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Author Topic: Introduction, BobT  (Read 4119 times)
BobT1939
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« on: August 30, 2007, 09:01:58 AM »
My name is Bob, and I am about to begin dialysis. My kidney problems started in 1978 when I was diagnosed with testicular cancer. I was treated at Duke University Medical Center. It took 6 years to beat it, something that now takes less than a year.

I received Cisplatin as a chemotherapeutic agent at a time when they didn't quite know what to give along with it, so I had two recurrences and a lot of chemo. When I was finished my primary doctor said that I might be on dialysis in 10 years as a result of the negative effect of the platinum compound on my kidneys. Fortunately, they have managed to do the job for 24 years, but now it's time for dialysis.

I had a vascular access graft placed in my upper left arm on August 20.

In the meantime I've picked up an active case of prostate cancer, with a rising PSA after a prostatectomy, so I get to be a poster child for more than one cause.

It looks like I will be starting out on the NxStage program./bobt
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BobT
MyssAnne
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« Reply #1 on: August 30, 2007, 09:05:05 AM »
Oh my!! What a dubious status, to be the poster child. I'm sure you could cheerfully give that up in a heartbeat!
What a double whammy. On all sides, too! From what I've heard from other people, you will like nxstage!
Welcome aboard, and bring on your questions and observations!  :welcomesign; :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: August 30, 2007, 09:15:06 AM »
Welcome to our site!  Not only do we have lots to offer you, you also have lots to offer us.  You have certainly been through some experiences.  Thanks for sharing with us, and please let us know how you are doing, especially when you start dialysis.  As I always say, we are not nosey, we are family.  So keep reading and keep posting.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Romona
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« Reply #3 on: August 30, 2007, 09:16:49 AM »
 :welcomesign;
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Razman
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« Reply #4 on: August 30, 2007, 09:49:36 AM »
Thanks for sharing with us.   You are going through  ( have been through ) a lot.  Please stay in touch. 
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goofynina
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He is the love of my life......
« Reply #5 on: August 30, 2007, 10:27:32 AM »
Hi BobT,  Welcome to ihatedialysis.com.  I am sorry for all you have gone through and i hope things get better for you real soon, and i have Faith that it will. ;)   I look forward to hearing more from you and please, if there is anything you need to find and you cant, do not hesitate to ask, we are here to help you (and to give you support) :)   Remember, you are not alone in this battle, you now have all of us behind you ;)   Take Care and Godspeed




Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Sluff
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« Reply #6 on: August 30, 2007, 10:29:44 AM »
Welcome to ihatedialysis.com Bob.

Sometimes things just feel overwhelming don't they? I'm glad you found us, we are always here for you in good times and bad.

Please know we care.

Sluff/ Admin
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angela515
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i am awesome.
« Reply #7 on: August 30, 2007, 10:42:09 AM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
paris
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« Reply #8 on: August 30, 2007, 12:06:00 PM »
  :welcomesign;  Glad you found us. You certainly have dealt with alot of problems.  This is a great site for compassion, inspiration, help and laughter.   There are a few of us in the Duke area.  Looking forward to learning more from you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Laurie
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« Reply #9 on: August 30, 2007, 01:51:38 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Hawkeye
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« Reply #10 on: August 30, 2007, 01:54:22 PM »
Hello and  :welcomesign;
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It's not easy being green.
bolta72
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my best friend
« Reply #11 on: August 30, 2007, 01:57:10 PM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Ohio Buckeye
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« Reply #12 on: August 30, 2007, 01:59:27 PM »
hi Bob

 :welcomesign; to the IHD Family!
Hope you find lots of useful info here.
You have been through a lot.  You'll find lots of support here and many friends here.
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If I must do this to live, I must strive to live
while I am doing this.
Joe Paul
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« Reply #13 on: August 30, 2007, 03:33:35 PM »
Welcome Bob, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kitkatz
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« Reply #14 on: August 30, 2007, 07:49:23 PM »
Welcome Bob.  There is an entire section devoted to the NX stage users here.  (Sounds like a drug doesn't it.)  Along with tons of information on dialysis all over the board. Read and join on in the neighborhood.




kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
keefer51
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« Reply #15 on: September 03, 2007, 01:42:56 AM »
 :welcomesign; Bobt.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
okarol
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« Reply #16 on: September 03, 2007, 11:37:24 AM »
 :waving; Hi Bob,

I hope things get easier for you. I am glad you found IHD - it's a nice little community - and you're welcome to stay as long as you want - lots of good support here.
Take care!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."
« Reply #17 on: September 03, 2007, 09:12:38 PM »
Welcome to the community Bob!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #18 on: September 04, 2007, 03:33:03 AM »
Hey Bob,

 :welcomesign;

Great to see you here !

Take Care Tamara xxx ooo
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
brenda
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« Reply #19 on: September 06, 2007, 08:50:18 PM »
Hi Bob and  :welcomesign;
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Life is what happens while your making other plans.
glitter
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« Reply #20 on: September 07, 2007, 11:08:32 AM »
welcome :welcomesign;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
del
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del and willowtreewren meet
« Reply #21 on: September 07, 2007, 05:11:40 PM »
You are going through a lot but you will find support here .  :welcomesign; from  :canadaflag;
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Don't take your organs to heaven.  Heaven knows we need them here.
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