new to site

[Naggy6]

Hi

I'm new to the site, I have never posted on a board before so I hope I do OK with this.

I started hemo dialysis in Jan. 1989, I had a transplant (from my sister) in Sept. 1989. Went back on dialysis in August of 1994, another transplant (from my brother) in Jan. of 1995. Back on dialysis in Jan. 1999, transplanted again in Dec. 2003 from some poor unfortunate sole) who's family was good enough to donate his/her organs. Once again back on dialysis just a short time later, April of 2004.

Did I mention how much I hate rollercoasters.

I found out in 1985 while pregnant with my third child that I had a kidney disease (fsgs)focal segmental glomerial sclerosis. Not caused by any thing to do with the pregnancy that just happened to be when I found out.

I lost my first two transplants to a recurrence of the same disease. The last one I lost to rejection, all though the end result is the same believe it or not it was a promising thing that I did not loose the last one to the disease. Because of that they will actually consider me for future a transplant.

I do in center hemo dialysis, I set all the settings on my machine and I put in my own needles. I am now looking in to the new nxstage system one (new machine for home hemo). I am rather excited about it.

[Bajanne]

Welcome!  You have come to the right site for many reasons, the chief of which is that there are many here who share some of your experiences.  If you look around you will find there is a new section dealing with Nxstage.  This site has been a real godsend for many of us -  a place for real information, a place where people understand what you are going through and allow you to vent.  So I am looking forward to your posting. You have many experiences to share with us.
Welcome again!
(You are doing okay with this  )

[fireguy]

Welcome>Im speehless and wife saids to tell you that does not happen often.

[Rerun]

Naggy6, you did great for your first post.  Before this site, I had never even looked at a chat room or website where you could say what was on your mind.  I've become addicted to this site as I'm sure you will be too.  Check out the Transplant Stories Section and let's share experiences.  Welcome to the site and feel free to vent anytime. 

[Naggy6]

Thanks for the big welcome

It's nice to talk to people who understand you. Through every thing I have continued to work full time. I don't have a problem with that but it seems like people just don't think of you a sick because you work. Most mornings I feel like I got hit by a truck. I just try and wake up about a half hour before I actually have to do any thing to give my self time to get over that part of the day. Usually it takes me a little while to get going then I have some thing small to eat english muffin or cereal then I start feeling better.

I remember when I first started back on dialysis the second time some one stopped me and said, I'm glad to see your back I heard you were very sick. I said yes I have kidney failure and had to go back on dialysis.  Since it was some one who had known me for some time I figured they understood but her response was Oh! that is that all. She said some one told her that I was so sick that I could have died. I just said well in case you didn't know people do die from kidney failure.

I do think a lot of it is like I said though even people who know me see me going to work and think, well she couldn't be that sick if she goes to work. If they only knew.

Still I'd rather go to work than sit around at home with nothing to do even when I do feel like crap. I was home for almost a year after my last transplant, Boring!!!!

Sorry I tend to get a little carried away once I get going.

I will check out the transplant stories too. I have only looked around a little bit so far as I just found the site yesterday. Thanks Rerun.

fireguy? like the name do you  happen to be a fire fighter? Or did your wife give you that name? giggle, giggle I hope you don't take offence to that kind of stuff I am kind of a joker my self.

         

[fireguy]

LOL.Yep I'm a vol firefighter in town and the Fire Chief in a paper mill. Happy to see someone with a sense of humor.Mine gets me through every day.

[Naggy6]

My hat off to you, it's not an easy job to do.

It must be a scary thing to go into a burning building or what ever is on fire. I give you a lot of credit putting your life on the line for others.

You only go through life once you might as well do it with a sense of humor. 

Grumpy people just don't know what they are missing.