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Author Topic: Newbie from Northern Kentucky  (Read 3156 times)
KR Cincy
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Home hemodialysis since May 07
« on: October 05, 2007, 12:19:20 PM »
Hi folks...what a great site this is! I'm Kevin and I'm here because 2007 has been a baaaad year! After knowing I had PKD (and was seeing a neph for the last 10 years) things went really bad and they found cancer in both kidneys. I went to Vanderbilt for an attempt at a partial on my left kidney, but there was too much cancer so out it came. Two months later, I had the other kidney removed because the mass was located in a bad place and they were afraid they might leave a cell behind. So I've been on hemodialysis since March 24...and started doing home hemodialysis on NxStage in May (thank God for my wife who does the sticks.) I have to prove I'm cancer-free for five years before I'm allowed a transplant...though I intend on starting to whine at about 3 years!

I'm enjoying reading the posts and look forward to contributing what I can.
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Not giving up...thanks to Susan.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: October 05, 2007, 12:28:09 PM »
 :waving; Hi Kevin,
Welcome. Sorry about the cancer but hopefully you have remedied that situation and can stay healthy with the home hemo!
Give that good wife of yours an extra hug! :cuddle;

 :welcomesign;

okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #2 on: October 05, 2007, 01:32:02 PM »
 :welcomesign;
Wow Kevin. You've had it rough!
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goofynina
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He is the love of my life......
« Reply #3 on: October 05, 2007, 02:50:26 PM »
Hi Kevin, Welcome to ihatedialysis.com,  Sorry to hear about the cancer but i am so glad they did remove them and got it all out  :thumbup;  I am also glad to hear that NxStage is working well for you  :thumbup;  You have found a great group of people that have become more like family  :grouphug;   I look forward to hearing more from you.  Good luck with all that you do  :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
boxman55
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« Reply #4 on: October 05, 2007, 04:10:25 PM »
Welcome to IHD...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
MyssAnne
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« Reply #5 on: October 05, 2007, 04:15:10 PM »
Welcome, Kevin!  :welcomesign;  Wow!! You have had a bad year, but you've also got a wonderul wife who's willing to stick you (hehe), and nxstage is working out well for ya!!! It's gotta get better, right??
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Laurie
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May 13, 2008
« Reply #6 on: October 05, 2007, 05:38:19 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Meinuk
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« Reply #7 on: October 05, 2007, 06:32:59 PM »
Welcome Kevin!

And I thought I had a rough year...  I read posts like yours and I count my lucky stars.  I'm glad that you have found us here at IHD.  I look forward to reading your posts!

Best,

Me
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Joe Paul
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« Reply #8 on: October 05, 2007, 06:38:43 PM »
Welcome Kevin, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sluff
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« Reply #9 on: October 05, 2007, 06:40:44 PM »
Welcome to ihatedialysis.com Kevin.

I'm sorry for the situations you face, we are here for you to talk, rant and laugh. feel free to browse all you want and post as often as you like.

It's great to have you here.

Sluff/ Admin
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: October 05, 2007, 10:37:09 PM »
Welcome to our community!  Glad you found us.  You certainly have been facing some real challenges, but it is always a tribute to the strength of the human spirit when you are still able to enjoy life.  We look forward to hearing more from you.  This site is an excellent place for information, support, freedom to vent when you need to, and fun (watch out, there are some wacky people here!).


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angela515
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i am awesome.
« Reply #11 on: October 05, 2007, 11:04:21 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
keefer51
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« Reply #12 on: October 06, 2007, 07:38:30 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
kitkatz
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« Reply #13 on: October 07, 2007, 03:23:25 PM »
Welcome to the site.  It is always good to find people who9 have experienced simlar things in dialysis.



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
KR Cincy
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Home hemodialysis since May 07
« Reply #14 on: October 08, 2007, 08:14:54 AM »
Thanks for the welcome and the supportive words! It has been a crappy year, but I'm still here and we're taking it one day at a time (that used to sound so trivial to me...now I understand it!)
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Not giving up...thanks to Susan.
donnia
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me and my donor Joyce
« Reply #15 on: October 08, 2007, 08:29:00 AM »
 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Hawkeye
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« Reply #16 on: October 08, 2007, 08:37:24 AM »
Hello and  :welcomesign;
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It's not easy being green.
lola
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I can fly!!!
« Reply #17 on: October 08, 2007, 10:08:06 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
willieandwinnie
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« Reply #18 on: October 08, 2007, 10:13:07 AM »
:welcomesign; This is a terrific site.

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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