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Deanne
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« on: January 21, 2008, 10:04:16 AM » |
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A friend surprised me yesterday. She has a friend who's 20-year old son just received an artifical heart to keep him going while he waits for a transplant. My friend took me by surprise by thinking that once he got the transplant, he would be a "normal", worry-free person again. She was shocked / horrified when I told her that transplants aren't "cures" and that for the rest of his life, he will be on anti-rejection medication and will have to worry about problems and rejection.
Please send good thoughts and prayers for Lee -- the young man. Until October, he thought he was a perfectly healthy young man. Then suddenly, they didn't know if he'd survive until the next day. He can only use the artificial heart for 6 months and will be in intensive care until he either gets his heart or loses his battle.
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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lola
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« Reply #1 on: January 21, 2008, 10:07:06 AM » |
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will keep him in my prayers
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paris
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« Reply #2 on: January 21, 2008, 10:59:52 AM » |
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I will keep Lee in my prayers. I feel so bad for him. My husband (before I was diagnosed) thought you could be weaned off anti-rejections drugs after awhile. We learn as we go, don't we? Tell your friend that lots of us will be praying for a good transplant for Lee.
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Sluff
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« Reply #3 on: January 21, 2008, 11:00:20 AM » |
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There is always room for extra prayers.
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petey
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« Reply #4 on: January 21, 2008, 12:37:30 PM » |
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Lee is now on my prayer list, too -- along with all of you on IHD.
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Mimi
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« Reply #5 on: January 21, 2008, 02:12:29 PM » |
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Heavenly plans seldom make earthly sense. I will be praying.
Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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goofynina
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« Reply #6 on: January 21, 2008, 03:46:17 PM » |
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Sending good thoughts and prayers Lees way  |
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Deanne
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« Reply #7 on: February 04, 2008, 10:49:30 AM » |
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Lee needs some more prayers. When he had the artificial heart hooked up, they had to remove him from the transplant list while he recovered from that surgery. They thought it would be about a week before he could go back on the list. It's been over two weeks now and he's in worse shape than ever. Something happened that made one of his lungs collapse and he almost bled out. He had to have 22 units of blood and more surgeries. He's in a drug-induced coma now.
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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rose1999
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« Reply #8 on: February 05, 2008, 12:33:05 AM » |
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That is awful news. I'm praying for Lee and his family. I hope things will turn around for them, please keep us posted.  |
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Joe Paul
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« Reply #9 on: February 05, 2008, 02:11:08 AM » |
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Sending hope & prayers |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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lola
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« Reply #10 on: February 05, 2008, 04:12:39 AM » |
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Keeping them in my prayers |
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ODAT
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Nala - Mom's Cat
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« Reply #11 on: February 05, 2008, 06:34:48 AM » |
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My prayers are with Lee and his family. Sudden and young make this oh so much harder to deal with. Thank you for bringing it to our attention so we can pray for him.
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As is your sort of mind, so is your sort of search: you will find what you desire.
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Sluff
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« Reply #12 on: February 05, 2008, 05:38:12 PM » |
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This is not good news.  Lee you are in my prayers as well as your family. I will speak up in church this sunday and you will have hundreds more prayers next week. |
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Ohio Buckeye
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« Reply #13 on: February 12, 2008, 04:22:57 PM » |
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how sad, I will certainly add him and his family to my prayer list.
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If I must do this to live, I must strive to live
while I am doing this.
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Deanne
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« Reply #14 on: March 31, 2008, 09:09:08 AM » |
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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glitter
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« Reply #15 on: March 31, 2008, 09:25:57 AM » |
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I hope he does well...good luck to him! |
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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willieandwinnie
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« Reply #16 on: March 31, 2008, 09:27:00 AM » |
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 I'll be sure to say extra prayers. Let us know how he is doing.  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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st789
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« Reply #17 on: March 31, 2008, 09:39:07 AM » |
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Pray here. Yep, transplant is not a cure.
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okarol
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« Reply #18 on: March 31, 2008, 10:19:19 AM » |
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 Thinking only good thoughts!! Go Lee!
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paris
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« Reply #19 on: March 31, 2008, 11:13:51 AM » |
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Lots of good thoughts and wishes. Please let the family know that people around the world are praying for him |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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lola
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« Reply #20 on: March 31, 2008, 03:38:09 PM » |
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Good luck and many prayers your way |
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Deanne
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« Reply #21 on: April 01, 2008, 09:16:25 AM » |
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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ODAT
Sr. Member
Offline
Gender:
Posts: 574
Nala - Mom's Cat
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« Reply #22 on: April 02, 2008, 11:24:50 AM » |
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Awesome, Amazing, such great news. I pray he continues to do well and enjoys every minute of his life!
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As is your sort of mind, so is your sort of search: you will find what you desire.
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