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lola
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« on: July 21, 2007, 04:28:23 PM » |
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Dani was started on 5mg Enalapril 1x day and 325mg Iron 1xday she's been on it 2 weeks now and the last few day's we've noticed she is turning into a monster. She is a pretty good kid a little whiny at times but now is all she does is whine and act out and it's driving me crazy, don't know if it's the meds or not. Has anyone had changes like this? We'll ask her what's wrong and sometimes she'll just start crying and say she feels sick but can't really say where.  |
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jbeany
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« Reply #1 on: July 21, 2007, 04:59:18 PM » |
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Iron pills? Mine made me permanently queasy.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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kitkatz
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« Reply #2 on: July 21, 2007, 05:39:22 PM » |
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I know iron can make me grumpy and moody when I get it intravenously. Have her take them another week and see if the mood changes. Sometimes it is the body trying to get used to new meds that makes it grumpy.
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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Amanda From OZ
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« Reply #3 on: July 22, 2007, 06:28:53 AM » |
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Hey lola,
sorry this might be a dumb question but whats Enalapril?
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lola
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« Reply #4 on: July 22, 2007, 07:33:38 AM » |
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it's for high blood pressure but hers is OK there using it to see if it lowers protein in urine
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stauffenberg
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« Reply #5 on: July 22, 2007, 01:51:24 PM » |
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The major side-effects of Enalapril are light-headedness and difficulty concentrating, so a five-year-old might have trouble understanding or describing what is going wrong with her, and this may cause her mood disorder.
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lola
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« Reply #6 on: July 23, 2007, 07:49:47 AM » |
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Thanks guys  |
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jbeany
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« Reply #8 on: July 31, 2007, 06:14:38 PM » |
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Hope they work something out for her soon.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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Amanda From OZ
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« Reply #9 on: July 31, 2007, 06:17:05 PM » |
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sorry to hear that lola. hope they can try to do something. |
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Wattle
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« Reply #10 on: July 31, 2007, 11:38:39 PM » |
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Hang in there Lola. Its a hard job being a Mum.  You will know what the best thing is for Dani. |
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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MyssAnne
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« Reply #11 on: August 01, 2007, 04:30:20 AM » |
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Sorry to hear of the trouble with your daughter's meds. It's hard enough for us adults to say what's wrong sometimes, I can just imagine how confusing it is for her, and frustrating for you. |
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lola
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« Reply #12 on: August 01, 2007, 04:05:03 PM » |
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Well just got off the phone with Dani's Neph and he said if the meds had at least stabilized he would try to talk us into trying one more month but her number went up so he said stop the blood pressure meds stay on iron, we will check CBC in 2 more weeks but other then that there's nothing else since we've tried this before with the same results, here protein to creatine was the highest ever now we sit back and let Alports take it's course.  |
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vandie
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« Reply #13 on: August 01, 2007, 04:25:24 PM » |
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Well just got off the phone with Dani's Neph and he said if the meds had at least stabilized he would try to talk us into trying one more month but her number went up so he said stop the blood pressure meds stay on iron, we will check CBC in 2 more weeks but other then that there's nothing else since we've tried this before with the same results, here protein to creatine was the highest ever now we sit back and let Alports take it's course.
Oh Lola, I am so sorry. You are a fabulous mama and an amazing advocate for Otto and Dani. Hang in there. xoxo |
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
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