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Author Topic: This stinks  (Read 3521 times)
Adam_W
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Me with Baron von Fresenius
« on: May 20, 2007, 08:35:35 AM »
I guess permanent accesses don't like me. My brand new graft clotted this morning. Fortunately, it's not a complete clot, and it should be able to be fixed with no problem. I go in tomorrow to have it fixed. This is just so annoying, though.  :banghead;

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Joe Paul
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« Reply #1 on: May 20, 2007, 08:53:59 AM »
Sorry to hear this Adam will keep you in thought and prayer, good luck tomorrow.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
okarol
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« Reply #2 on: May 20, 2007, 09:30:28 AM »
Adam,
Forgive me but I cannot recall - how long ago did you get this graft?
I know sometimes they are used before they fully develop.
I hope things improve, that sounds terribly frustrating!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Adam_W
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Me with Baron von Fresenius
« Reply #3 on: May 20, 2007, 10:24:51 AM »
I got the graft two days ago, and it hasn't been used yet. I just noticed this morning that the thrill was weaker, and more uneven. I listened to the bruit, which was clearly audible without a stethoscope before, and I just heard it get fainter and fainter. I went to the ER since it's Sunday and my vascular surgeon's office is closed, and the doctor could still hear the bruit with his stethoscope. I've just been told to to keep my arm as still as possible and keep it below my heart level to keep the blood flowing (I'm typing this one-handed), and I will go in first thing tomorrow morning to have it de-clotted. I also start my first day of home dialysis training tomorrow, so it will be a hectic day.

Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
BigSky
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« Reply #4 on: May 20, 2007, 10:39:51 AM »
Are you on anything to thin out your blood?

After my access was put in I was on blood thinners for a few weeks and then taken off them and then told to take an aspirin everyday to help keep the  blood a bit thinner.
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Sluff
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« Reply #5 on: May 20, 2007, 12:39:42 PM »
I hope it's an easy fix, you have been going through a lot lately. My thoughts are with you tomorrow.
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kianhu
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« Reply #6 on: May 20, 2007, 12:43:07 PM »
I was going to suggest a blood thinner also.  Another question, how is your blood pressure?  If you blood pressure runs low than that can clot you also. 
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Kimberly
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del and willowtreewren meet
« Reply #7 on: May 20, 2007, 01:02:15 PM »
Good luck.  Hope everything gets fixed quickly
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Amanda From OZ
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« Reply #8 on: May 20, 2007, 01:10:03 PM »
That sucks... i hope they can fix it without any dramas.

goodluck.  :thumbup;
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Adam_W
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Me with Baron von Fresenius
« Reply #9 on: May 20, 2007, 01:31:35 PM »
Well, the bruit has actually come back a little. Possibly the clot has worked loose a little bit (I'm still very new when it comes to arm accesses, so I don't really know). I'm going to ask the doctor about blood thinners when I see him tomorrow.

Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
goofynina
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He is the love of my life......
« Reply #10 on: May 20, 2007, 02:11:53 PM »
Hang in there little buddy, it will get better for you.  :beer1;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Adam_W
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Me with Baron von Fresenius
« Reply #11 on: May 20, 2007, 04:35:49 PM »
OK this is weird, even though I'm not complaining. Both the thrill and the bruit have returned, and are back to normal. Either my graft "un-clotted" itself, or it wasn't a clot at all. Has anyone else experienced something like this? I'm still going to have the doctor look at it tomorrow just to make sure it's alright.

Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: May 20, 2007, 06:48:20 PM »
That's great Adam, I hope it keeps working! I was going to ask if you have had any Procrit or Epogen lately, as this can
cause an abundance of red blood cell production (which is the purpose of it) but over production can cause clotting.

Have you read this? “Fistula Exercises- Building Your New Vascular Access" -
It can be found at www.tarcweb.org/tarcweb/documents/FistulaExercises.pdf

Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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