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Author Topic: The story of my non ABO compatible transplant (Long)  (Read 2266 times)
dmahlalek
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« on: May 18, 2007, 07:30:31 AM »

I have been asked by one of the administrators to post my story.....it is very long and complex  If you are interested, here is the link

http://dansnewkidney.blogspot.com/

The transplant has now failed and I am back on dialysis.  I hope this infor can help someone.
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #1 on: May 18, 2007, 08:18:36 AM »

Hi Dan,
Thank you for sharing your blog. It's an amazing story. I am so sorry the kidney failed.
The one thing that comes through is the obvious love and devotion you have from your wife and children. That is a gift like nothing else in the world!
Your comment back in Aug. 2006 during a plasmapheresis treatment says it all "I realized that the tragedy of illness was not in being sick; the true tragedy would be in having no one who cared and loved you."
Best of luck to you!
Karol    :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kelliOR
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« Reply #2 on: May 20, 2007, 06:33:38 PM »

Thanks Dan for sharing a part of your life with us!  Indeed, you are blessed with wonderful people in your life.

Hugs, Kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
Yonanamama
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Got kidney?

« Reply #3 on: May 20, 2007, 10:36:09 PM »

And people have the NERVE to ask me why I made the decision to donate.
 
Makes me want to scream, "EDUCATE YOURSELVES PEOPLE!"   :rant;

Although, I'm embarrassed to admit that before I learned about this awful disease, I thought that dialysis patients just sat in a chair for a few hours a week, reading a magazine while a machine removed the toxins from their bodies.  Don't ask me how I imagined the machines did THAT!  I never allowed myself to think that far.  Now I know why. 

Dan, I read EVERY word of your blog.  You are one SUPERHUMAN being.  I have no doubt that if I had been faced with 1/10th of what you've been through, I would have been a hysterical, screaming, self-absorbed BITCH!   :oops;

My thoughts are with you, your wife and family and your wonderful friends that have been by your side.  Thanks for sharing your story. 

Debbie (Yonanamama)
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Hopefully donating a kidney to a Matchingdonors.com recipient/friend this summer.     

WHAT IF THE HOKEY POKEY REALLY IS WHAT IT'S ALL ABOUT!?
Sluff
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« Reply #4 on: May 21, 2007, 04:14:56 AM »

 :thumbup; I wasn't able to read it in it's entirety yet, but it is an incredible log of events.
« Last Edit: May 21, 2007, 04:19:09 AM by Sluff » Logged
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