 05, 2007, 06:38:22 AM
Hi my name is Denise. My friends call me "Sugarfree" because I've been diabetic since I was 7. I am now 29 years old. I've been on hemo dialysis for six months now. I am happily married to the love of my life but we didn't have kids when we had the opportunity. So we have two lovely dogs now. I've had more bad days than good lately. I am currently on donor list for a kidney/pancreas transplant. I give great pep talks, but it seems that I'm the one who needs them more nowadays. My fistula never matured so I'm looking at another operation to bring it closer to the surface. I don't really know how I feel about that. That's me right now.
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You lookin 4  myricle? Here I am!
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