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Author Topic: perhaps another transplant????  (Read 5313 times)
keefer51
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« on: August 28, 2007, 07:22:59 PM »

As many of you know i had a transplant that lasted over ten years. In the three years i have been on dialysis i have gone on "The List". I don't get any responce from "Them" when i inquire as to where i am on the list. My one brothers girlfriend showed some interest in being a donor. I have had this happen a couple of times. People who care think they may want to donate. When the time comes to get checked they sometimes get scared. This to me is very normal. Just to know that someone has thought about doing it for me is a blessing. I feel bad when i see her because i know she has given it second thoughts. Which in it's on way is good. She has not taken a blood test to see if she can even be a good match so i don't know nor would i ever push the subject. Now i will get to the point to this long message. I have not been on IHD for a while. There are many reasons. For one i hadn't been feeling to good. For another i have met a wonderful woman who i have been seeing. She is the same blood type as i and wants to see if she can be a potential donor. Today we went together to the hospital for the blood test. Afterwards i took her out to lunch and discussed the whole thing. We are now waiting to see what happens. If it is meant to be it will be my friends. :clap; :bandance;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
charee
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« Reply #1 on: August 28, 2007, 07:40:50 PM »

I'm so happy for you keef  :bandance;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
angela515
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« Reply #2 on: August 28, 2007, 09:11:57 PM »

I hope the best for you hun! :)

To comment on the "Where am I on the list" thing... you will never find that out because the list is constantly changing every minute. People are being added, people are being taken off (due to getting a transplant, getting taken off the list for not being able to have one anymore or by choice, due to dying and so on) people are being moved up to the top for possible matches and so on. So in reality.. nobody has a number on the list. Like say, if there were 100,000 people on the list, there isn't a number 100,000 and a number 100 and so on. Everytime they add a donor into the computer, the computer looks for the closest matches. Perfect match candidates go all the way to number 1 to be called for first dibs, if they say no or for whatever reason cannot do it.. or there is no perfect match found the top 3-5 closest matches are found. If there is 2 or 3 good matches, they call their coordinators and find out who is the best candidate for first dibs, and the second if #1 declines and so on.

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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
goofynina
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« Reply #3 on: August 28, 2007, 09:15:16 PM »

Goooood Luck Keefer,  hope the nice lady gets to stick her organ in ya  :oops;  well, you all know what i mean ;)  Just please keep us posted and you are right, if it was meant to be, it will be  :beer1;
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Rose From OZ
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« Reply #4 on: August 29, 2007, 02:27:55 AM »

Keefer, That is wonderful news. Here  :beer1; to another successful transplant.  Rose
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KT0930
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« Reply #5 on: August 29, 2007, 05:42:20 AM »

Keefer, best of luck both with the testing and the dating!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
BigSky
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« Reply #6 on: August 29, 2007, 06:03:33 AM »

As many of you know i had a transplant that lasted over ten years. In the three years i have been on dialysis i have gone on "The List". I don't get any responce from "Them" when i inquire as to where i am on the list.

People get points for years on the list and those that have high PRA's get extra points. 

However you might ask what your PRA is.  If it is really high your transplant center may be waiting for a perfect match as people with high PRA's tend to have a cross positive match with kidneys less than 6 antigens matchs.
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paris
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« Reply #7 on: August 29, 2007, 12:05:02 PM »

Waiting to hear great news- hope the tests show a good match :thumbup;
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st789
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« Reply #8 on: August 29, 2007, 12:19:08 PM »

 :bestwishes;
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okarol
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« Reply #9 on: August 29, 2007, 05:53:26 PM »

I am glad you found someone - I hope you are happy.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
keefer51
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« Reply #10 on: September 06, 2007, 06:57:59 AM »

Thank you all for your kind words. She has been tested and found out she is a match. Not a good one but at least she went for the test. She is going for the other tests as i speak. So far so good.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
lola
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« Reply #11 on: September 06, 2007, 07:26:23 AM »

Keefy I miss you bud but happy you have found someone hope it all works out for you!!!! :cuddle;
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Sluff
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« Reply #12 on: September 06, 2007, 10:17:36 AM »

Keefer you are thought of everyday in the hearts of many here at IHD. We wish nothing but health, wealth and happiness. I give you credit because you are working on two out of three, health and happiness. I hope it all works out for you but don't forget about us.  :lol;  especially if you find wealth  >:D ;) Anyway godspeed to you my friend.
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del
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« Reply #13 on: September 07, 2007, 12:33:29 PM »

So happy for you keefer. Hope things work out!!  :clap;  :beer1;
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Ohio Buckeye
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« Reply #14 on: September 07, 2007, 07:18:50 PM »

Best wishes to you Keefer with your new friend
and a transplant.  I'm happy that you have found someone
that you care about and certainly sounds like she cares for you.
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keefer51
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« Reply #15 on: September 20, 2007, 04:51:18 AM »

Here is a update on where we stand, I have taken her to all the tests that are involved. Yesterday we went to the last of the tests. I guess we sit and wait for the results. We both have a positive attitude.  :thumbup;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
George Jung
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« Reply #16 on: September 20, 2007, 05:12:31 AM »

keefer, like sluff said a couple of posts back, but if you have the health and happiness then you also have the wealth.  Take good care and continue to come by when you can.
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goofynina
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He is the love of my life......

« Reply #17 on: September 20, 2007, 10:12:12 AM »

So true George!!  :thumbup;

Keefer, now all we have to do is pray for the best and prepare for the worse.  Good luck to you and please keep us posted on how things turn out  :2thumbsup;
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Romona
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« Reply #18 on: September 20, 2007, 07:03:47 PM »

Hopefully everything will continue to go well.  :)
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Beth36
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« Reply #19 on: September 25, 2007, 01:20:19 PM »

Wow.  Good luck and I hope you get your transplant soon!!


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
keefer51
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« Reply #20 on: September 25, 2007, 07:44:18 PM »

Well as things sometimes work in life the transplant isn't meant to be. It would be too risky for me to go ahead with it. She wouldn't really be that good of a match. Although the hospital doesn't mind taking the risk i do. No problem though i will carry on. Wow what a hell of a birthday!!!
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
okarol
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« Reply #21 on: September 26, 2007, 09:22:00 AM »

Hi Keefer,
I am sorry to hear this. I know you must be disappointed. Do you mean not a good match as far as antibodies go?
Thinking of you, my friend. :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #22 on: September 26, 2007, 09:54:47 AM »

Keefer,    I am so sorry. I know the dissapointment.  After 5 donors tested, it is still hard to hear each time that it is a no go.  I was so hoping yours would go smoothly and quickly.  :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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« Reply #23 on: September 26, 2007, 02:10:20 PM »

I'm so sorry to hear about the kidney. I will keep you (& a kidney!) in my prayers!
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lola
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I can fly!!!

« Reply #24 on: September 26, 2007, 02:20:16 PM »

Kman sorry to hear about it not working out, Otto has had so many people not match we've lost count hang in there I miss you in chat :cuddle;
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